Gluten Free For Two Weeks, Biopsy In Three Weeks

[Mirjam]

Hello,

I've been gluten free for two weeks now, after the doctor told me that I have celiac. Today they told me that they misread the results and that the bloodtest were not positive for celiac. He wants to do an endoscopy and take biopts. That will happen in three weeks. According to him I can stay on gluten free because the procedure is in three weeks, I read different stories online.

Any advice?

I have been gluten free for two weeks, if I stay gluten free I will be gluten free for 5 weeks before the biopsy. If I start eating gluten again I will eat gluten for 3 weeks, after a two week gluten free period.

Thanks,

Mirjam

[kareng]

First thing I would do is get a copy of those blood tests. Pretty odd that he "mis-read" them. Not sure if I would let him do the endo. But if you are going to let him do the endo, make sure he takes 6-8 biopsies of the small intestine (stomach & esophagus don't count). if it were me, I would eat some gluten everyday until then to make it more likely he will get a bad spot.

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[tom]

...

Any advice?

I have been gluten free for two weeks, if I stay gluten free I will be gluten free for 5 weeks before the biopsy. If I start eating gluten again I will eat gluten for 3 weeks, after a two week gluten free period.

Hi Mirjam, if you do restart on the gluten, remember it doesn't take a lot.

I've been seeing studies on it for a while & here's a new one mentioned today in the forum's Publications Section.

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"Even a small amount of the protein can stir up trouble. A University of Maryland study ( Open Original Shared Link ) showed that just 50 milligrams (mg) of gluten

[Mirjam]

Thank you both for your reply. I notice less bloating, close to normal stool, less pain in my stomach. I still have musle pains, extremely tired and pain just below my ribs. I'm sorry English is not my first language, so I hope you understand.

Do I understand it correct that you would advise to eat a small amount of gluten everyday until the day of the biopsy?

[tom]

If it didn't cause an intolerable or even highly significant rise in symptoms, I suppose that's what I'd do, but I usually shy away from giving specific recommendations. I've seen occasional but rare posts of ppl affected longer term, after the challenge, who might regret doing it, but don't recall specifics of their early challenge symptoms.

Celiac testing is unfortunately still a bit of a crapshoot, but hopefully the forum has enough info for ppl in your position to make an informed decision & not only working off a Dr's (I don't mean yours specifically) outdated or misinformed info.

[Mirjam]

Thank you very much! I decided to start eating gluten until the biopsy. If I really get sick I will stop eating gluten.

Thanks again!