Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Had Diagnosed Dh That Resembles Acne On The Face/chest/back?


BelleVie

Recommended Posts

BelleVie Enthusiast

I'm wondering because the primary symptom that first started me on my explorations of health, nutrition, the body, and holistic wellness was a sudden outbreak of acne at age 19 that increasingly got worse and worse and worse as time went on.

 

I distinctly remember the whole thing beginning with my face becoming extremely oily, far more than what would be considered normal for anyone at any age. Then I got one VERY, very painful "pimple" at the edge of my eyebrow toward my nose. From that, came another...then another...and so on...and then, at age 19, I suddenly had full-blown acne, though I'd had perfectly clear skin for my entire life before. Over the years, it became more and more cystic, and my face took on a constant red flush. My face was also constantly itchy. 

 

I'm wondering if this could be at all related to DH, particularly because most of the time these breakouts were along my hairline, and if bothered, never came to a head. Only HURT or seeped a clear liquid. And the spots that were not along my hairline were on my cheeks, and were symmetrical on both sides of my face. (When I would have two spots on the left cheek, there would generally be two spots on my right cheek, exactly mirrored.) 

 

No acne creams worked, cutting dairy didn't work...nothing worked, for years, until I stopped eating gluten at age 24. My skin, quite remarkably, stopped breaking out immediately, and now is completely healed. 

 

Has anyone else had a similar experience, and could it be DH related? I seem to remember reading somewhere that auto-immune related acne tends to take on symmetrical patterning. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

There are many skin conditions related to celiac disease that resolve once gluten free. I can't answer your question as I never had an acne problem thankfully.

sisterlynr Explorer

Sorry, never had acne either.  My rash initially presented on my scalp and feet.  

  • 1 month later...
Atmn44 Newbie

I have actually, but I am extremely gluten sensitive now that I've been diagnosed and finally cut gluten out of my life. If I get cross-contamination at all now, we are talking huge patches of painful blisters and my face and entire scalp full of bleeding blisters. Up until the diagnosis I was getting what I thought was "strange acne" starting around my nose and mouth and sometimes my hairline. If I was stressed maybe my neck by my lymph glands. They hurt, they would ooze, they would NEVER heal. Within the first week of my gluten free diet they diminished with my scaly patches and the big blistery rashes I had. Now, they reappear every time I am exposed. After taking a closer look one day I realized they are actually more like isolated blisters than acne. I occasionally use a prescription antibiotic on my face. It has been helpful. (Accidental miracle :) )

I hope that helps a bit.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,114
    • Most Online (within 30 mins)
      7,748

    Cheryl Elliott
    Newest Member
    Cheryl Elliott
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.