Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mri Today- Yikes!

livelifelarge24

Recommended Posts

livelifelarge24 Enthusiast
livelifelarge24
Posted

I have to have an MRI today and I'm pretty freaked out. This will be my third attempt. The first time, I had too much anxiety and couldn't go through with it. They pulled me out and let me leave before they even started the scan. I got scheduled for an open MRI which is supposed to be better but I was too scared to go to the next appointment. I really need to go to today's appointment but I am not feeling well! Not sure if its a coincidence or if the stress of it is giving me a stomach ache. I have terrible anxiety and panic attack issues so this is really freaking me out. They are going to put an IV with the dye in me and its supposed to be 45 minutes. I am also not able to take the sedatives.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Dear, its the stress getting to you. Calm down, take a deep breath. Tell yourself you are going to do it and nothing bad is going to happen (coping thoughts). You are strong! don't let this get to ya.

I'm willing to bet they'll let ya nap in there.

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

I so wish that I was a napper. My husband can fall asleep anytime, anywhere but I have such a hard time with it. This particular location doesn't allow headphones which would have helped me a lot. I know that people go through worse things every day but I'm terrified! I don't think it would bother me as much without the IV but I've had that stuff with a CT scan before and I hate the way it makes me feel.

shadowicewolf Proficient
shadowicewolf
Posted

Oh i understand that fully. I've had mri's with dye before but i'd rather do a HIDA scan over that again (1.5 hour scan).

tarnalberry Community Regular
tarnalberry
Posted

Something to cover your eyes, music to distract you, and focus on your breath. I have to have the seditives for MRI's (even the one that was a series over the course of three hours with contrast), though I can just manage open MRI's without it. Good luck!

Why can't you do the sedatives? There are a variety of things that can help you out in there (I think they gave me valium? with one MRI it was a pill, with the other it was in my IV).

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

It is sort of a personal reason but I am not able to take anything narcotic at all. Coming up on 7 years clean January 1st and that is not a road that I will ever be going back down.

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

Stressful times are very difficult for me though because I can't drink, pop a xanax or smoke a cigarette like many others do! I suppose I COULD take up smoking but watching both of my grandparents die from smoking cured me from ever even trying the nasty things.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

It is sort of a personal reason but I am not able to take anything narcotic at all. Coming up on 7 years clean January 1st and that is not a road that I will ever be going back down.

Congratulations, well done, you!! I am so sorry about your anxiety though. Some MRI machines actually play music for you while you are in them which does help. And the open MRI's are ever so much easier to cope with. I would suggest just playing over and over in your head your favorite piece of music or making up variations to it, anything to keep your brain engaged in some other activity. Because it's not the actual being there that's the problem - it's the thinking about being there. :)

tarnalberry Community Regular
tarnalberry
Posted

I totally understand that choice, and congrats!

The other things can help - meditation too, but a day is not enough time to learn how to meditate enough for an MRI. :)

shadowicewolf Proficient
shadowicewolf
Posted

I don't take the axiety meds (do not like them) so i use what i've learned through therapy. Coping thoughts really do help :)

Jestgar Rising Star
Jestgar
Posted

Or hypnosis. Again, not enough time, but these may be things you'd want to start working on now to get you started for future procedures.

mommida Enthusiast
mommida
Posted

It is probably too late but that dye going in the IV has a hot sensation. It felt like I peed my pants. I didn't, it just really felt like I did cause everything in the groin area just got hot. :o

Hope the procedure went well. :)

kristenloeh Community Regular
kristenloeh
Posted

I had an MRI done yesterday and it wasn't nearly as bad as I thought it would be. I just closed my eyes and ended up falling asleep during it lol. When they put the contrast in my IV it just made my arm cold and my mouth taste kind of metallic like the saline does. Hope it went well for you as well :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    2. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    3. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    4. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    5. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.