Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloody Diarrhea When Glutened


whoknewafter25years

Recommended Posts

whoknewafter25years Newbie

new here gluten-free 4 almost 1 yr and feeling much btr.have UC 4 25 yrs with bleeding.does anyone have blood in stool with celiac? or gluten sens? im neg for celiac spru but pos stool for gluten sens and had a miracle healing i believe from God when i stopped gluten and had food allergy testing done and stopped those foods as well. now if i accidently have gluten i have bloody diarrhea for about 3 weeks.is this common for anyone else? for 25 yrs i have had episodes of active UC and have been on steroids and chemo.now that i am following strict diet and gluten-free i only take asacol and having formed bms with no blood thank the Lord until i have an accidental ingestion then its bad...super bad for 3weeks.sound familiar to anyone?any suggestions?

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

With hemorrhoids, if your bowels get really irritated, like with diarrhea or constipation, bloody stools can happen. It can range from a bit of red on the tissue paper to full on disturbingly red toilet bowl water. Could it be a hemi? They're harmless, just a, well.... pain in the butt. I hope that's all it is for you.

Best wishes.

GFinDC Veteran

Hi,

Yes, I get blood in stool from gluten and dairy. It doesn't last three weeks for me but long enough. Dairy doesn't do it right away but if I eat it for a week, oops.

1desperateladysaved Proficient

Sometimes I think I have alot of blood in my stool. Then I remember that I recently ate beets!

Opa3 Apprentice

now if i accidently have gluten i have bloody diarrhea for about 3 weeks.is this common for anyone else?

I have celiac disease for 30 years, I don't have UC. I cheated in 2007 and again in 2012 (suspect CC) but bloody stool due to celiac disease? NO.

Hope this helps.

  • 4 years later...
Bethaliz22 Newbie

I have the same issue, and can’t find any info on if this happens to others. It is not hemroids and will happen even with passing gas and 5/6 times per day for weeks following ingestion of gluten or dairy. I’m also thinking it may have something to do with folic acid. I will also get nosebleeds after consuming even gluten and dairy free foods that have folic acid in them. Anyone else?

Ennis-TX Grand Master
1 hour ago, Bethaliz22 said:

I have the same issue, and can’t find any info on if this happens to others. It is not hemroids and will happen even with passing gas and 5/6 times per day for weeks following ingestion of gluten or dairy. I’m also thinking it may have something to do with folic acid. I will also get nosebleeds after consuming even gluten and dairy free foods that have folic acid in them. Anyone else?

You just responded to a post from 2013 for more relevant responses in the future make a new thread.

Regarding your issues I had bloody stool for years....thought it was something else perhaps related to celiac, but the issue for me turned out to be I had also developed Ulcerative Colitis and flare ups with it caused bleeding. For most flare ups with it are caused by gluten, dairy, soy, etc. For me and for some other triggers exist like glucose, fructose, starchy carbs, sugars in general. I went on a ketogenic diet to  deal with it and it works wonders. Might want to look into it. BTW other things to help treat it are marshmallow root capsules (nature way), and drinking aloe vera juice to help coat and sooth the intestines, collagen, and glucosomine are others. I heard slippery elm might work help but I just use the others for my regime with diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
2 hours ago, Bethaliz22 said:

I have the same issue, and can’t find any info on if this happens to others. It is not hemroids and will happen even with passing gas and 5/6 times per day for weeks following ingestion of gluten or dairy. I’m also thinking it may have something to do with folic acid. I will also get nosebleeds after consuming even gluten and dairy free foods that have folic acid in them. Anyone else?

Have you had a colonoscopy? If not it would be a good idea to contact the GI doctor that diagnosed you about the bleeding. You could have something more than celiac going on.  I pass blood for a day or two after being glutened but having this going on even when just passing gas and having it last for weeks really needs to be evaluated.  Until you can see your doctor make sure you are not taking asprin or any other blood thinning drug or supplement.

Bethaliz22 Newbie

Yes, I had the colonoscopy that diagnosing me with celiac (as well as dna test by allergy specialist with all 3 genetic markers) the bleeding wasn’t going on at the time of the colonoscopy but started not long after. My pcp sent me back to the gi, but he didn’t redo anything and just said it’s probably hemorrhoids and prescribed me cream. I tried to explain the connection of when it happens and how I can have regular stool, soft stool, gas and it start, or lots of times have hard stool or diahrea with absense of trigger foods and it never bleed. He didn’t do any exam and basically just told me I should go to the Mayo Clinic.

Victoria1234 Experienced
48 minutes ago, Bethaliz22 said:

had the colonoscopy that diagnosing me with celiac

Colonoscopies can't dx you with celiac. Only endoscopies.

cyclinglady Grand Master
3 hours ago, Victoria1234 said:

Colonoscopies can't dx you with celiac. Only endoscopies.

No, it is not common, but you can reach the small intestine from the colon.   ?

Open Original Shared Link

Bethaliz22 Newbie

Sorry if I’m not very technical, but they went in both directions and checked everything and diagnosed me celiac from what they found. I’ve also had igg testing and ige testing, and like I said, dna testing through the allergy specialist, and my own 23&me dna test that also matched up with everything else saying celiac and dairy intolerant, along with a ton of other allergies and intolerances, and the mth-fr gene mutation and Hashimoto’s hypothyroid. 

ravenwoodglass Mentor
13 hours ago, Bethaliz22 said:

Yes, I had the colonoscopy that diagnosing me with celiac (as well as dna test by allergy specialist with all 3 genetic markers) the bleeding wasn’t going on at the time of the colonoscopy but started not long after. My pcp sent me back to the gi, but he didn’t redo anything and just said it’s probably hemorrhoids and prescribed me cream. I tried to explain the connection of when it happens and how I can have regular stool, soft stool, gas and it start, or lots of times have hard stool or diahrea with absense of trigger foods and it never bleed. He didn’t do any exam and basically just told me I should go to the Mayo Clinic.

If you are passing more than a couple drops of blood you need to find another GI doctor for a second opinion. If your present doctor gets offended then you need to drop him like a hot rock.  If you can easily get to the Mayo clinic then go there. If not then find another locally.  Is it possible you are continually reglutening yourself? There is a lot to the gluten-free lifestyle that involves more than just checking to make sure the foods are gluten free. How it is prepared is also important and well as stuff like not kissing gluten eaters without them brushing their teeth first, using gluten containly lotions on your hands and then eating finger foods and much more. By the way an upper scope is called an endoscopy. You had both an endoscopy and a colonoscopy at diaagnosis. Do get your medical records also with copies of labs and endo/colonoscope results.

  • 1 month later...
Mom to 3 Newbie

My son had horrible bloody stools and stomach pain as a toddler. He became very anemic. We did an elimination diet and found that stopping dairy helped but he wasn't completely better until he stopped eating wheat. Once he healed, he could have dairy with no problems. I think dairy just exacerbated the problem when he had damage from the gluten. Since then he has been glutened a few times (family members who didn't believe in celiac :angry:, or parent volunteers at school who didn't know what gluten was) and he had bloody stools and pain each time. He just gets regular diarrhea and cramps from cross contamination like fries from a fryer shared with gluten. The GI doctor did a scope of some kind when he was a baby because of the severity of the bleeding but no blood test. I think it's too late to test now because he would have to eat gluten to test. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748

    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.