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Always Blisters?


Guest ~wAvE WeT sAnD~

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Guest ~wAvE WeT sAnD~

I've had celiac disease for the past year, and this past weekend, I started to spontaneously break out in welts. I wish that I had a picture, but I know that it's not insect bites or poison ivy, because they haven't started to blister. The itching is unbearable, and new welts keep popping up everywhere.

Is DH always characterized by blistering?


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Nantzie Collaborator

Could it be hives? I had hives all over my body, including my face once. I never found out what it was from though. Itches like crazy.

Nancy

VegasCeliacBuckeye Collaborator

MY DH is not always "blisters".

Sometimes, they look more like bug bites or even "clear acne"... and even "welts at times....

MY DH did not really begin to disappear for 2-3 years after going gluten-free (well, I thought I was gluten-free, but I was pretty ignorant of cross contamination issues.)

Anyway, now it crops up every once in awhile (I think it is impossible to avoid gluten 100% of the time -- especially if you eat out). -- Having said that , Dapsone (prescription) helps out alot.

I think it is pretty normal..

  • 3 weeks later...
minamoe Newbie

I have little red bumps all over my upper arms (from the elbow up). I've had them for years, but have just recently been dx as a Celiac, although after talking to my mom, I had signs as an infant. Can DH look l ike this? What medicines work? I want this cleared up so I can wear a sleeveless wedding gown.

  • 3 weeks later...
Idahogirl Apprentice

It sounds like DH to me. I also have had symptoms since I was a baby-my parents thought I was allergic to talc for a long time. I went to numerous doctors to no avail. It started getting worse and worse until, as a young adult, I started breaking out on my hands. Since I worked in a grocery store handling people's food, this was not acceptable. After threatening my dermatologist, he took quick action and did a biopsy (I'm still upset that it took him ten years to think of that!). He put me on Dapsone, which really helped. Cleared it right up. It wasn't until I started researching DH that I learned of celiac. My doc had never mentioned gluten intolerance or the relation to celiac at all! Just prescribed the little pill. When I asked him about it, he said that I probably didn't have celiac, since the symptoms are chronic diarrhea (which he never asked if I had). He also said the gluten-free diet was pretty much impossible, so that's why he never mentioned it. Luckily, I have since moved to a bigger city where I can choose from more than one dermatologist!

All of that to say.....Dapsone works great.

lovegrov Collaborator

My DH was always in the form of blisters.

richard

Rusla Enthusiast
My DH was always in the form of blisters.

richard

<{POST_SNAPBACK}>

I get these things below my lower lip, between the lip and the chin or all along the bottom of the lip. They look like clear acne or little blisters that don't break. They itch but don't hurt. They appear then disappear in a few days and sometimes it takes even longer. Would these be DH?

Thanks,

Rusla


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  • 2 weeks later...
bluefin Newbie

since how long has this been happening

if this is happening since a long time then you might be havng an allergy

even i have such a similar type of allergy

i advice you to go to a homeopath and let him check it out

he will definitely give a good prescription to you

darlindeb25 Collaborator

I have only had DH a couple of times and both times it started on one elbow and mirrored itself on the other elbow in a few days. I am told that DH always does this, mirror images itself. Check your soaps, shampoos, lotions, perfumes--anything you may put on your body as well as in it. I break out from any of those items if I am not extremely careful. I have told this before--I use shampoo to wash my car--it does an excellent job, even on the windows. One day I used the Tresseme that I cant use on my hair because it does have wheat in it. I never thought about splashing it on my legs. In 20 minutes, I broke out in hives. So, check everything--ok. Deb

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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