Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Other Reason For Gluten Intolerance

jmcbride4291

Recommended Posts

jmcbride4291 Contributor
jmcbride4291
Posted

I am posting this because I have seen many where they have been gluten free for a long time, yet have seen little to no recovery. I have first hand experience with this.

I became severely gluten intolerant. I had all the symptoms. My Para thyroid went crazy, constipated, fatigue, skin, tooth loss, hair loss, blurred vision, sleeplessness, and the list goes on. At the same time my wife & children even had symptoms. All varying in severity. I went gluten-free. I could go to the bathroom again, could function a little, and so on. Now the blood tests and endoscopy came up negative. We all know that this is not a 100% anyway. I reglutenated several times, sometimes on a blind, and went down hill.

The rest of my family were also not well. I took the rest of my family off gluten and they too were a little better. It turned out we had a serious mold problem. Mold victims become gluten intolerant. The toxins produced by mold cause our immune system to go wild. Your good flora gets depleted by fungi colonization not to mention that certain hormones and cytokines cause digestion problems. I will discuss in more detail all aspects of mold toxicity (mycotoxicosis) in the future.

If exposed to the levels we were you now become toxically injured. This means now your cell defenses are weakened and the ability to fight toxins, whether chemical or made by nature, are severely compromised. This in turn causes a hypersensitivity to chemicals. Fragrances, inks, gases, or many other elements make the toxically injured sick. All the symptoms that Celiacs have, mirror exactly that of the toxically injured. Keep in mind that severe exposure to chemicals causes the same. It does not need to be mold to cause toxic injury.

Diabetes, seizures, memory loss, hair loss, and all the rest have been scientifically linked to toxins. Even cancer is.

Please keep this in mind, if you are not recovering. Less then 2% of doctors are even trained with this. I have researched this in depth, and have successfully net worked with researchers and doctors to confirm this. If you ever heard of Sick Building Syndrome, this is one of the most common results.

If, people wish, I will post more in depth information in the future.

Ps: Please note the email on my account is not working temporarily. Trying to get it changed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JodiC Apprentice
JodiC
Posted

Can mold cause positive blood and biopsies? If so is it treatable? I didn't get ill till we moved into our 100 year old house! Ended up with a nasty fungal respiratory infection (treated with anti fungal). This fungus should never be found in the lungs. They had me pegged with COPD and Intersestial lung disease. All reversed with treatment. Very interesting post. Please keep us informed with any new developments. I believe there is also more to this story.

ginnybean32 Newbie
ginnybean32
Posted

I am very interested in mold as a possibility for my getting sick. We moved to our new house in 2006 and I have had a problem with mold in my washer and shower. We live in the country now so I guess mold is just more of a problem here. It is very hard to stay on top of it in the spring and fall. Anyway I always had constipation as a child and some stomach issues but not until we moved did I have any intestinal issues. I also started getting sick more often. Since we moved out here I have had pneumonia, thrush, parasites, a mycoplasma infection, strep, H. Pylori, blurry vision (my eye doctor says my eyes and retina are fine) fatigue that is severe at times, now Im having loose stools constantly and now a positive Celiac biopsy. My GI told me to stay away from milk as well as wheat and gluten. My regular doctor is checking a blood test for auto immune disease because I got livedo reticularis and raynauds. He said Celiac people often have RA, Lupus, Scleroderma and other AI disease.

I wonder if an allergy to mold can cause a false postive blood or biopsy test for Celiac. I think I'll go to an allergist and just get tested for everything. Then if I am allergic to mold I dont know how I can get rid of it so it dosnt keep coming back in my house.

  • 4 years later...
missbl Newbie
missbl
Posted

I was diagnosed with Celiac in 2009.  I have been fighting with Mold issues on and off since 2007.  I would love more information, as my doctor is telling me I am highly allergic to Mold and I can't seem to get better. I need help! 

CeliacInSenegal Rookie
CeliacInSenegal
Posted

Do you have any links to sources or data on a gluten-mold connection? I'd be interested to learn more.

kareng Grand Master
kareng
Posted

These 2 posters haven't been on the forum since 2009.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    2. trents
      - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    3. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

      @HectorConvector, Please try adding Niacin to your supplements. Low Niacin has a connection with suicidal ideation. Been here, done that. Niacin made me feel better mentally and physically. Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together. I know this works...
    4. Scott Adams
      - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojda...
    5. Scott Adams
      - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s help...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,627
    • Most Online (within 30 mins)
      7,748
    sailingsun1
    Newest Member
    sailingsun1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Florence Lillian
      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      By Florence Lillian · Posted

      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    • trents
      Terrible Neurological Symptoms

      By trents · Posted

      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      By Scott Adams · Posted

      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.