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Celiac And Align Probiotic Does Anyone Take It? Side Effects?


Leapoffaith

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Leapoffaith Newbie

Does anyone use the product Align Probiotic?  Does it help?  Any side effects?

 


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Kate79 Apprentice

I've used it and have not noticed any side effects.  I don't take it regularly becuase it's so expensive, but if I'm having stomach issues due to gluten contamination (or anything else) I've found it can be helpful to take for a week or two afterward.

peeptoad Apprentice

I've taken Align 2 or 3 times in the past and, for me, it is like an expensive placebo. It did absolutely nothing at all to help, but I also experienced no side effects.

Leapoffaith Newbie

Thank you!  I appreciate the advice.

Smylinacha Apprentice

In took it but didn't like how expensive it was and not sure if it even helped. Went through one box and it cost $40. I am on Culturelle now for 2 weeks and it is a little cheaper and my bowel movements are regular ... No D or C anymore.

dilettantesteph Collaborator

The admin posted this a little while ago: https://www.celiac.com/articles/23214/1/Can-Bifidobacterium-infantis-Natren-Life-Start-Strain-Help-Active-Celiac-Disease/Page1.html

 

It talks about a study of celiacs who took the organism that is in Align, but in the probiotic Natren LifeStart 2.  There were only 22 in the study, and 10 took the placebo.  There is a link to the study at the bottom of the post.  They took the equivalent of 4 capsules of Align with each meal.  They were also eating 12 g. gluten a day.  

 

I have been having minor symptoms from what I think is trace gluten contamination.  I am very sensitive and pretty well have problems with most things that I don't grow myself, and I basically ran out of my own food this winter.  I decided to give it a try.

 

After one day of one capsule a day I was no better, after two days I seemed significantly better, and now after three days, I think that I have improved further.  This is so far the only thing that has ever helped besides ridding my diet of trace gluten.  I also take probiotics in the form of yogurt with live cultures, but those are made with different organisms.  I have also taken BioK, which also has different organisms, but the same as the yogurt culture I use.  Mind you, I have only tried it for 3 days, and it could easily be due to something else, but I haven't changed my diet at all.

 

Natren LifeStart seems to be a less expensive source of the same microorganism, but my local Vitamin Shoppe is so far out of stock.  The smallest bottle of that runs around $15 and seems worth a try.

 

If you decide to try it, I hope it works for you.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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