Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Other Reason For Gluten Intolerance


jmcbride4291

Recommended Posts

jmcbride4291 Contributor

I am posting this because I have seen many where they have been gluten free for a long time, yet have seen little to no recovery. I have first hand experience with this.

I became severely gluten intolerant. I had all the symptoms. My Para thyroid went crazy, constipated, fatigue, skin, tooth loss, hair loss, blurred vision, sleeplessness, and the list goes on. At the same time my wife & children even had symptoms. All varying in severity. I went gluten-free. I could go to the bathroom again, could function a little, and so on. Now the blood tests and endoscopy came up negative. We all know that this is not a 100% anyway. I reglutenated several times, sometimes on a blind, and went down hill.

The rest of my family were also not well. I took the rest of my family off gluten and they too were a little better. It turned out we had a serious mold problem. Mold victims become gluten intolerant. The toxins produced by mold cause our immune system to go wild. Your good flora gets depleted by fungi colonization not to mention that certain hormones and cytokines cause digestion problems. I will discuss in more detail all aspects of mold toxicity (mycotoxicosis) in the future.

If exposed to the levels we were you now become toxically injured. This means now your cell defenses are weakened and the ability to fight toxins, whether chemical or made by nature, are severely compromised. This in turn causes a hypersensitivity to chemicals. Fragrances, inks, gases, or many other elements make the toxically injured sick. All the symptoms that Celiacs have, mirror exactly that of the toxically injured. Keep in mind that severe exposure to chemicals causes the same. It does not need to be mold to cause toxic injury.

Diabetes, seizures, memory loss, hair loss, and all the rest have been scientifically linked to toxins. Even cancer is.

Please keep this in mind, if you are not recovering. Less then 2% of doctors are even trained with this. I have researched this in depth, and have successfully net worked with researchers and doctors to confirm this. If you ever heard of Sick Building Syndrome, this is one of the most common results.

If, people wish, I will post more in depth information in the future.

Ps: Please note the email on my account is not working temporarily. Trying to get it changed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JodiC Apprentice

Can mold cause positive blood and biopsies? If so is it treatable? I didn't get ill till we moved into our 100 year old house! Ended up with a nasty fungal respiratory infection (treated with anti fungal). This fungus should never be found in the lungs. They had me pegged with COPD and Intersestial lung disease. All reversed with treatment. Very interesting post. Please keep us informed with any new developments. I believe there is also more to this story.

ginnybean32 Newbie

I am very interested in mold as a possibility for my getting sick. We moved to our new house in 2006 and I have had a problem with mold in my washer and shower. We live in the country now so I guess mold is just more of a problem here. It is very hard to stay on top of it in the spring and fall. Anyway I always had constipation as a child and some stomach issues but not until we moved did I have any intestinal issues. I also started getting sick more often. Since we moved out here I have had pneumonia, thrush, parasites, a mycoplasma infection, strep, H. Pylori, blurry vision (my eye doctor says my eyes and retina are fine) fatigue that is severe at times, now Im having loose stools constantly and now a positive Celiac biopsy. My GI told me to stay away from milk as well as wheat and gluten. My regular doctor is checking a blood test for auto immune disease because I got livedo reticularis and raynauds. He said Celiac people often have RA, Lupus, Scleroderma and other AI disease.

I wonder if an allergy to mold can cause a false postive blood or biopsy test for Celiac. I think I'll go to an allergist and just get tested for everything. Then if I am allergic to mold I dont know how I can get rid of it so it dosnt keep coming back in my house.

  • 4 years later...
missbl Newbie

I was diagnosed with Celiac in 2009.  I have been fighting with Mold issues on and off since 2007.  I would love more information, as my doctor is telling me I am highly allergic to Mold and I can't seem to get better. I need help! 

CeliacInSenegal Rookie

Do you have any links to sources or data on a gluten-mold connection? I'd be interested to learn more.

kareng Grand Master

These 2 posters haven't been on the forum since 2009.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.