Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Could Punch Myself Right Now!

AshBil

By AshBil
in Coping with Celiac Disease

Recommended Posts

AshBil Rookie
AshBil
Posted

Okay so I've been being really good with this gluten free diet for the last almost month now since I've been diagnosed. I'm doing research and reading labels and being really good with just doing whole foods as much as possible so I can reassure myself I'm not being secretly glutened. Well...it happened anyway. And a lot of it. Literally about 10 minutes ago now. I was in a rush this afternoon and had some stuff to do so I rushed out of the house and told my mom to make me something to eat because I was starved and hadn't eaten all day. So when I got home, I don't even think about it and ate what she cooked. I can't believe I didn't even think about it. All I've been doing is thinking about gluten and making sure it does not get into my body and here I was, chomping away on 4 peices of heavely breaded chicken and not even stopping to realize it. UGH! I feel so dumb right about now. I think my mom wasn't thinking about it either because she wouldn't have made them for me. I don't know what was hanging over our heads today that made us both completely forget about it. It's really weird. Maybe it's because it's only been such a short time...I'm not sure. But anyways, I'm now getting a little nervous about what I'm going to experience. The past 3 1/2 weeks, I still haven't felt much better to begin with but now that I've actually eaten a lot of obvious gluten, I'm worried. Before I was diagnosed, I didn't get D like I know some people get but I was having these terrible sharp stabbing pains all over my stomach and a lot of gurgling in my stomach as well as extreme nausea. Should I be expecting that or something much worse considering I've been gluten free for a while? I'm just in shock over how absent minded I was today. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

No punching yourself allowed (flipping thru Ceiac Handbook) - yep there it is - Rule #2 - accidents happen - especially in the early days.

It will happen again, not in the same way, but an ingredient will change in a product you have purchased before or you'll go out to eat and think you took all possible precautions or a million other scenarios. These accidents will become infrequent as you transition - you'll still get a bit angry with yourself each time it happens, but try not to.

You may not have a severe reaction, but if you do - hang in there and drink lots of water!

Adalaide Mentor
Adalaide
Posted

These things happen. After 10 months I ate soup that got me because I am apparently incompetent at reading labels. Everyone reacts differently. I take every time as a lesson learned, muddle through because that is all I can do with a gluten head and move forward. Accidents happen to all of us, the best we can do is learn from our mistakes, smile through it and carry on.

Lots of water. Foods that are easy on your stomach if anything is troubling you. Take it easy if you need to and if you feel like you need to sleep your weekend away, do it. Let your body take the time it needs to recover.

AshBil Rookie
AshBil
Posted
  • Author

I just feel so dumb about it. It took a couple hours but I feel disguting now. All it mostly is is really bad nausea. I feel like I want to throw up everything I've ever ate in my whole life! And my mouth feels really dry. Thanks for the support guys! Now I get to go through the best part...waiting it out. I can see this will be a fun weekend!

GottaSki Mentor
GottaSki
Posted

Oh...I am sorry it hit you hard. Lots of water. Ginger tea helps me as well - usually not until the next day.

Do you have digestive enzymes? They are a good thing to take daily while healing and do help a bit with accidental glutenings.

Hoping you feel better very soon :(

gatita Enthusiast
gatita
Posted

Ohhhh this was so painful to read... I have no idea why I haven't done that yet, because I am sooo capable of popping something into my mouth without thinking about it. It's been a miracle I haven't done it (yet). Done plenty of other dumb stuff though, like seeing "berries" on the label of a drink and not realizing until it was way too late that it said "wheat berries." Doh.

I sure hope you get through it quickly!

moonablaze Newbie
moonablaze
Posted

happens to all of us. I actually have nightmares about it sometimes. I'll dream that I'm halfway through a donut or a cookie or something when I realize and then I am just so SCARED when I wake up.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

You can try some Pepto Bismol for the stomach nausea. Nettle tea may help if you are sore. Peppermint tea can help get gas out of the stomach. Lots of water is good too and some aspirin if there is lots of pain.

CeliacShack Rookie
CeliacShack
Posted

I spent the first two months after my diagnosis using black pepper and baking soda that "could contain traces of wheat". I felt like a complete idiot when I discovered it, after thinking I was being so careful reading lables... and wondering why I was still having setbacks. I already had those in my cabinet, and never thought to look at them.

MitziG Enthusiast
MitziG
Posted

Don't be too hard on yourself. After nearly two years of always thinking about what I eat, I absent mindedly grabbed a Nestle Crunch bar a few weeks ago and started to put it in my mouth before it dawned on me that DUH, I should probably look at the label! And of course it has Barley mAlt in it! Sometimes our brains just aren't on the ball, it happens. Hope you feel better soon!

SMDBill Apprentice
SMDBill
Posted

I was at Olive Garden the other night with my daughter to celebrate the end of their soccer season. I wasn't sure if they even had a gluten free menu, but I'm not a fan of their regular food so I chose to just have a soda. I didn't even touch a breadstick or crumbs, but at the end the waitress brought me my bill for the sodas and handed us mints. I avoided food all evening and even spoke with a man about his health problem and he asked about mine. But there at the very end, what did I do? I opened the mint and had it almost to my mouth when I realized I had no way of knowing what was in it. It was chocolate and mint, but there was no way of identifying the ingredients. I was about 6 inches from the same thing you did when I caught myself. I gave it to my daughter to enjoy since she likes them and I made my way to the restroom to wash my hands.

I'm 2 months gluten-free and, although it was likely safe, I almost bit into it without even thinking. It happens. We've thrown out pots of noodles because we've cooked gluten-free and non-gluten-free on the same stovetop, carefully using only clean metal utensils in mine...and then making the mistake of using one utensil to quickly stir both. It's that easy to forget. If we're ever unsure we'll throw food out. What a waste and frustration. Since everyone is not gluten-free we do our best to make gluten-free dinners but sometimes they want non-gluten-free and they deserve to have it. But...our guard can't come down.

I feel your pain. I got glutened only once and it was rough. I know it will happen again but I pray and work hard to avoid it. We're human and prone to mistakes for sure. I hope you heal quickly and if you have any capsule probiotics, those may help. They don't break down until in the intestine so high doses of probiotics could also assist, along with the other great suggestions already mentioned. I take 20 billion cell probiotics (10 strains) but there are some much stronger. I doubled up when glutened for a week. Anything to help grow those healthy bacteria back, especially if you also have heavy D. Good luck!

gatita Enthusiast
gatita
Posted

happens to all of us. I actually have nightmares about it sometimes. I'll dream that I'm halfway through a donut or a cookie or something when I realize and then I am just so SCARED when I wake up.

I have those dreams too!!! Weird...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.