Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Have Withdrawal Symptoms Month Into Diet


Dempsey

Recommended Posts

Dempsey Newbie

Hi all, I'm new to the diet and the site. I am wondering how strict to be on this diet even though I dont believe I am celiac, I definitely thinking I have an intolerance. Do I really need to buy new baking pots and such? Am I no longer allowed to eat out? I have been having alot of anxiety, depression, and the feeling of having really low blood sugar since I started " I have hypoglycaemia", I get muscle twitches , am really fatigued and feel confused all the time but this all is nothing new just more intense since I started. I am a 34 year old male in good health but I have some inflamed guts and want to get it under control. How long does this withdrawal thing go for or does it sound like I am still getting gluten somewhere and am keeping myself in withdrawal? lol, so many quetions

thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gatita Enthusiast

First off, do check out the celiac 101 thread for newbies on this site: http://www.celiac.co...ewbie-info-101/

I probably have more questions for you than answers, lol.

Have you been tested yet for celiac? What makes you think you don't have it? I guess you know that once on the gluten-free diet, it's hard to get an accurate test.

If it turns out you don't have it but are intolerant, how careful you need to be depends. I haven't been diagnosed celiac, but I have to be as careful as anyone else on here about getting accidentally glutened because my symptoms are so severe (they include wheat allergy reactions as well as the gut stuff). I finally did give up eating out for a while anyway, because most restaurants just don't get the whole cross contamination thing.

I didn't buy new pots and pans but I did scrub the hell out of them. Luckily my housemate went gluten-free with me just to be nice :).

ps. I never had withdrawal, so hopefully someone else can help with that. I did have a LOT of accidental glutenings at first though.

nvsmom Community Regular

Withdrawl really affected my mood and concentration. I was very hungy, grumpy, tired, grumpy, headachey and grumpy... did I mention grumpy. I've given up coffee before and it felt like that... just completely off kilter. It's like something has gone wrong with your thinking and you know it's not right but you can't change it.

It took about 2 weeks for that to go away and another few weeks to stop craving carbs all the time.

I imagine that you would have to be pretty strict to get the full benefit of the diet. If you don't have celiac and are intolerant to gluten, I don't think the gluten will harm you as much but you certainly won't feel better. If you are a celiac, if you cheat a little, you will not get healed... It would almost be like cutting back from 2 packs a day to 1; it's helpful but still not good.

Best wishes to you.

cahill Collaborator

When I went gluten free it took me about 6 - 8 weeks to get past the withdraw.

For me , the withdraw was similar to my withdraw when I quit smoking execpt my gluten withdraw was harsher and longer .

1desperateladysaved Proficient

I couldn't tell what was gluten withdrawl, or cross contamination. Check for sources of gluten accidentally there and Hang in There.

Diana

Dempsey Newbie

Thanks guys!

Ya I dont believe I am celiac but I have had this really bad "bloating" for a couple years now and no probiotics nor enzymes have helped. I have also had chronic pain in my right side that hurts if breath if I take a deep breath. So my prolotherapist who is aslo a Naturapath, said thats because if I swell bad from even water and I wake up big, then I probably have inflammed intestines. SO Gluten is gone and milk and sugar will be next. I have been gluten free for 2-3 weeks and I feel like crap and am grumpy still. I see my doc in 3 weeks but we have been through this before and he never gets answers. There is a test for 400$ from the naturapath that would tell me whats going but thats alot of $$ and I have already spent $$$$. Yikes, my poor old gut......

kareng Grand Master

Thanks guys!

Ya I dont believe I am celiac but I have had this really bad "bloating" for a couple years now and no probiotics nor enzymes have helped. I have also had chronic pain in my right side that hurts if breath if I take a deep breath. So my prolotherapist who is aslo a Naturapath, said thats because if I swell bad from even water and I wake up big, then I probably have inflammed intestines. SO Gluten is gone and milk and sugar will be next. I have been gluten free for 2-3 weeks and I feel like crap and am grumpy still. I see my doc in 3 weeks but we have been through this before and he never gets answers. There is a test for 400$ from the naturapath that would tell me whats going but thats alot of $$ and I have already spent $$$$. Yikes, my poor old gut......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Keshavdas Apprentice

When I went gluten free I experienced nausea, panic attacks and suicidal depression. I lost track of how long this went on. Eventually - I went to a psychopharmacologist and got on Zoloft and Valium. The Zoloft really got rid of the depression but had some side-effects including constipation and daily headaches. The doctor decided I should get off the Zoloft and that we would try an alternative after a week. But a week after being off the Zoloft - I found I did not miss it and that my seratonin production was normal again and the depression was gone. I still have to ween off the Valium (which won't be fun) but I'm doing okay emotionally after a rough couple of months. I think the longer one has been poisoning one's self with gluten - the more severe the "withdrawal". Hang in there. I have recently met a friend here locally who went through the same thing. So it's not unusual -and there's no reason to think you won't get better.

shadowicewolf Proficient

Try going through withdrawl while on a college campus that used to have a pizzahut outlet on it. Oh that was terrible.

It took me about 2 months to get over the withdrawl.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    5. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.