Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are My Symptoms Celiac?

Mama Maria

Recommended Posts

Mama Maria Newbie
Mama Maria
Posted

So for the last three plus years I have had bowel problems. Had a colonoscopy 3 years ago and it was clear. Got diagnosed with IBS. I am also Vit D deficient. For the last few months it seems that I go the bathroom constantly and it is always loose. I am super tired all of the time. I cannot think straight and my STM is GOD AWFUL lately. I have no patience with anything anymore and I used to be very calm and easy going. My stomach hurts all the time. I have horrible gas pains (which I was also tested for gallbladder and that was negative). When I eat I go the bathroom almost immediately after and then some. (sorry to be gross) Plus, I am in my mid thirties and I am starting to feel like I am 90 with my achy joints. Should I ask the doctor to test me for Celiac? I also had an u/s of my uterus and ovaries to make sure it wasn't that. Plus my kidneys were checked too. Could this be Celiac disease? Because I am at my wits end feeling like this =(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

How were you tested for your gallbladder? Blood test? I had to have mine out despite being normal on the blood test and ultrasound. It was discovered via HIDA scan that it was only working at 5% and that one half was working against the other, thus causing pain.

The rest of the issues you seem to have may indeed be something related to gluten. First, before you do anything, get tested. Then when all tests are over try a gluten-free diet regardless of the results.

GottaSki Mentor
GottaSki
Posted

Welcome Mama Maria!

YES...you should have your doctor order the full celiac blood panel. All of your symptoms are consistent with Celiac Disease and your path to diagnosis is far too common.

IMPORTANT: Do not remove gluten until you have completed both blood work and possible follow up endoscopic biopsies.

Full Celiac Blood Panel:

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also, low vitamins/minerals can indicate you are not absorbing nutrients properly - another indicator of Celiac Disease. You have already tested deficient for Vitamin D, so you might want to have these drawn at the same time as the Celiac panel.

Misc blood tests:

Bs, K, Iron, Ferritin, Copper and Zinc

Others have posted that their doctors add:

A, Calcium, Magnesium and Potassium

If you haven't had them in a some time I'd add CBC and CMP - Complete Blood Count and Complete Metabolic Panel.

Hang in there - order the tests and use the time you are waiting for results to learn all you can about removing ALL gluten from your diet. If the tests are all negative, it is a very good idea to remove gluten for at least three months (six is better) to monitor symptom improvement. Non-Celiac Gluten Intolerance can have symptoms very similar to Celiac Disease - the only test for NCGI is response to gluten elimination.

Good luck to you :)

Mama Maria Newbie
Mama Maria
Posted
  • Author

How were you tested for your gallbladder? Blood test? I had to have mine out despite being normal on the blood test and ultrasound. It was discovered via HIDA scan that it was only working at 5% and that one half was working against the other, thus causing pain.

The rest of the issues you seem to have may indeed be something related to gluten. First, before you do anything, get tested. Then when all tests are over try a gluten-free diet regardless of the results.

I had a HIDA SCAN. Def not gallbladder

Mama Maria Newbie
Mama Maria
Posted
  • Author

Welcome Mama Maria!

YES...you should have your doctor order the full celiac blood panel. All of your symptoms are consistent with Celiac Disease and your path to diagnosis is far too common.

IMPORTANT: Do not remove gluten until you have completed both blood work and possible follow up endoscopic biopsies.

Full Celiac Blood Panel:

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also, low vitamins/minerals can indicate you are not absorbing nutrients properly - another indicator of Celiac Disease. You have already tested deficient for Vitamin D, so you might want to have these drawn at the same time as the Celiac panel.

Misc blood tests:

Bs, K, Iron, Ferritin, Copper and Zinc

Others have posted that their doctors add:

A, Calcium, Magnesium and Potassium

If you haven't had them in a some time I'd add CBC and CMP - Complete Blood Count and Complete Metabolic Panel.

Hang in there - order the tests and use the time you are waiting for results to learn all you can about removing ALL gluten from your diet. If the tests are all negative, it is a very good idea to remove gluten for at least three months (six is better) to monitor symptom improvement. Non-Celiac Gluten Intolerance can have symptoms very similar to Celiac Disease - the only test for NCGI is response to gluten elimination.

Good luck to you :)

I have only had my Vit D checked never anything else on that level. I had a CMP and CBC about a year ago. I was pretty anemic with my last pregnancy but it was resolved shortly after. Actually, my symptoms have been worse since I had my last child ( 18 months ago) And now they are a daily...hourly...problem. Feel so lousy. I am going to call my doc in the morning and get the ball rolling. Thanks for listening. =)

GottaSki Mentor
GottaSki
Posted

I have only had my Vit D checked never anything else on that level. I had a CMP and CBC about a year ago. I was pretty anemic with my last pregnancy but it was resolved shortly after. Actually, my symptoms have been worse since I had my last child ( 18 months ago) And now they are a daily...hourly...problem. Feel so lousy. I am going to call my doc in the morning and get the ball rolling. Thanks for listening. =)

It is common for symptoms to be triggered or worsened by pregnancy, surgery or other stresses on the body. In hindsight I had symptoms my entire life, but they did worsen each decade and got much worse after the birth of my last child. I also was tested for possible gallbladder problems following his birth along with a multitude of tests that were always negative/normal until I was finally screened for Celiac Disease at 43.

