Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No More Cookies!

bartfull

By bartfull
in Coping with Celiac Disease

Recommended Posts

bartfull Rising Star
bartfull
Posted

I guess I've been playing with fire, letting my regulars bring cookies to the jam sessions here. I'm always good about washing my hands before I eat, but I got glutened the other day, and I know it was a stray cookie crumb that got me because I've not eaten anything different from my usual fare.

They get crumbs on the table. Then I touch the table. Then I play my guitar. The crumbs get on my guitar strings. Then I touch my face.

I'm so miserable right now. I was sick to my stomach the other day and thought it might be a bug. A few hours later my psoriasis started to flare so I knew it was gluten. Now my jaw problem is flaring up really badly. I am in SO much pain! I can't open my mouth to even brush the inside of my teeth, I'm mashing my sweet potatoes so I can suck them through my teeth, I'm talking funny as if I had my jaw wired, and the pain is almost unbearable.

Another sure sign of a glutening for me is temper. This morning a friend came in for a lesson and I had to move an open package of cookies out of the way. A couple fell out and I flung them to the floor. I looked at my friend and told her THAT'S why my jaw looks like a hampster's. Then I threw the whole package across the room. (It's a good thing she is a friend.)

I spent the whole day in bed yesterday and wish I could be in bed today. I need to get started putting my huge Christmas tree up here at the shop because it takes days, and I want it up for Black Friday. But I'm just not up to it right now.

I am going to tell everyone that from now on, no cookies are allowed unless they are gluten-free and soy-free. I hate to do it, but I WON'T go through this again! :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

Awww you poor thing! This is not a good time to have to deal with this. I get the grumps too and probably would have responded the same way to the cookies. I agree that it is time to stand up to the cookies and protect yourself. It simply isn't worth the risk. Do try to get some extra rest tonight. (((HUGS)))

And backatcha:

bartfull Rising Star
bartfull
Posted
  • Author

Oh Adalaide, THANK YOU! I love that video, and the fact that someone sent it to me when I'm feeling so down has made me cry. (((((HUGS)))))

Adalaide Mentor
Adalaide
Posted

GAH! That is the opposite of the intended effect! On a dark gluteny day in August when you shared it with me you said it always cheers you up. :P Okay, I'll stop being a dorkus. Feel better!

Takala Enthusiast
Takala
Posted

They are just going to have to suffer with the Lara bars, the Kind bars, the coconut macaroons, the enjoy life chocolate chips melted on crumbled rice cakes with coconut flakes, the bananas, apples, etc.

Cookies sound so horrible right now. Something other than gluten is kicking both me and my spouse's guts a bit from the salads we had for lunch. I made myself exercise, because otherwise I was pretty loose- jointed, but I barely got thru it. (have to catch it while you can, as we are entering the rainy season) drinking ginger in club soda water.... Ugh.....

L.J. Rookie
L.J.
Posted

Oh Bartful,

I am so sorry you are feeling horrible...UGH :ph34r: Hope you can get good nutrition in your stom and get some rest -- You are right!!

No more poisonous cookies to be brought in to your store! Hang in there... :)

ncdave Apprentice
ncdave
Posted

Dear Bartfull,

I"m sorry your feeling a little under the weather, hope you have a super speedy recovery. I have no idea why i stopped by to read about your cookies, but i"m sure glad i did. How else would i ever found out about the coconut macaroons and the enjoy life chocolate chips melted on coconut flakes to make my own mounds bars!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


katecamp Newbie
katecamp
Posted

I just responded to a suffering soul in another post with some tips on how to feel better. I've learned that with celiac disease you've got to watch out for things you never thought of. You may have a yeast infection. My gums hurt so bad and I have to really scrub my mouth 3X daily. And throw away the brushes frequently. I buy cheap children's tbrushs so I can get into nooks and crannies. Even gluten-free flour can cause problems and things like vinegar can upset your PH. Good luck.

Pegleg84 Collaborator
Pegleg84
Posted

I always worry about cookie crumbs. I help with tea at my meditation centre, and try to be very careful when handling the cookies and other gluteny things, wash hands afterwards, etc, but I always worry that something bad might happen (obviously not worried enough to stop helping out though).

If you got that sick just from cookie crumbs, then indeed, for the sake of your health and sanity, no cookies (or other crumbly gluteny items) allowed! Maybe you can switch to some gluten-free chips or another snack instead. If these are people you jam with often, and come to your store, they should want to keep you happy and healthy, so I see no reason not to put your foot down.

Feel better. The tree can wait.

Peg

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Haugeabs
      - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil. Gluten free but not certified gluten free. Soy free, GMO free.
    2. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
    3. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    4. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    5. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748
    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.