Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Lecithin

KikiB

By KikiB
in Food Intolerance & Leaky Gut

Recommended Posts

KikiB Explorer
KikiB
Posted

Well I already know that soy makes me sick. I have really been trying to talk myself into the fact that soy lecithin won't bother me.

Wrong. Maybe I can get away with one Sees bordeaux. Although now I'm scared. But that's it. I got a box for Christmas. I apparently can't do 3 one day, and 2 the next day without paying the price for over 24 hours. It felt just like being glutened. Nausea, severe fatigue and muscle weakness.

Will this ever go away? Will the soy intolerance go away? Soy is in flipping everything. I can't find a salad dressing that does not have soy in it. And now I'm supposed to give up See's bordeaux to this stupid disease?

Ugh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Soy overall, probably not; soy lecithin, maybe. I can do it now. But that's after four years or so.

KikiB Explorer
KikiB
Posted
  • Author

Soy overall, probably not; soy lecithin, maybe. I can do it now. But that's after four years or so.

Well that's better than nothing! I'll take it.

seashele2 Newbie
seashele2
Posted

Since my diagnosis 8 1/2 years ago and going gluten-free, I have had to take one food after another out of my diet: corn (which causes me gluten reactions/damage), dairy, soy, beef, pork, sulfites (onions, garlic, brussel sprouts, cabbage, and a hundred others). I can only do very few things with soy lecithin in them. I think it has to do with how the particular soy lecithin is made and if the soy proteins have truly been "processed out." I think my problems all come back to leaky gut so this year, my plan is to go on the extremely limited diet to try to heal it. Hopefully, someday I'll be able to eat like a semi-normal person again. Gluten-free wouldn't be so bad if I could eat all the other things that keep coming out of my safe foods.

Juliebove Rising Star
Juliebove
Posted

It could go away. It did for my daughter but... Now she has a thyroid problem so still has to avoid soy.

KikiB Explorer
KikiB
Posted
  • Author

It could go away. It did for my daughter but... Now she has a thyroid problem so still has to avoid soy.

Before the thyroid problem, her soy issue went away? Or just soy lecithin?

alex11602 Collaborator
alex11602
Posted

It took my daughter a year to get all soy back, it may have been sooner but I waited to try it with her since she is young.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ButterflyChaser Enthusiast
ButterflyChaser
Posted

Hi Kiki, soy lechitin gives me heart problems (extrasystoles). I also avoid it because of my thyroid disorders, and I am currently making my own pretty much anything. Have you tried looking up recipes to make your own salad dressings et cetera? I never use dressings, but I am pretty sure it can't be impossible to make?

Pegleg84 Collaborator
Pegleg84
Posted

Soy is now officially my worst enemy.

I also like to think that a little soy lectin won't hurt me. And probably a very little of it won't. Like, 2 chocolate chips or something. Maybe.

More than the tiniest bit send my head spinning in minutes. It's not worth the risk.

You can indeed get things without it, though it takes serious hunting, and shelling out more. Get organic dark chocolate, usually the darker the better. Check your local organics store to see what they have. I think some of the Green & Blacks chocolate is ok.

Enjoy Life and Camino dark chocolate chips are soy free.

Salad dressings - get something vinegar based. Again with the organic. Though I just found some vegan and soy-free "cream" dressings. Can't remember the name. Uses a lot of coconut instead. I got the ranch. It's runny, but not bad.

Ask at your local store and maybe they can help. Making your own is also a good idea.

Oh! and soy-sauce substitute: Coconut Aminos. It's made from coconut sap, is a bit sweeter than tamari, but it does the trick.

For me the effects of soy are worse than dairy and, for immediate reaction, almost worse than gluten. It suuucks!

Good luck.

KikiB Explorer
KikiB
Posted
  • Author

Hi Kiki, soy lechitin gives me heart problems (extrasystoles). I also avoid it because of my thyroid disorders, and I am currently making my own pretty much anything. Have you tried looking up recipes to make your own salad dressings et cetera? I never use dressings, but I am pretty sure it can't be impossible to make?

I found a recipe for easy mayo -- so I will try that this weekend. And I found a ranch dressing recipe I will try. :)

Soy is now officially my worst enemy.

I also like to think that a little soy lectin won't hurt me. And probably a very little of it won't. Like, 2 chocolate chips or something. Maybe.

More than the tiniest bit send my head spinning in minutes. It's not worth the risk.

You can indeed get things without it, though it takes serious hunting, and shelling out more. Get organic dark chocolate, usually the darker the better. Check your local organics store to see what they have. I think some of the Green & Blacks chocolate is ok.

Enjoy Life and Camino dark chocolate chips are soy free.

Salad dressings - get something vinegar based. Again with the organic. Though I just found some vegan and soy-free "cream" dressings. Can't remember the name. Uses a lot of coconut instead. I got the ranch. It's runny, but not bad.

Ask at your local store and maybe they can help. Making your own is also a good idea.

Oh! and soy-sauce substitute: Coconut Aminos. It's made from coconut sap, is a bit sweeter than tamari, but it does the trick.

For me the effects of soy are worse than dairy and, for immediate reaction, almost worse than gluten. It suuucks!

Good luck.

Thanks for the tips! I only like milk chocolate, but I can probably live without it. It's just disappointing. I really don't understand why soy is in nearly everything these days.

Pegleg84 Collaborator
Pegleg84
Posted

If you're ok with milk, then there is probably some soy-free milk chocolate out there too.

(If you're ok with milk, then I'm jealous. I miss cheese so much!)

Good luck!

Findin my way Rookie
Findin my way
Posted

Oh! and soy-sauce substitute: Coconut Aminos. It's made from coconut sap, is a bit sweeter than tamari, but it does the trick.

Pegleg84 thank you so much for this. I've finally accepted that I can't have soy anymore, but I love stirfrys. My daughter has decided she's vegetarian now, so stir frys were my go to meal. I'd do tofu for her and meat for her dad and I. I was wondering how this was going to work. I'm going to look for the coconut aminos today. :)

(If you're ok with milk, then I'm jealous. I miss cheese so much!)

Amen to that! I can deal with giving up milk, yogurt, and ice-cream, but cheese?!? That one is so difficult. And sorry to all you vegans out there, but that vegan cheese is NOT the same.

Pegleg84 Collaborator
Pegleg84
Posted

Look at a good natural foods store, or ask if they can get it. It's a bit pricy, but it's worth it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,024
    • Most Online (within 30 mins)
      7,748
    Maus14
    Newest Member
    Maus14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.