Possible Sudden Increase In Sensitivity?

[CSW]

My husband, a sensitive celiac who seems to do fine as long as he only eats at home (gluten free kitchen), got glutened twice in two weeks over the holidays (not careful enough when visiting family) and now it seems like he might be more sensitive than he was before that--he's somehow gotten glutened twice again eating foods at home that have been fine for him in the past. Has anyone had a similar experience or does anyone know if that is possible? Thanks!

[mommida]

The damage caused by the holiday glutenings may have caused damage making him sensitive to other proteins. Give it some time for healing. Try some probiotics. Keep a food journal to see if another protein sensitivity is involved.

[CSW]

Thanks for the suggestions...we are keeping a food diary but just started yesterday. What other proteins are likely culprits?

[mommida]

The top 8 "allergens" are the most likely suspects. eggs, soy, fish, shellfish, nuts, tree nuts, dairy(casein protein), and wheat (already excluded in the gluten free diet)

The most likely intolerance from gluten damage is casein. The tip of the villi is where the dairy is processed and that is where most of the damage is done from Celiac.

[dilettantesteph]

I think of it like a newly formed scab. It is easy to bump it off and start the bleeding again. When I am damaged I am easily bothered until I am healed again. The damage could come from some very low level of contamination that doesn't bother me when I am healthy, or it can come from some other source, like a food item that is a little hard to digest.

It is nice to have some super safe foods to go back to when damaged. Then when I have healed I can go back to being more adventurous.

[CSW]

this is really interesting...so would you say that right after being glutened, you can have reactions to other foods with the same symptoms as being glutened? We've been so confused trying to figure out what he could possibly have eaten at home to cause the 3rd and 4th apparent glutening episodes...

[dilettantesteph]

That would depend on the symptoms. Certainly you can get stomach pain and diarrhea from lots of things. I had this with beets, for example. It is also possible that some minor cc that didn't bother him before might bother him if he is already glutened. I think that I have experienced that too. I have a variety of symptoms and when I get all of them I am pretty sure that I am glutened. Do you have some super safe foods that he can eat until he feels better?

[CSW]

Right, that's what was confusing, because he did get all his usual glutening symptoms, and we just couldn't figure out why. We've been sticking to super, super safe foods for the last few days, and so far, so good. I guess it makes sense that his level of sensitivy to CC would fluctuate depending on the condition of his whole system --I was just panicking that it was a one-way street--that he might now ALWAYS be that sensitive, and then what on earth could he eat? (especially since he's a vegetarian...)

[soyjoy318]

I am a newly diagnosed Celiac - diagnosed in early January of this year. I went almost two weeks without getting glutened. When it did happen I had lots f sneezing, scratchy throat, bloating, horrible gas, and uncontrollable diarrhea. It took me a few day for me to figure out what caused the reaction. I found out through a friend that it was Miracle Whip - the modified food starch is what got me.