Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think You're My People!


Madagascar

Recommended Posts

Madagascar Rookie

For 2 months now, I've been reading and commenting on this board, and i have to say how glad i am to have found you all. It's like i've found people who are "my" people!

My first food allergy was at 2 weeks, when my pediatrician had my mom giving me orange juice, and i vomited it across the room. That was the start of the food fun, i suppose. I've had terrible teeth and saw a few posts in the past week about others with that problem, so i looked online and found that celiac is the underlying cause of it! I've been allergic to citric acid since i was about 15 - but never met another person who was. And here there are a bunch of you that have it in your sig lines! Citric acid is evil stuff!

At about that same age, I became lactose intolerant, too. i've been taking digestive enzymes since i found them about 15-20 years ago and no doc could ever explain to me why i needed them to be able to eat - but here there are many people who use them. i've had all these food allergies/intolerances and other than my mom, never known anyone else who also had so many. When I order in a restaurant I have to ask "does this have cinnamon/oregano/basil/thyme/pork/citrus/blah blah in it?" Now I add gluten on to the list. I had the worst acne of almost anyone i knew - and a lot of people here also have skin issues.

I just read someone's post that said they were in their 50's and the first sign that they'd gotten glutened was their face the next morning. YES! I get that face too!

*sigh*

so i know this is a bizarre post but i just had to say thanks for being here. I'm learning so much by reading everyone's posts - so many of my "odd" symptoms seem to be connected to celiac disease. I wouldn't wish this on anyone, but at the same time, am thankful for me not being the only person with all of this stuff. I think people here understand - and after feeling like the weirdest person around, I'm glad for some company living in Food Intolerance Land.

btw, how do you put info into your sig lines?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
btw, how do you put info into your sig lines?

In the upper right corner, click on your username. In the pop-up, click on "My Profile." Click "Edit my Profile." On the left, click "Signature." Don't forget to click "Save Changes" at the bottom when done.

Adalaide Mentor

I had to come because I laughed when I saw this post. I find myself often mentioning conversations from here to my husband and instead of saying things like "so I was talking to the people on the forums" which takes forever to say I stick with "I was talking to my people" or "my people say" and he knows exactly who I mean. I've been calling everyone here my people probably since I just started coming. :D

mommida Enthusiast

Sometimes misery loves company. It was something I could show my kids and say, "Look how many other people have this!!?" You are not alone.

beachbirdie Contributor

I had to come because I laughed when I saw this post. I find myself often mentioning conversations from here to my husband and instead of saying things like "so I was talking to the people on the forums" which takes forever to say I stick with "I was talking to my people" or "my people say" and he knows exactly who I mean. I've been calling everyone here my people probably since I just started coming. :D

Your post made me laugh out loud! Very cute!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,439
    • Most Online (within 30 mins)
      7,748

    Lillian Steele
    Newest Member
    Lillian Steele
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.