Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reducing Gluten Vs. Gluten-Free? (New Member)


anna34

Recommended Posts

anna34 Enthusiast

Hello, and thank you for the information provided to me so far.

My daughter's blood test results have prompted the GI to do the biopsy/scope next week. While we're waiting, my husband and I have been discussing how things will change if it comes back positive for celiac. I'd like to know if someone who has celiac must go completely gluten-free to get better, or can reducing the amount of gluten in one's diet help?

Also, if one is "gluten sensitive" rather than celiac, would reducing the amount of gluten in one's diet perhaps work?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Gluten has to be avoided completely if one is Celiac or gluten intolerant.

Even the dust of flour on a counter can make you ill if you are Celiac or gluten intolerant.

Cross contamination is a big issue that must be avoided.

Accidentally ingesting gluten can make us very very ill.

You will find that you or your child may become hypersensitive to even trace amounts of gluten once you have been gluten free for a time.

Although there are some people who have no symptoms when they ingest gluten, that seems to be the exception rather than the norm. Avoiding cross contamination is no small task. Yet it absolutely must be done if your child is Celiac or gluten intolerant.

No taking buns off burgers and eating the meat.

No eating toppings off pizza and leaving the crust.

No occasional cookie....

These things would be causing gluten ingestion which will cause damage to Celiacs, or symptoms for the gluten intolerant.

It is hard to think about avoiding it entirely, but it is absolutely necessary for the health of your child if he/she is Celiac or gluten intolerant.

The kitchen would need to be cleaned of gluten, Teflon pots and pans that are scratched need to be replaced.

Medications and vitamins need to be checked.

The more meticulous you are the better the health of the gluten intolerant person.

Having said that, there are degrees of sensitivity to gluten.

But the science and general consensus shows that even trace amounts need to be avoided.

Best of luck

Happyw5 Explorer

I am allergic to wheat and gluten sensative, I avoid gluten completely. It has only been a month for me, but it is getting easier every day. If she has celiac or gluten intolerance you have to avoid it completely. It will be hard at first but once she realizes how good she starts feeling it will be worth it. I have 5 small kids and in my home we are all eating gluten free except our bread and a few snacks(because it is so expensive). They have not even noticed-they actually like everything better then I do. I make everything homemade now and it is getting very easy...I proudly made chicken strips from scratch that were amazing and I make awesome choc chip cookies!!! Good Luck--and you can do this!!!

anna34 Enthusiast

Thank you. I assumed that once one goes gluten-free they would become more and more sensitive to it and it will need to be eliminated completely.

ravenwoodglass Mentor

Thank you. I assumed that once one goes gluten-free they would become more and more sensitive to it and it will need to be eliminated completely.

Yes that does happen but that is the bodies way of protecting us. Celiac or gluten intolerant the body is forming antibodies that can attack any organ including the brain. Even if the biopsy is negative with positive blood tests she need to be strictly gluten free. You should also have all first degree relatives tested whether they seem to have symptoms or not. Some folks have organs other than the GI system effected first, like joints, gallbladder, liver etc. It might be helpful to make your home gluten free or at least restrict gluten items. Whole unprocessed naturally gluten free foods will help her heal the quickest.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

    2. - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

    3. - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

    4. - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,332
    • Most Online (within 30 mins)
      7,748

    Roxy79
    Newest Member
    Roxy79
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
×
×
  • Create New...