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Possible Other Reason For Gluten Intolerance


jmcbride4291

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jmcbride4291 Contributor

I am posting this because I have seen many where they have been gluten free for a long time, yet have seen little to no recovery. I have first hand experience with this.

I became severely gluten intolerant. I had all the symptoms. My Para thyroid went crazy, constipated, fatigue, skin, tooth loss, hair loss, blurred vision, sleeplessness, and the list goes on. At the same time my wife & children even had symptoms. All varying in severity. I went gluten-free. I could go to the bathroom again, could function a little, and so on. Now the blood tests and endoscopy came up negative. We all know that this is not a 100% anyway. I reglutenated several times, sometimes on a blind, and went down hill.

The rest of my family were also not well. I took the rest of my family off gluten and they too were a little better. It turned out we had a serious mold problem. Mold victims become gluten intolerant. The toxins produced by mold cause our immune system to go wild. Your good flora gets depleted by fungi colonization not to mention that certain hormones and cytokines cause digestion problems. I will discuss in more detail all aspects of mold toxicity (mycotoxicosis) in the future.

If exposed to the levels we were you now become toxically injured. This means now your cell defenses are weakened and the ability to fight toxins, whether chemical or made by nature, are severely compromised. This in turn causes a hypersensitivity to chemicals. Fragrances, inks, gases, or many other elements make the toxically injured sick. All the symptoms that Celiacs have, mirror exactly that of the toxically injured. Keep in mind that severe exposure to chemicals causes the same. It does not need to be mold to cause toxic injury.

Diabetes, seizures, memory loss, hair loss, and all the rest have been scientifically linked to toxins. Even cancer is.

Please keep this in mind, if you are not recovering. Less then 2% of doctors are even trained with this. I have researched this in depth, and have successfully net worked with researchers and doctors to confirm this. If you ever heard of Sick Building Syndrome, this is one of the most common results.

If, people wish, I will post more in depth information in the future.

Ps: Please note the email on my account is not working temporarily. Trying to get it changed.


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JodiC Apprentice

Can mold cause positive blood and biopsies? If so is it treatable? I didn't get ill till we moved into our 100 year old house! Ended up with a nasty fungal respiratory infection (treated with anti fungal). This fungus should never be found in the lungs. They had me pegged with COPD and Intersestial lung disease. All reversed with treatment. Very interesting post. Please keep us informed with any new developments. I believe there is also more to this story.

ginnybean32 Newbie

I am very interested in mold as a possibility for my getting sick. We moved to our new house in 2006 and I have had a problem with mold in my washer and shower. We live in the country now so I guess mold is just more of a problem here. It is very hard to stay on top of it in the spring and fall. Anyway I always had constipation as a child and some stomach issues but not until we moved did I have any intestinal issues. I also started getting sick more often. Since we moved out here I have had pneumonia, thrush, parasites, a mycoplasma infection, strep, H. Pylori, blurry vision (my eye doctor says my eyes and retina are fine) fatigue that is severe at times, now Im having loose stools constantly and now a positive Celiac biopsy. My GI told me to stay away from milk as well as wheat and gluten. My regular doctor is checking a blood test for auto immune disease because I got livedo reticularis and raynauds. He said Celiac people often have RA, Lupus, Scleroderma and other AI disease.

I wonder if an allergy to mold can cause a false postive blood or biopsy test for Celiac. I think I'll go to an allergist and just get tested for everything. Then if I am allergic to mold I dont know how I can get rid of it so it dosnt keep coming back in my house.

  • 4 years later...
missbl Newbie

I was diagnosed with Celiac in 2009.  I have been fighting with Mold issues on and off since 2007.  I would love more information, as my doctor is telling me I am highly allergic to Mold and I can't seem to get better. I need help! 

CeliacInSenegal Rookie

Do you have any links to sources or data on a gluten-mold connection? I'd be interested to learn more.

kareng Grand Master

These 2 posters haven't been on the forum since 2009.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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