Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I've Been Glutened


Eliza13

Recommended Posts

Eliza13 Contributor

I've been gluten-free for a couple of weeks now, but I'm pretty sure I've been glutened tonight. Seems like the longer I go without the junk/poison, the worse I feel when I have it.

I feel like throwing up and I can feel the acid burning. When I throw up now since going gluten-free, the acid is really strong...burns my nose and mouth really bad. Is it possible that I have something else happening (gallbladder, pancreas), or is throwing up part of having celiac.

Skar.

:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I get that burning vomiting when I've been glutened...no fun... especially when it comes out my nose!

sorry you are feeling badly

Eliza13 Contributor

I swear I'm gonna stick to fruits and veggies. Went to the store to buy kale and spinach. I won't get glutened this way, and I'll finally lose that 35 lbs. Not sure what caused it, but I did buy some pork tenderloin and am wondering if it was hidden in it somehow....there was a weird ingredient...will have to retrieve the label.

You know it really sucks when we even have to worry about meat.

Skar.

Guest nini

we do have to be so freakin careful!!!

happygirl Collaborator

Take care!

KaitiUSA Enthusiast

Yea, the longer I was gluten free the more sensitive I became. Now when I am glutened I get nausea along with some other symptoms but I do not get vomiting so I do not know exactly what you are going through but I know how it is to feel bad.

Feel better and just be careful with reading labels and so forth. You should get the lists available...the 79 page list of foods and products gluten free status, and the mainstreams brands that will not hide anything and clearly put wheat,rye,barley,oats on the label or be safe...they will be extra helpful. You need the safe/forbidden list too if you have not got that yet.

Eliza13 Contributor

Thanks guys for the kink words. This is not something to take lightly. I swear to never have gluten knowingly again, and I am going to be extra vigilant so that this doesn't re-occur. This is scary stuff....

My aunt just had surgery for barrett's ring....two of my aunt's have major hair loss...another one has fibromyalgia and bi-polar, my bro has schizophrenia, my mom and aunt have hypothyroidism....and the list goes on and on. They are all on my mother's side of the family. My mom says she was told 30 years ago that she has an "allergy" to wheat, but I am wondering if she even understood what she was told (she immigrated to Canada at that time, and did not and does not speak the best English). Then there is me with all of my health problems. I don't intend on being like my mom and aunt's at their age...I'm stopping this now. I've tried to tell them that they need to get tested, to no avail. At least I know that I can help myself.

B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

skar-

hope you feel better soon!

cornbread Explorer

Feel better skar! :( I got glutened SO many times when I was just starting out gluten-free. For me it was cross-contamination every single time - I'd pick something that was safe but because I was eating out every day I got sick about once a week. The solution I've found is to stock up on good healthful fresh food (veg, meat, fish, eggs, fruit) and cook at home. Nothing but basics get into the house, nothing that's been basted or marinated, just plain meat and fish. Then I spice things up (safely) using ingredients I know are safe. A good side-effect to this new necessity of life has been becoming a decent cook!

It's a shame your relatvies won't get tested. It's incredibly frustrating when you *know* this is what someone has (esp. a relative because gene-wise they most probably do have the same thing as you...) Why don't people at least want to try to feel better?

nettiebeads Apprentice
Thanks guys for the kink words.  This is not something to take lightly.  I swear to never have gluten knowingly again, and I am going to be extra vigilant so that this doesn't re-occur.  This is scary stuff....

My aunt just had surgery for barrett's ring....two of my aunt's have major hair loss...another one has fibromyalgia and bi-polar, my bro has schizophrenia, my mom and aunt have hypothyroidism....and the list goes on and on.  They are all on my mother's side of the family.  My mom says she was told 30 years ago that she has an "allergy" to wheat, but I am wondering if she even understood what she was told (she immigrated to Canada at that time, and did not and does not speak the best English).  Then there is me with all of my health problems.  I don't intend on being like my mom and aunt's at their age...I'm stopping this now.  I've tried to tell them that they need to get tested, to no avail.  At least I know that I can help myself.

B)

<{POST_SNAPBACK}>

what's barrett's ring?

I'm glad you are trying to mend your body. Maybe when they see the new improved you with your new improved health they might consider it. You can't force them, but try to gently, continuously persuade them. Here's to health! :)

Eliza13 Contributor

Long-term GERD can sometimes lead to Barrett's esophagus, a condition in which the color and composition of the cells lining your lower esophagus change because of repeated exposure to stomach acid.

Barrett's esophagus is uncommon. Only a small percentage of people with GERD develop Barrett's esophagus. But once Barrett's esophagus is diagnosed, there's a greater risk of developing esophageal cancer, which often spreads from the esophagus to lymph nodes and to other organs.

As far as healing goes, my stomach is as big as a house today and full of gas. Hope I feel better tomorrow.

SKAR

nogluten- Newbie

Skarlet,

I hope you feel better. Do you have any zantac, prevacid or anything like that? That heartburn/reflux pain is miserable.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,847
    • Most Online (within 30 mins)
      7,748

    L.Garcia24
    Newest Member
    L.Garcia24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.