Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat + Sleep = No Pain?! I Think I Found My Cure! (Possibly?)

SandraLAVixen

Recommended Posts

SandraLAVixen Apprentice
SandraLAVixen
Posted

Hi it's me again, yes I know, I've been up to challenging wheat again... I know, I'm stubborn... but I finally figured something out.

For the last month I ate danishes (made from wheat) every morning for a month and then went straight back to bed to nap, and an hour later there was no pain!!

I did that because I thought that my body was low on serotonin (a neurotransmitter) when my Carcinoid urine test (for some other condition) came back low (but not clinically significant low) on serotonin by-product.

I'm now up to eating two wheat danishes every morning, normally that would send me to the ER, but I go immediately back to sleep and there is no pain.

Has anyone else heard of being NCGI and then trying to sleep more and then being able to eat wheat again? Could I have just been low on serotonin all this time?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cahill Collaborator
cahill
Posted

Hi it's me again, yes I know, I've been up to challenging wheat again... I know, I'm stubborn... but I finally figured something out.

For the last month I ate danishes (made from wheat) every morning for a month and then went straight back to bed to nap, and an hour later there was no pain!!

I did that because I thought that my body was low on serotonin (a neurotransmitter) when my Carcinoid urine test (for some other condition) came back low (but not clinically significant low) on serotonin by-product.

I'm now up to eating two wheat danishes every morning, normally that would send me to the ER, but I go immediately back to sleep and there is no pain.

Has anyone else heard of being NCGI and then trying to sleep more and then being able to eat wheat again? Could I have just been low on serotonin all this time?

please tell me you are joking .
jerseyangel Proficient
jerseyangel
Posted

In so many ways, that does not make sense. There are plenty of ways to get more serotonin without eating wheat.

kareng Grand Master
kareng
Posted

As far as I can tell by your signature, there is no reason for you not to eat whatever you want. If wheat doesn't bother you, good for you.

Lady Eowyn Apprentice
Lady Eowyn
Posted

Have often thought that responses here are occasionally aggressive, patronizing and just plain mean especially to some poor soul who fell off the cart and made the mistake of eating some gluten.

However, can't make head nor tail of this post and would like to say I'm speechless (except obviously not)!

At the end of the day a danish each morning (or two ?) is not healthy eating for anyone and I'm sure it's not 'the answer' to anything either.

jerseyangel Proficient
jerseyangel
Posted

Sandra, since all of your testing--up to and including a pillcam--plus the most telling of all, the diet challenge are negative, it seems to me that it is safe to say that you don't appear to have a problem with gluten. Perhaps you might consider that your symptoms are due to other issues?

I reiterate this because the title of this thread--"I Think I Found a Cure" is misleading.

guest134 Apprentice
guest134
Posted

I would agree that gluten is not your problem, if you feel the need to sleep and have mood swings after consuming carbs I would say you are more on the line of diabetic. If you had a gluten intolerance NOTHING but eliminating the food will alleviate your symptoms, the reason why many people are here is because there was no relief to any symptoms which lead to a confirmed celiac or NCGI diagnosis.

I guess the reason why some responses can seem hostile is because many people here have been through A LOT, a lot more than you think and through all the B.S (not anything against you) they have a certain exterior defence and have a low tolerance for things that are not factual in the basis of celiac and NCGI. Please don't take offence to any of the responses, everyone here has good intentions at heart but can sometimes come across as mean because of their low tolerance for the non-factual info that lead them to be undiagnosed for so many years.

If you truly believe that you have a gluten intolerance and uphold that you feel you have found what works for you than do what you have to do. Unfortunately the information you have provided does not lead members to believe you have either issues (and trust me if they thought you did they wouldn't lie to you) and we believe that you may be better off looking at other issues and considering the placebo effect in a case such as yours.

If you need any specific info please continue to post or if you feel more comfortable send me a private message, I will help you out to the best of my ability and knowledge.

Edit- Oops, just noticed that you were not the one who commented on the hostility, I will leave the comment there anyway, it is important to remember for anyone who feels that some responses can be heated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

The suggestion to look at blood sugar makes sense to me. You may be getting sleepy after eating the danish due to the amount of sugar in it and the carbs. You can get a blood glucose test kit at a pharmacy and check your own levels. It isn't hard to do. You should test right before you eat, an hour after eating, and 2 hours after eating. Don't eat anything else in the time period when you are testing. That will give you an idea of how your body responds over time.

SandraLAVixen Apprentice
SandraLAVixen
Posted
  • Author

I know this sounds bizare, and it's very frustrating, maybe it's not a total "cure" but I found something at least.

I just know that if I force myself to sleep after eating wheat, there is considerably less pain. If I do not sleep much and eat wheat, then I have severe pain, thrashing, ER, etc, etc... (I don't feel particularly sleepy after eating danishes)

So that's all I know so far, and I'm just trying to figure out what could this be, I have to find an explaination to what I have.

Darkfire Ann Newbie
Darkfire Ann
Posted

Gluten makes me tired. Or it can make my heart race and make me swell and still tired. These are immediate reactions. Now if you are dealing with pain and sugar and wheat are making you better it is because you are getting high off of it. I believe it's more a Dopamine issue than a Serotonin issue but I am not a doctor. I do know you can become addicted to sugar and the very things that are killing you like Gluten so temporarily you will not only feel ok but better. However, if you are Celiac you will have intestinal damage symptomatic or not, but again I am not a doctor. Good luck to you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.