Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need College Kitchen


patz16

Recommended Posts

patz16 Rookie

I'm trying to find out how I could get a college to consider me for university apartment housing instead of a regular dorm. I would need a kitchen because I really doubt that they will have a good gluten free meal plan. Is gluten intolerance ( believe I have celiac disease but doctor is a total idiot) covered with disabilities? I'm interested in a public university in Florida


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

If you do a quick google of "college, celiac, ADA" you will get a good start on this topic. :) It has been discussed often on here.

patz16 Rookie

Thanks so much for the heads up. Never even heard of the ADA before now. Found out a lot. I'm going to start to apply for housing with a few months, and I guess i will have to make a lot of calls.

shadowicewolf Proficient

Unfortienently, without an official dx of either an intolerence or celiac, they cannot do much for you. If you were officially dx'd, then by law (ADA) they would have to accomodate. This is done with a letter written by the doctor to give the school stating what you needed.

Skysmom03 Newbie

This is exactly why anyone who believes they or their children have this disease should get an endoscopy ( the only true way to determine whether or not you have full blown disease)! With a DX, you qualify for a section 504. Anything you need with regard to education and maintaining your health has to be served!

mushroom Proficient

This is exactly why anyone who believes they or their children have this disease should get an endoscopy ( the only true way to determine whether or not you have full blown disease)! With a DX, you qualify for a section 504. Anything you need with regard to education and maintaining your health has to be served!

This is why we always warn people to do their best to get a diagnosis, if they are going to be involved with the school system, the military, or any other situation where an official diagnosis is essential.

patz16 Rookie

Good thing I checked back. I went gluten free in April when my aunt suggested it (my cousin is gluten intolerant) as I was really sick and losing weight (lost 40 was 15 and female) During the summer, I made a trip to a different island to see a pediatric gastroenterologist. He did about maybe 12 CT scans and then a colonoscopy.

I did not receive any contact again until last week. He said that I had "bumps on the inside of my small intestine which suggest that I must be allergic to something I am eating” I asked him if this would suggest celiac disease. He said no but he suggests that I discontinue eating soy.

I continued eating soy. I am still getting better since I stopped having gluten in April. I can't eat anything that may have been cross contaminated and if I do I have constant pain for about 5-7 days in my stomach. *cringes just remembering*

The doctors here are total idiots and I really have given up even going.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
rebeccanicole88 Rookie

I am in an internship program now that accommodates for my Celiac the best that they can. I get out in May and would like to go to a university. I do not know how they would accommodate for me. If they would need a doctors note or something from the doctor. The doctor that did my colonoscopy and endoscopy said that she saw nothing but I was off of gluten when she did the test. I have been told I have Celiac by a doctor, a gluten intolerance by another doctor, and one of the doctors I had told me, "If it makes you sick, don't eat it." I'm going to be doing some research now.

dilettantesteph Collaborator

My daughter is at McGill university. They agreed to give her an individual apartment in a dorm setting with her own kitchen with a doctor's note. She decided to stay off campus anyway. She found an apartment which was a better deal than the dorms, but she regrets it now as she had a lonely first semester. She has made more friends now and should be O.K. for her second semester.

You don't necessarily need a tested diagnosis for celiac disease, at least at this university. You just need a doctor who is willing to say that you need your own kitchen due to gluten intolerance sensitive to cross contamination.

  • 3 weeks later...
keeponsingin Newbie

One of my best friends was diagnosed with Celiac during our freshman year of college. At my school, you can't live off campus unless you live at home with your parents, and you can't live in an apartment until your junior year. My friend made it work by having a refrigerator (mini one) in her room along with a microwave. And the dining hall was extremely accommodating! She talked to the chef(s) who would, at her request, get her gluten free food items including but not limited to breads for sandwiches, wraps and even meats that had not been cross-contaminated.

  • 3 months later...
seezee Explorer

FYI there was a recent dept. of justice decision around this issue. The summary is here:

 

Open Original Shared Link

 

The result is that celiac and other chronic illnesses are covered by ADA and your school needs to make accomodations.

 

The Justice Department today announced an agreement with Lesley University in Cambridge, Mass., to ensure that students with celiac disease and other food allergies can fully and equally enjoy the university’s meal plan and food services in compliance with the Americans with Disabilities Act (ADA).

           

Food allergies may constitute a disability under the ADA.   Individuals with food allergies may have an autoimmune response to certain foods, the symptoms of which may include difficulty swallowing and breathing, asthma and anaphylaxis.   For example, celiac disease, which is triggered by consumption of the protein gluten (found in foods such as wheat, barley and rye), can cause permanent damage to the surface of the small intestines and an inability to absorb certain nutrients, leading to vitamin deficiencies that deny vital nourishment to the brain, nervous system, bones, liver and other organs.   Celiac disease affects about 1 in 133 Americans.

 

“By implementing this agreement, Lesley University will ensure students with celiac disease and other food allergies can obtain safe and nutritional food options,” said Thomas E. Perez, Assistant Attorney General for the Civil Rights Division.   “The agreement ensures that Lesley’s meal program is attentive to the schedules and demands of college students with food allergies, an issue colleges and universities across the country need to consider.”

  • 4 weeks later...
eurasiangirl Newbie

I'm a rising senior at a private east coast liberal arts college and have lived off campus since my sophomore year. It was HARD to get res life to comply with my request to live off campus in an apartment of my choosing because they guarantee housing all 4 years, can technically accommodate food intolerances/allergies....however cross contamination was RAMPANT in the dining hall and I got pretty malnourished living on campus even just for a semester. Anyways, I knew living in my own apartment was the best way to go and after getting my GI doc's note as well as my nutritionist's note - they still didn't want to let me off campus until I got my dad to call and talk some sense into the head of res life. I also wrote a formal letter in addition to the myriad of notes and submitted it all in a folder. I finally got the green light and its been the BEST decision ever. Being able to have a full size kitchen and all the amenities (full size fridge, freezer, etc) is great for someone who needs control over their food/diet and while I commend my college for trying to accommodate me, I personally was more comfortable taking matters into my own hands. I think it's up to each student to figure out the best setup for them but if you're willing to put in the time and effort that comes with maintaining ones own place it's a great idea. (Not to mention its loads cheaper!!)

dilettantesteph Collaborator

(Not to mention its loads cheaper!!)

 

I wonder if that was why they gave you such a hard time about letting you.  My daughter found an apartment a lot cheaper than the dorms too.  

tarnalberry Community Regular

While I wasn't gluten free in college, I did have an electric skillet, a small fridge, and a microwave.  I could have cooked almost everything in this micro kitchen.  (I used the electric skillet outside my dorm room, not inside.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.