Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Intolerance?


KikiB

Recommended Posts

KikiB Explorer

Good to

Good to know, thanks Dave!

Being a cheapskate, I generally go for the canned mackeral myself. But once in a while I try some tuna. I just have to fight the cat off to eat it tho. :)

LOL! Starkist gold can is soy free. Costco Kirkland tuna is soy free and cheaper.

I had no idea I was eating so many things with soy in them. It's shocking to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Yep, they put soy, dairy, and gluten in a whole lot of processed foods. It is very common to find one of those 3 or all of them in processed food-like products. Along of course with food preservatives, (anti-bacterials) food colorings, emulsifiers, stabilizers, fillers, and spitballs. Ok, kidding on the last one. :)

gatita Enthusiast

Well, thanks to this thread and after feeling pretty darn lousy following my tofu dinner the other night, I've decided to try a week soy-free. Since my gut reactions are immediate and quite, um, obvious, I figure I should know right away if that is an issue. I have lactose intolerance and have tested corn, eggs and grains in general but never thought about soy being a problem.

ButterflyChaser Enthusiast

Has anyone with soy intolerance experienced heart palpitations, and mood changes? I have been off soy for about three months, and after eating some chocolates my students gave me, thinking that a bit of soy lechitin would be a problem, I had racing heartbeat, tremors, and a kind of panic attack (my mother, who was talking to me, said that I sounded and seemed on drugs), followed by the onset of a headache that lasted for about half a day. I tried the experiment again a couple of times, with a smaller quantity, and the same happened heart palpitations, tremors, confusion, and then severe headache and sluggishness. But I never think of tachycardia as a symptom of intolerance, or am I wrong?

GottaSki Mentor

I get severe mood changes with all legumes - peanuts are the worst as far as anger, anxiety, sadness. Peas and beans are like sleeping pills and soy is major abdominal bloating along with melancholy.

Haven't noted tachycardia per se, put I do know that certain foods do cause palpitations and anxiety.

cahill Collaborator

Has anyone with soy intolerance experienced heart palpitations, and mood changes? I have been off soy for about three months, and after eating some chocolates my students gave me, thinking that a bit of soy lechitin would be a problem, I had racing heartbeat, tremors, and a kind of panic attack (my mother, who was talking to me, said that I sounded and seemed on drugs), followed by the onset of a headache that lasted for about half a day. I tried the experiment again a couple of times, with a smaller quantity, and the same happened heart palpitations, tremors, confusion, and then severe headache and sluggishness. But I never think of tachycardia as a symptom of intolerance, or am I wrong?

For me ,,ingesting soy causes palpitations and anxiety amoung other symptoms ( such as confusion, headache,dizziness ,brain fog,ringing in my ears,constipation, ect......)I feel like my heart is racing ( and my normal heart rate is low )
mushroom Proficient

Many of my food intolerances have an effect on my heart. Racing heart, arrhythmia, dizzziness, fainting... eventually led to atrial fibrillation because I didn't know what was causing it and it occurred so frequently. Interestingly enough, I can now manage a little soy lecithin as in chocolate :D:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

soy lecithin as in chocolate :D:D

there's my goal and the trial will be much more fun than edamame was :D

ButterflyChaser Enthusiast

Wow, thanks... I am afraid I will have to stay away from even that for a while, because my heart beats too weird. My grandmother also died of the complications of an atrial fibrillation (rhyme not intended!) which occurred when she was in her 80s, I think. I am not sure I want to try the experience, even if I am not that old! :P

I was "shipped" straight to a cardiologist with a heart scare and tremors this summer, which happened over a period in which I was living off tofu and soy-based bars (I know, 50 shades of wrong, never gonna do as badly as that ever again), so I wonder if that was a cause. My heartrate now seems back in place, provided that I steer clear of the above, and sugar.

KikiB Explorer

Well, thanks to this thread and after feeling pretty darn lousy following my tofu dinner the other night, I've decided to try a week soy-free. Since my gut reactions are immediate and quite, um, obvious, I figure I should know right away if that is an issue. I have lactose intolerance and have tested corn, eggs and grains in general but never thought about soy being a problem.

