Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First gluten-free Trip Away This Week


Celiac Mindwarp

Recommended Posts

Celiac Mindwarp Community Regular

Hiya

Keep your fingers crossed for me - been gluten-free 2 months and this week is my first time away from home and my own kitchen.

I have a stack of stuff to take with me, cooler at the ready.

I am doing some workshops, so taking lunch with me each day, and enough snacks to keep me going if we decide to eat after, so I can join everyone for a drink and anything gluten-free which comes in a wrapper...

Taking my own pan and spatula for breakfast prep (been before and obviously dont want to miss the bacon).

So, apart from the fact that the food doubles my luggage, all good.

I have a ton of nuts as my son is allergic and I tend to catch up on them when away!

Thanks to all the posters on travelling gluten-free, not sure I would have had the confidence without you. I'd have gone anyway, but not necessarily successfully.

I'll let you know how it goes :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Bon voyage, sweetie!

You will be fine...you have done all your "homework"

All positive vibes sent your way.

hugs, IH

tom Contributor

Consider our fingers dutifully crossed, MW. :)

love2travel Mentor

You can do this. The first trip post diagnosis is always hard as you do not know what to expect but each subsequent time gets easier. If you plan well (which you have) you will be fine. More than fine. Your attitude surely goes a long way to a successful experience. It saddens me when I hear about those who do not travel (or do not do other things) because of celiac. That is called fear avoidance. Thankfully you are not in that position! I wish you well. :) Just do the very best you can. That is all we can expect of ourselves! :P

srall Contributor

Good luck! I checked out your post to see if I could offer any advice but you have got it covered! Have a great time!

Celiac Mindwarp Community Regular

So - I did it!!!

It feels so good.

I fed myself just fine. I think I took about twice as much as I needed. I took packed lunch each day, and chatted to others on the course. In the evening I popped back to my hotel, ate loads so I wasn't hungry, then joined the others who were eating and had a pot of tea. I told them I had a new diet and had already eaten and it was fine.

There was even another self diagnosed celiac there to chat to!

So - next time, plug in cooler or check if I can put blocks in a freezer, and not going quite so mad with nuts...

I even ventured into a cafe for a gluten-free cake back home.

Getting there.

Thanks all x

IrishHeart Veteran

Whoohoo! Good for you, MW

The car plug-in cooler has saved my butt many times.

You should have seen how much stuff we transported the first time we went away--as if we were going

to outer Mongolia and there would be no food ...anywhere!!.

It was just to Florida. They have lots of food in Florida. In fact, gasp!!....They have food everywhere along route I-95! :lol:

I was so worried---for nothing.

I always bring more food than I need, too, but eh?...so you bring it back home.

The last time I traveled, I had it down to a science. No worries, no big deal.

The first trip away from home is understandably filled with a bit of apprehension, but

each one gets easier.

You did GREAT!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Glad it worked for you!

I always bring more food than I need. Things never seem to go as planned. For example, A few weeks ago, we went to Colorado to visit oldest son and let younger one take a campus tour. I knew there was a place I could eat at the school food court, so I planned to eat a soup and salad for lunch. Just in case, I took a Go Picnic in my bag. Sure enough, the line to that place was nuts! We shopped in the bookstore, happened to meet up with big bro between his tests and went back to eat. I went back to the place and it looked like a hurricane had gone thru the salad part. I just got soup, which I enjoyed but was glad to eat the crackers, chocolate and protein from the Go Picnic with it.

Sometimes, I bring food back that I purchased in the new town. They might have brands or local products I can't get at home.

Celiac Mindwarp Community Regular

Thanks guys, not sure I'd have done it without you.

Feels good, getting some more me back :)

IrishHeart Veteran

Feels good, getting some more me back :)

Agree totally on the "getting me back", thing! ;)

IrishHeart Veteran

. Just in case, I took a Go Picnic in my bag.

The gluten-free cafe has those by the register for sale. You like those, K? any good?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    2. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    4. - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

    5. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.