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AmyandSabastian

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AmyandSabastian Explorer
AmyandSabastian
Posted

Well my son has been gluten-free for 3 months. My husband and I are getting tested through Enterlab as soon as we can afford the test. We decided to go gluten-free also so the house would be 100% safe for our son. We its been 6 days and all is going well. We both feel a good bit better. Well my sister works at Domino's pizza (hell right? lol) and brought us home a pizza. HOW SWEET. Well we both caved. We devoured it. lol Within 30 minutes we both ran to the bathroom. We BOTH had diareaha all day long. My stomach is still cramping and hurting and my husband has been complaining of gas this morning too. Should we take this as a sign? I am 25 and I have RA and also IBS since I was 4. I have been on Levsin controling my stomach issues since I was in kindergarden. We suspect I do have it but werent saying until we got tested, what do you think? And now my husband is going through the same pain and bathroom issues as I. I dont know what to think other than to stay away from Dominos and all gluten. Shame on us.

PS we do know you have to be on gluten for the tests, but it might take us a little while to save for the stool test because we are buying our first home right now. YAY. Thank you in advance for all your help.

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flagbabyds Collaborator
flagbabyds
Posted

I would defenitly take that as a sign, also if your whole house is gluten-free then why would you need to get the tests, I think that accident is totaly a test in itself! YOu probably do have it

P.S. how did you get the slide show for your avatar???? I would love that!

celiac3270 Collaborator
celiac3270
Posted

I love your slideshow avatar! Cute pics....I've seen this kind of thing using some program, but can you do that with standard programs on a comp.? :D

I don't think you have to be on gluten for enterolab tests.....as long as it hasn't been years w/o gluten...so it might make sense to have your pizza before the test, but you don't need a full-out gluten rampage....and Molly is right, this is already a good test. I think it is a sign.....you've been off gluten for a little while now, so your intestines are healing and your intestines are getting more sensitive to gluten.

-celiac3270

Guest jhmom
Guest jhmom
Posted

Hi Amy, love the pics too :D

I would say the results of the pizza test are a BIG positive!!!!! I think Dr. Fine says you can be gluten-free for up to 6 months for his testing. My daughter was gluten-free for one month before I had her tested.

AmyandSabastian Explorer
AmyandSabastian
Posted
  • Author

Thank you so much. The avatar was easy to make. You have to resize the images and then enter them into an animation program. I use Jasc Paint Shop Pro 7 which comes with Animation Shop. You can download it for a "free" trial from there website, just do a search. I downloaded the whole program off www.limewire.com :) NEVER PAY FOR SOFTWARE!! hehhehe I am a share ware type of girl.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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