Good luck. Let me know how it goes.

KikiB Explorer

Wow, thanks... I am afraid I will have to stay away from even that for a while, because my heart beats too weird. My grandmother also died of the complications of an atrial fibrillation (rhyme not intended!) which occurred when she was in her 80s, I think. I am not sure I want to try the experience, even if I am not that old! :P

I was "shipped" straight to a cardiologist with a heart scare and tremors this summer, which happened over a period in which I was living off tofu and soy-based bars (I know, 50 shades of wrong, never gonna do as badly as that ever again), so I wonder if that was a cause. My heartrate now seems back in place, provided that I steer clear of the above, and sugar.

Scary! I'll be curious to know how you feel off of soy.

ButterflyChaser Enthusiast

My heart rate dropped dramatically. Was it the absence of soy? Was it the resumed cardio? I could barely walk at 4 mph without feeling pain when I was eating that much soy. I am also less "crazy" in general. Was it the absence of soy? Was it the breathing exercises? I am not sure. But when I feel that awful, to be honest, I'm not really that curious. I sort of just want to find the combination of diet/therapy/lifestyle that will make me feel able to live life again. As of now, all my tests came back negative (no endoscopy performed), so I don't have celiac disease. But there is no doubt that my gut is messed up, and since starting the gluten-free diet, I am able to leave the house without having to choose between either fasting or needing a ladies' room at hand. Sorry, TMI!

Eating two truffles made with soy lechitin means pounding palpitations (I can feel them in my stomach) and chest pain; then, if I have consumed more than that, comes GI distress: bloating, and running for the bathroom. Not even coffee does that to me.

  • 2 weeks later...
ButterflyChaser Enthusiast

Sorry to bump this up, but I am kind of worried at this point. I have accidentally soyed myself (WHO on earth thinks it's a great idea to put soy in herbal tea???) this morning. I have had palpitations all day, and people talking to me said I was irritable and confused, and at a certain point I felt that my heart was going very fast and then kind of "stopped" (I don't know how to describe it) with two very string thuds. It happened three or four times in the afternoon. And it was almost painful. And I was lying on a sofa, not going around. I could not do much more beside, because the whole room was spinning around me for an hour or so.

Do I need to call my doctor about the heart thing?

GottaSki Mentor

Sorry to bump this up, but I am kind of worried at this point. I have accidentally soyed myself (WHO on earth thinks it's a great idea to put soy in herbal tea???) this morning. I have had palpitations all day, and people talking to me said I was irritable and confused, and at a certain point I felt that my heart was going very fast and then kind of "stopped" (I don't know how to describe it) with two very string thuds. It happened three or four times in the afternoon. And it was almost painful. And I was lying on a sofa, not going around. I could not do much more beside, because the whole room was spinning around me for an hour or so.

Do I need to call my doctor about the heart thing?

YES! When in doubt == Emergency Room - better to error on the side of caution.

We are not doctors on this board...simply other folks with Celiac Disease, NCGI or other food intolerances -- if you are experiencing new serious symptoms, please consult a physician.

cahill Collaborator

I agree,, when in doubt check it out.

chances are is it "just " the soy but making sure is a good thing.

ButterflyChaser Enthusiast

Thank you for helping me in my freak out.

I called my doc - apparently it was a case of extrasystole somehow related to the exposure to foods/substances I am reacting to. I have been keeping a diary, and it looks like each accidental exposure makes me react worse and worse.

I am feeling slowly better.

GottaSki Mentor

I am feeling slowly better.

Glad to hear -- hope you are feeling even better now :)

ButterflyChaser Enthusiast

Yes, tachicardia mostly gone, or gone enough to zumba. Tummy still so so.

GottaSki Mentor

Yes, tachicardia mostly gone, or gone enough to zumba. Tummy still so so.

Good to hear your heart has settled - scary stuff.

Tummy may have ups and downs for a while.

Hang in there :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.