Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reducing Gluten Vs. Gluten-Free? (New Member)


anna34

Recommended Posts

anna34 Enthusiast

Hello, and thank you for the information provided to me so far.

My daughter's blood test results have prompted the GI to do the biopsy/scope next week. While we're waiting, my husband and I have been discussing how things will change if it comes back positive for celiac. I'd like to know if someone who has celiac must go completely gluten-free to get better, or can reducing the amount of gluten in one's diet help?

Also, if one is "gluten sensitive" rather than celiac, would reducing the amount of gluten in one's diet perhaps work?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Gluten has to be avoided completely if one is Celiac or gluten intolerant.

Even the dust of flour on a counter can make you ill if you are Celiac or gluten intolerant.

Cross contamination is a big issue that must be avoided.

Accidentally ingesting gluten can make us very very ill.

You will find that you or your child may become hypersensitive to even trace amounts of gluten once you have been gluten free for a time.

Although there are some people who have no symptoms when they ingest gluten, that seems to be the exception rather than the norm. Avoiding cross contamination is no small task. Yet it absolutely must be done if your child is Celiac or gluten intolerant.

No taking buns off burgers and eating the meat.

No eating toppings off pizza and leaving the crust.

No occasional cookie....

These things would be causing gluten ingestion which will cause damage to Celiacs, or symptoms for the gluten intolerant.

It is hard to think about avoiding it entirely, but it is absolutely necessary for the health of your child if he/she is Celiac or gluten intolerant.

The kitchen would need to be cleaned of gluten, Teflon pots and pans that are scratched need to be replaced.

Medications and vitamins need to be checked.

The more meticulous you are the better the health of the gluten intolerant person.

Having said that, there are degrees of sensitivity to gluten.

But the science and general consensus shows that even trace amounts need to be avoided.

Best of luck

Happyw5 Explorer

I am allergic to wheat and gluten sensative, I avoid gluten completely. It has only been a month for me, but it is getting easier every day. If she has celiac or gluten intolerance you have to avoid it completely. It will be hard at first but once she realizes how good she starts feeling it will be worth it. I have 5 small kids and in my home we are all eating gluten free except our bread and a few snacks(because it is so expensive). They have not even noticed-they actually like everything better then I do. I make everything homemade now and it is getting very easy...I proudly made chicken strips from scratch that were amazing and I make awesome choc chip cookies!!! Good Luck--and you can do this!!!

anna34 Enthusiast

Thank you. I assumed that once one goes gluten-free they would become more and more sensitive to it and it will need to be eliminated completely.

ravenwoodglass Mentor

Thank you. I assumed that once one goes gluten-free they would become more and more sensitive to it and it will need to be eliminated completely.

Yes that does happen but that is the bodies way of protecting us. Celiac or gluten intolerant the body is forming antibodies that can attack any organ including the brain. Even if the biopsy is negative with positive blood tests she need to be strictly gluten free. You should also have all first degree relatives tested whether they seem to have symptoms or not. Some folks have organs other than the GI system effected first, like joints, gallbladder, liver etc. It might be helpful to make your home gluten free or at least restrict gluten items. Whole unprocessed naturally gluten free foods will help her heal the quickest.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748

    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.