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joseyheather22

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joseyheather22 Newbie
joseyheather22
Posted

Hello I'm josey and I had a gastroscopy yesterday because a few months ago I had a rash on my chest and elbow and ankle so my doctor did a blood test and came back positive for celiac disease so I had the gastroscopy yesterday and the doctor said my small bowel looks abnormal so he said I probably have celiac disease, he said I can start the diet now , but I have no idea where to start ...

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kareng Grand Master
kareng
Posted

Doctors are so helpful, aren't they?

Celiac is the only disease that a doctor says, " you have it & good luck with that". Can you imagine them saying that to a newly diagnosed diabetic or cancer patient?

Anyway, here is a good place to start:

guest134 Apprentice
guest134
Posted

If bedside manners meant the difference between having a job and not, 90 percent of doctors would be unemployed. I always find it funny how as a financial planner for a big bank I would lose my job in a second if I treated my customers the way doctors do their patients. If I rolled my eyes whenever a client was confused about some finance term and said "here is your investment portfolio, go find out what I invested for you by yourself." it doesn't make sense in any other industry, why do doctors get away with it?

Luckily celiac research is very easy and accessible, let me know if you have any specific questions.

Adalaide Mentor
Adalaide
Posted

Aren't doctors awesome? I got the same treatment... you have celiac, good luck! Obnoxious. The link Karen shared is great. Ask any questions you have after you check it out, we're all here to help. And keep in mind that no matter how you feel, you aren't crazy and it is normal.

joseyheather22 Newbie
joseyheather22
Posted
  • Author

Thanks :) I have to go see him in 4-6 weeks

GottaSki Mentor
GottaSki
Posted

Thanks :) I have to go see him in 4-6 weeks

Welcome!

In 4-6 weeks you will likely know far more than your doctor about Celiac Disease.

Start with the Newbie 101 thread, then ask as many questions as you need. Transitioning to a gluten-free life is not easy, but it does become much easier with time.

Let us know how we can help :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Hiya, welcome

Come on in, ask lots of questions. Good simple foods work well for many people, meat fish veg fruit.

Come and shout if you need to as well :)

Good luck

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GFinDC Veteran
GFinDC
Posted

Hi Josey,

Take two aspirin, read all the threads below, and call me in the morning. :D

Ok, you don't have to read all those, some are just for reference.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

Helpful threads:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

Dessert thread

http://www.celiac.co...399#entry802399

Easy yummy bread in minutes

http://www.celiac.co...ead-in-minutes/

How bad is cheating?

http://www.celiac.co...t-periodically/

Short temper thread

http://www.celiac.co...per-depression/

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

http://www.celiac.co...e-free-recipes/

Super Easy Meal Ideas Anyone?

http://www.celiac.co...l-ideas-anyone/

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      how much gluten do I need to eat before blood tests?

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

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      Question

      By Scott Adams · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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