Loss Of Padding On Feet And Bottom

[Lisa]

I would like to find a witness.........

Does anyone else suffer from a disease, that I call," Noassatol."

I cannot sit in a hard chair unless I sit on my thighs, if not, my tail bone and (don't know what they are called, but my bottom hip bones?) grind into the chair and it compresses my spine. I have terrible lower back problems.

Anyone else have this problem? What do you do?

I am geneticly high risk for Osteoperosis. Have not been tested until the celiac disease gets undercontrol. Most likely have it.

Would excercise to rebuild the atrophy make sense? I guess that's a "duh".

Lisa B.

[tarnalberry]

I would like to find a witness.........

Does anyone else suffer from a disease, that I call," Noassatol."

I cannot sit in a hard chair unless I sit on my thighs, if not, my tail bone and (don't know what they are called, but my bottom hip bones?) grind into the chair and it compresses my spine.  I have terrible lower back problems.

Anyone else have this problem?  What do you do?

I am geneticly high risk for Osteoperosis.  Have not been tested until the celiac disease gets undercontrol.  Most likely have it.

Would excercise to rebuild the atrophy make sense?  I guess that's a "duh".

Lisa B.

<{POST_SNAPBACK}>

I also find hard chairs usually uncomfortable on my tail bone. Turns out that the reason for that (for me) is a slight oddity in one of the joints of my tailbone. Not much to do about it but to sit on a cushion in that case. But you might talk to an orthopaedist about it if you think it may help - and/or a physical therapist to make your attempts to work on the issue more efficient. (There were a couple of things that a physical therapist did for me for my tailbone that have helped.)

[Lisa]

I will keep that in mind. I do think that working out and building up my butt muscles will help grately. Thanks for your imput. Our insurance is getting a little tired of doctors and billing. Any information is good information.

Thanks, Lisa

[debmidge]

My husband has lost all of his body fat from 27+ years of being misdiagnosed. His weight prior to celiac was a muscular 175 ( at 5' 10" tall) then after 3 moths of being sick dropped to 155; over the next two years he went down to 128 and the gastro didn't think anything of this!

As a result of over 27 years of beig misdiagnosed he has:

1) Lost abdominal fat -- and then body consumed his muscle tissue in abs (like it would happen to an anorexic person). Result: 2 hernias both repaired then re-herniated a couple of years later, the 3rd hernia was repaired and now he's left with one hernia.

2) Lost foot pading - result: Painful joints in feet, constant corns and calluses which need to be removed by a foot doctor each month - not covered under any health insurance.

3) Lost healthy fat from face - result: long, drawn, hollow look of someone who's been ill for years

4) Every rib can be seen when he takes his shirt off; he's embarrassed to be at beach/pool or take shirt off in backyard to sit in sun.

5) limbs are spindle-ly thin and maybe he has osteoporisis problems but won't get a bone density test despite my urging.

6) lower torso (heine & hips) has lost body fat too.

7) Clothes don't fit him properly because he has a 34" waist (due to being over age 55 and he doesn't like tight waists), but the other parts of the pants are too big (look like clown pants over his heine).

Another situation is that when he gains weight, it goes all to his waist and his hernias hurt when he attempts to exercise to build up other areas of his body. Any exercise that requires weights or sit ups bother the fixed and new hernias.

[debmidge]

P.S. Yes, husband has to sit on padded chairs or bring a pillow (which he hates as he says he feels like a girl to have to do that). He can't sit too long even with a pillow.

[gabby]

I have this same problem after losing 40lbs going gluten-free. I also have this thing where it feels like my tail bone is swollen (I can actually feel a roundish bump on one side). Originally I thought it was my tail bone rubbing on the chair that caused the problem, but I went to my chiropractor who told me it actually was an inflammation in the area that connects your hip bone to the pelvic bone (near that upside-down-triangular bone at the base of your spine). He then told me that for some reason, this is VERY COMMON with people who have celiac disease! He adjusted the area for me, and it felt better, not perfect, but better.

Applying a heating pad and/or that deep cold stuff makes it feel better. I usually go to the chiropractor once every 6 weeks for an adjustment to everything and it helps.

Hope this helps.

I'm new here, and don't know how to post a poll, but it would be interesting to poll everyone and see if they have problems with their hips/tailbones.

thanks

Gabriella

[Makepeace]

Yes, doing a butt workout would probably help! Furthermore, the real culprit of much low back pain is weak abdominal muscles, and your posture would be poor as a result. Some people genetically have muscular "imbalances"...for e.g., one set of muscles could be overdeveloped in comparison to the opposite set (e.g. quads, hamstrings) that could be contributing to your problem...so when you do a particular movement, your glutes aren't behaving the way they should be. A physiotherapist could probably help more than a doctor, as she could identify your muscle imbalances and give you exercises to work on them. You CAN improve things like that (underdeveloped glutes and hamstrings!). There are books in any bookstore you could browse through that might help (such as JUMPMETRICS) or you could even search online. The bones to which I believe you refer (I call'em "sit-bones" for lack of the technical term) frequently hurt those of us who end up sitting in bleachers in a gym! Also, you could have sustained an injury to that bone where the hamstring attaches to it (although it would be unlikely you would have injured both) that could be making it worse.

[Lisa]

That was VERY informative. I have always hear that if your abs are weak, it may put strain on your back, when standing, sitting and bending. I am assuming that most of us with celiac disease have bloating and have had for many years which would lead to the stretching and weakness of the ab muscles.

So... butt building for me. I have always thought that if I could twist my torso around, I'd have a pretty darn good figure.

[debmidge]

If you read the CSA pamphlets about celiac disease you'll note that "reduced padding on feet" is a sign of celiac disease. So it makes sense to conclude that the celiac can lose padding elsewhere (face, hands, arms, legs, buttocks). The reduced padding (fat) is what is causing tailbone pain because there's nothing to "cushion" the act of sitting for long periods of time. This "sitting pain" is not a lower backache.