Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depression


joolsjewels

Recommended Posts

joolsjewels Newbie

Dissappointing Day: i went to my fibro dr today and told her about the last 6 weeks. She looked right at me and said, "Well, I am sorry that things have been going so badly, but there is nothing else I can do for you. Just continue looking for the medical causes."!!!!!?????? No advice, no general direction, just continue with what you are doing. Thanks! I started crying in the office as i was so frustrated ( i rarely cry in front of others).

The "good" news is that i have arthritis in my right foot too!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Mindwarp Community Regular

How frustrating.

It seems once again the patient has to do all the hard work. I am so sorry you didn't get more help.

Sending hugs

Mw

  • 1 month later...
Judyin Philly Enthusiast

are you still taking pristiq and is it working

Madagascar Rookie

joolsjewels - i saw you were online earlier today, and although you didn't bump up this post, i wondered how you are doing.

have you had another test run to see if you are still producing antibodies? there's an RN who has celiac, who has become a specialist in the topic, speaks internationally, consults, etc. i think she really knows her stuff. she has people go gluten & dairy free, because of what the person earlier said - the casein (milk protein) and gluten strands can look alike to the body. here's her website: Open Original Shared Link take a look at the link mid-way down the front page under "frequent misdiagnoses" and then at her link under fibromyalgia. reading through your post, i wonder if you are still getting exposed to gluten. she does do phone consultations - i think she knows more about this topic than any doctor i've encountered. after i talked to her, i had my primary care doc order the blood tests for me. he didn't think i had it. he didn't think my daughter had it (his words were that all her stomach problems were in her head.) we appreciate that very much. :angry: however after the daughter being gluten-free for 4 weeks, she's a world better, both mentally and physically.

you can't take this with other antidepressants, but 5HTP is something I take that helps your brain produce melatonin to sleep and serotonin for a good mood. but DON'T take it while you're taking another anti-depressant. you don't want serotonin overload. i'd encourage you to do some research into it. sounds to me like you might be still having antibodies causing all these other symptoms, like the fibromyalgia. If a person's intestine isn't absorbing tryptophans, they don't sleep well and might feel anxious or depressed. those are all linked together. i took paxil for a few months (bully boss was making me insane) and my son (college student) took celexa for anxiety attacks and depression. both of us went off of them and found the 5HTP helped more than anything else - and the only side effect is that it can make you sleepy. i take just one a night - i buy mine from pureformulas.com and get the one made by Thorne Research Labs (cuz they are the researchers).

but again, please do some research and if you want to take it, do it safely. i just didn't want to ignore your post because so much there sounds like you're still having antibodies, your gut is may be not absorbing nutrients and you may be malnourished.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

    2. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

    3. - suek54 replied to Kayla S's topic in Dermatitis Herpetiformis
      4

      Need advice for some relief!

    4. - MicG replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,657
    • Most Online (within 30 mins)
      7,748

    Mark Bevan
    Newest Member
    Mark Bevan
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.