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Anyone Have Dh Flare Up From Tylenol Pm?!

brandiecane

By brandiecane
in Dermatitis Herpetiformis

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brandiecane Newbie
brandiecane
Posted

Hi everyone,

I am brand new to this forum. I joined because I am freaking out about a DH flare up and I do not know what the heck is causing it! I am very meticulous about avoiding gluten. I only use gluten-free lotion, shampoo, everything! I am 8 months pregnant and all of a sudden am having a terrible DH flare up on my legs (which is usually where it happens). I have been having back pain and trouble sleeping bc of the pregnancy and my doc suggested I take Tylenol pm every night to help me sleep. I have read that NSAIDs aggravate DH, but I thought tylenol was safe for DH. Does anyone else have this problem!? Is this normal?! I don't know what else it could be.

Please help!

-Itchypregosaurus!

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squirmingitch Veteran
squirmingitch
Posted

Hi itchypregosaurus. Welcome to the board.

Tylenol seems to be the safest for us of the NSAID's but I find that even it aggravates my dh if I'm not very, very judicious in my use of it. I never use Tylenol PM so I can't speak for that specifically but plain Tylenol affects me if I take them day after day.

Also, I've read in a lot of the medical literature that pregnancy can make the dh flare like rip. Furthermore, that you may not have had the dh flare with earlier pregnancies but then you get pregnant with another child & it pops up. The stuff is vexing to be sure!

I'm so sorry this is happening to you. What about asking your doc about strong Benadryl to sort of knock you out at night?

squirmingitch Veteran
squirmingitch
Posted

Just saw your post on the photo bank. As far as chlorine goes I couldn't say. We have city water right now & so I'm getting chlorinated but I have not been in a pool or hot tub. I also haven't been showering in anything but city water so have no comparison to non chlorinated water. Interesting thought though.

brandiecane Newbie
brandiecane
Posted
  • Author

Just saw your post on the photo bank. As far as chlorine goes I couldn't say. We have city water right now & so I'm getting chlorinated but I have not been in a pool or hot tub. I also haven't been showering in anything but city water so have no comparison to non chlorinated water. Interesting thought though.

Thanks for replying! I stopped taking the Tylenol PM. I'm definitely going to ask about something else to help me sleep. I stumbled on the chlorine info a while back. The research said that heavily chlorinated pools can cause DH flare ups- and is sometimes linked to causing the onset DH symptoms. I thought this was very interesting bc DH first presented itself when I was 25 after a long day at the pool. I went first thing in the morning to get some sun and I remember thinking the pool had just been treated bc the chlorine smell was very strong. Later that day I had my first DH outbreak. Of course I was misdiagnosed for two freakin' years but finally I have it mostly under control. That summer was when I started drinking beer too. Prior to that I only drank wine and girly drinks. I often wonder if the increase of gluten from the beer was also a culprit. I never had any other indications that gluten was a problem for me. I've been Gluten-Free now for over a year. I hate that I can't ever be completely cured. It's really frustrating. Anyway, I've tried the chlorine theory twice and both times I had a flare up :/ One more thing I have to avoid.

It is so great to be on this forum and read other people's stories and struggles of the same condition. I haven't met anyone with DH and I find that explaining it to people is useless bc no one can relate.

squirmingitch Veteran
squirmingitch
Posted

Interesting Brandi; my strongest gut reactions were always from beer also. As a teen experimenting with drinking I quickly decided beer was NOT the drink for me as I would have violent GI reactions from it --- screaming pain/cramps in the gut & D.

Do you think you can find that info. on chlorine again? It would be great if you could & then post a link here. I haven't come across that info. & would be very interested in reading it.

kareng Grand Master
kareng
Posted

Open Original Shared Link

"Does chlorine cause a reaction for those with celiac disease, especially those with dermatitis herpetiformis (DH)?

No such link between the two has been researched or reported."

brandiecane Newbie
brandiecane
Posted
  • Author

Open Original Shared Link

"Does chlorine cause a reaction for those with celiac disease, especially those with dermatitis herpetiformis (DH)?

No such link between the two has been researched or reported."

I found this same website FAQ when I was doing my research. I have found several other DH sufferer comments on forums about highly chlorinated pools triggering a DH outbreak. Personally, I have tested this theory twice and both times it was very apparent that chlorine without a doubt causes a flare up. Although, there isn't any peer reviewed reseach on the subject, the only evidence is personal testimonies.

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