Take care - keep looking for answers :)

megsybeth Enthusiast
megsybeth
Posted

I'm 35 and had some similar symptoms. I think it's very challenging to get a sense of normal for fatigue and confusion after you've had a baby. But before I got my diagnosis I would tell my husband that my days felt like they started with a big punch in the face. I'd be standing there in my kitchen with a couple boys bouncing off the walls downing cup after cup of coffee and just feeling so lost. And at the end of the day I just fantasized about crawling into bed. I didn't even have very severe GI issues, just tested because my son is getting tested and celiac symptoms sounded familiar.

The awesome thing about celiac is that if you have it and are like me, that cloud lifts almost immediately when you get off gluten. People tell me how bad they feel for me not being able to have bread but I feel so much more human and alert, it's worth it. Personally my stomach pain got much worse, but I've really just started the gluten-free diet, so I tell myself I'm healing.

Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mama Maria Newbie
Mama Maria
Posted
  • Author

My stomach was killing me this morning. Usually that is when I feel my best because I have not eaten yet. This "cloud" you talk about I definitely have. I feel like I can't focus long enough to accomplish anything. I forget everything. My husband will be talking to me and I will be lost because I can't remember the beginning of the conversation. My stomach hurts so much today I have chest pain. This happens way too often. (My heart is fine had that checked too) It is funny how you can have all these symptoms and get checked for everything under the sun and yet it is possible that everything could be caused by just one thing. I cannot wait to find out if this is in fact what it is. I am not saying I hope I have celiac disease. I just want to feel better already <3

megsybeth Enthusiast
megsybeth
Posted

I know how you feel. I'll admit I was pretty happy to get the diagnosis. It just explained so much. And it's the first time in a long time that I've had a clear, hopeful picture for my son. It's so early for me so I'm sure there are different feelings to come but I really don't mind the diet. I also think so many health conditions make you feel powerless but this is one disease where rolling your sleeves up and cooking new, tasty foods is literally healing for you.

Also, I do recall that I was feeling a good deal of pain as I was considering this and waiting for the blood test results. I started to let myself notice the pain. That might be part of what you're going through too.

Keep us posted!

tripfecta Newbie
tripfecta
Posted

My symptoms also got much worse after my pregnancy. I found out I was severely Vit D deficient after going to the drs multiple times with a slew of symptoms. I was pretty amazed how many symptoms went away within a couple weeks of going gluten-free. Hopefully you get some answers and start feeling better soon!

megsybeth Enthusiast
megsybeth
Posted

I forgot to ask if you have any night vision issues? I noticed that I have a really harx time reading street signs at night, also mh eyes just feel tired, kind of unfocused. I guess vit A deficiency is very common with celiac, and those are common symptoms.

shadowicewolf Proficient
shadowicewolf
Posted

Whenever i get chest pain, it is related to my GERD. It only happens when its really bad.

Mama Maria Newbie
Mama Maria
Posted
  • Author

Yes I do have night vision problems!!! That is crazy that you mention that. My night vision is bad when it rains. Everything is just one giant light. That is a symptom of Celiac disease? I have had that for years. I think since college. I am also noticing that after big meals I get tired and a little dizzy. Anybody know anything about that? Am I starting to become a hypochondriac? Or am I just noticing more and paying more attention to what is going on? Hey guys thanks for listening BTW =). Again it is nice to discuss this with people who feel/felt the same.

megsybeth Enthusiast
megsybeth
Posted

Mama Maria,

That is funny that you have night vision issues. I never would have thought it was a symptom of anything but it's related to the vitamin A deficiency. Like lots of things I just thought, well our bodies change as we get older. Maybe I need glasses. I ordered this book, Celiac Disease: A Hidden Epidemic (2010 version) by Peter Green, who is a prominent GI doctor at Columbia and big in the area of celiac. The book was so helpful. He went over the various vitamin deficiencies, how they are related to celiac, and when I read that it was one of many aha moments. This book is great because it's very evidence based, scientific, so there are statistics and explanations you can share with others to add some legitimacy. Other random symptoms I've read about and have: canker sores, dark circles under the eyes, sore joints, weak teeth, infertility, periods of stomach pain but really not usually much.

Good luck!

-Megan

shadowicewolf Proficient
shadowicewolf
Posted

Before i went gluten free, i could not eat breakfast (or if i did it was a late after 9am one) because my stomach would just churn and churn and made me feel like i was on a roller coaster. Nasuea to the mex. It stopped after i went gluten free (though sometimes, very rarely, my stomach does not like something sugary, such as an apple at 6ish am, but that hasnt happened in months).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,021
    • Most Online (within 30 mins)
      7,748
    Mary larson
    Newest Member
    Mary larson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.