Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Sudden Increase In Sensitivity?


CSW

Recommended Posts

CSW Newbie

My husband, a sensitive celiac who seems to do fine as long as he only eats at home (gluten free kitchen), got glutened twice in two weeks over the holidays (not careful enough when visiting family) and now it seems like he might be more sensitive than he was before that--he's somehow gotten glutened twice again eating foods at home that have been fine for him in the past. Has anyone had a similar experience or does anyone know if that is possible? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

The damage caused by the holiday glutenings may have caused damage making him sensitive to other proteins. Give it some time for healing. Try some probiotics. Keep a food journal to see if another protein sensitivity is involved.

CSW Newbie

Thanks for the suggestions...we are keeping a food diary but just started yesterday. What other proteins are likely culprits?

mommida Enthusiast

The top 8 "allergens" are the most likely suspects. eggs, soy, fish, shellfish, nuts, tree nuts, dairy(casein protein), and wheat (already excluded in the gluten free diet)

The most likely intolerance from gluten damage is casein. The tip of the villi is where the dairy is processed and that is where most of the damage is done from Celiac.

dilettantesteph Collaborator

I think of it like a newly formed scab. It is easy to bump it off and start the bleeding again. When I am damaged I am easily bothered until I am healed again. The damage could come from some very low level of contamination that doesn't bother me when I am healthy, or it can come from some other source, like a food item that is a little hard to digest.

It is nice to have some super safe foods to go back to when damaged. Then when I have healed I can go back to being more adventurous.

CSW Newbie

this is really interesting...so would you say that right after being glutened, you can have reactions to other foods with the same symptoms as being glutened? We've been so confused trying to figure out what he could possibly have eaten at home to cause the 3rd and 4th apparent glutening episodes...

dilettantesteph Collaborator

That would depend on the symptoms. Certainly you can get stomach pain and diarrhea from lots of things. I had this with beets, for example. It is also possible that some minor cc that didn't bother him before might bother him if he is already glutened. I think that I have experienced that too. I have a variety of symptoms and when I get all of them I am pretty sure that I am glutened. Do you have some super safe foods that he can eat until he feels better?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CSW Newbie

Right, that's what was confusing, because he did get all his usual glutening symptoms, and we just couldn't figure out why. We've been sticking to super, super safe foods for the last few days, and so far, so good. I guess it makes sense that his level of sensitivy to CC would fluctuate depending on the condition of his whole system --I was just panicking that it was a one-way street--that he might now ALWAYS be that sensitive, and then what on earth could he eat? (especially since he's a vegetarian...)

soyjoy318 Newbie

I am a newly diagnosed Celiac - diagnosed in early January of this year. I went almost two weeks without getting glutened. When it did happen I had lots f sneezing, scratchy throat, bloating, horrible gas, and uncontrollable diarrhea. It took me a few day for me to figure out what caused the reaction. I found out through a friend that it was Miracle Whip - the modified food starch is what got me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,970
    • Most Online (within 30 mins)
      7,748

    Eliartstar
    Newest Member
    Eliartstar
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cameo674
      The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely  looking like a celiac diagnosis is in my future.  She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations.  I have never had a doctor recommend that.  She also said there were additional labs that she requested still out that have not come back yet; so, they may have been missed drawing those since the functional health doctor has a whole slew of labs that I am suppose to be waiting until August 27th to do. I am still waiting to hear on whether or not she will allow me to do pill prep versus the typical...
    • Alibu
      Well, I've made if from the pre-diagnosis forum to here!  I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL).  My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense to go gluten free to see if I improve. I know the basics - I can find lists of things to avoid, I know about hidden dangers, etc. all of that.  Where I'm struggling is just STARTING.  I need to go shopping and stock up on some staples.  My goal is to not try to find gluten-free alternatives, but to focus on naturally gluten-free foods like...
    • Scott Adams
      It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation between your December and June labs may be due to multiple factors, including differences in the lab performing the test (Quest vs. Mayo Clinic), the specific assay used, and the amount of gluten you had been consuming before each test. Antibody levels can drop significantly when gluten is reduced or eliminated from the...
    • Scott Adams
      I don't believe that site is updated regularly, and it may be unreliable.  You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • KimMS
      Hello! I did a brief search on this and couldn't find recent posts, but feel free to direct me to something if I missed it! I have had a difficult time confirming which thyroid medications (specifically generic forms of Levothyroxine) are gluten-free and safe for celiacs. I am pretty confident the generic manufacturer Mylan is safe, and I have been taking this for almost two years. Recently (I think b/c of a recall), Mylan has not been available at my local pharmacies. The list I typically use for gluten-free drugs (http://glutenfreedrugs.com/newlist.htm) does not list any of the other manufacturers offered by pharmacies in my area (Accord and Macleod). When I do a search, sites tend to say these...
×
×
  • Create New...