Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling A Little Sorry For Myself.

Mgyoung77

By Mgyoung77
in Coping with Celiac Disease

Recommended Posts

Mgyoung77 Apprentice
Mgyoung77
Posted

I have been gluten free right at a week now. I've had a pretty positive attitude towards having to give up gluten. I was thinking atleast I will feel better! Before I was told I had celiac, my hemoglobin was tested and it was very low. I immediately started iron supplements. I have been so tired and have had no enrgy. Completing the simple daily task I need to complete as a mom each day seem impossible. While I can somewhat tell a difference going gluten free, I still don't have nomenergy. Yesterday, my husband brought a bag of rolls and some brownies left over from work. he then went tomchurch and brout home a bag of turkey and a bag of stuffing home from our church thanksgiving dinner. I'm the only one in the housethatneats stuffing. I want to eat the turkey but I'm afraid of cross contamination. Then today, my daughter made Mac and cheese with tuna in it for lunch, one of my favorites. Now I have this strong urge to be "bad" and eat something I shouldn't have. I'm too tired to go the extra mile in preparing "safe foods" right now. Thank you for letting me vent.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

You could wait until after Thanksgiving to go 100% gluten-free. A few more days probably won't hurt much. But gluten might actually make you feel worse at this point too. Have you tried Tinkyada brand rice pasta? Tinkyada is fairly inexpensive and many people like it.

People are going to be eating gluten all around you for the rest of your life. The whole planet is overrun with gluten eaters. Mostly they are harmless, just a little annoying at times. It's the donut eaters you have to watch out for. Who can tell what kind of person would like to eat a piece of bread with a big hole in the middle of it? Strange people, you betcha.

When I started gluten-free I used to make large batches of rice and veggies and meat on the weekends. Froze most in small plastic bags. Every weekend I would make a different version. So I had a variety of easy to warm up meals in a few minutes. Later I used quinoa instead of rice or a mixture of both. You can also use buckwheat or amaranth, millet, nuts, dried fruit etc. Rice is actually not that good for you as it is just dead calories. Maybe try a version with chicken, coconut milk and cinnamon. Not bad stuff.

Super Easy Meal Ideas Anyone?

http://www.celiac.co...l-ideas-anyone/

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

http://www.celiac.co...e-free-recipes/

Lisa Mentor
Lisa
Posted

I'm sorry you're feeling down. It IS hard in the begining and most everyone goes through a "mourning phase". I hope your family can get a good perspective about what you have to deal with.

I generally do all the cooking at home and it's always gluten free. Unless I have company for spaghetti or serve bread for my guests. My family knows the safety rules when they bring in gluten.

Alway, keep in mind that you're doing this so you can be healthy again and enjoy your life to the fullest. And don't deprive youself too much. Sounds like you're in need of a hot fudge sunday or something special to perk up your day.

It does get better. Stick with us...we'll get you though it. And welcome! :)

Mgyoung77 Apprentice
Mgyoung77
Posted
  • Author

Thank you so much for your encouraging words. I do not expect my family to always give up gluten. Any meal I cook will be gluten free though. My husband did bring me a Frosty. It was a nice unhealthy but safe treat.

Skysmom03 Newbie
Skysmom03
Posted

It can be very difficult for family members to understand the issues that can come about because of the gluten ingestion. Has he been to a drs appt with you or have you talked about the side effects and health implications with him? It will be an adjustment for your family as well so this will be something you will need to work at together. Start with telling him how it makes you feel when he brings those things home that you can't have.

nvsmom Community Regular
nvsmom
Posted

(hugs) Those first weeks are HARD! And when you add in grumpiness and feeling poorly from withdrawl, it's just an overall bad time. :( Hang in there, it will get easier.

txgal748 Apprentice
txgal748
Posted

I was diagnosed in May and logically I was okay going gluten-free right away. The problem is when I realize I can no longer have something, like the other day I realized I could no longer have crab rangoons. Some things are harder than others but I do feel better. Just focus on the fact you will feel better soon. Have your vitamin levels checked also.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KrazyKick Newbie
KrazyKick
Posted

You're not alone. I was very sad at first too being such a foodie. I have learned to make wonderful food I can safely enjoy and you will too. I found one thing to be very helpful when I was starting out. Instead of making lists of things I couldn't have I made a book of things I could have then learned all about them how to make them even better. Collected recipes and kept them in that book. Wrote down spontaious ideas of food combos that would work and so on. You will adapt! Be positive!

love2travel Mentor
love2travel
Posted

I was diagnosed in May and logically I was okay going gluten-free right away. The problem is when I realize I can no longer have something, like the other day I realized I could no longer have crab rangoons. Some things are harder than others but I do feel better. Just focus on the fact you will feel better soon. Have your vitamin levels checked also.

You are about to be happy - you CAN have crab ragoons, if you make them yourself. This is a great recipe. The author has a great book out that I have called "Gluten Free Asian". Many gluten-free cookbooks are very annoying and useless because all they say is use gluten-free soy sauce and gluten-free that. This book, however, gives you recipes for the good stuff that you really do need a recipe for, such as pot stickers that are delicious.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.