Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sugar Intolerance?


Lori2

Recommended Posts

Lori2 Contributor

Is it possible to have an intolerance to sugar? In trying to figure out what other problems I had besides gluten, I did an IgG blood spot food-allergy test. One of the things that came back positive was cane sugar. This would explain the problem I had with Udi


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Is it possible to have an intolerance to sugar? In trying to figure out what other problems I had besides gluten, I did an IgG blood spot food-allergy test. One of the things that came back positive was cane sugar. This would explain the problem I had with Udis bread and Betty Crocker Cookie Mix. I dumped all my sugar and refilled with beet sugar, rather than the cane sugar. A week ago when I craved something sweet, I put cinnamon sugar on my rice cakes. I did this for four days in a row. My symptoms are delayed about three days and last three days, so, yes, I had seven not good days. So its not just cane sugarits all sugar.

Im trying to figure this out. I dont seem to have any problem with fruitsI regularly eat four servings a dayblueberries and banana in my smoothie in the morning and a fruit with each of the other meals. But I think I may have a problem with raisins and datesLara Bars dont work for me. Also honey and xylitol may be a problem.

Ive been reading some of the technical stuff (which I really dont understand) about sugar, sucrose, fructose, fructose, etc. Can anyone help me understand this?

I was also diagnosed by ELISA blood test with cane sugar allergy. (You can call it an intolerance, but it's an immune reaction on the blood test.) I can safely eat any sweetner, which is not derived from cane sugar. So I can eat honey, maple syrup, rice syrup, corn syrup, fruit juice sweeteners, stevia, beet sugar and any fruits which are not sweetened with cane sugar. I don't tolerate any of the 'tol' sweeteners (like sorbitol, xylitol, etc.), because I have leaky gut damage. Here are names of cane sugar derived products, which you should avoid:

Cane juice

Evaporated cane juice

Any packaged sugar which is not derived from beets

molasses

treacle

Sucralose (Splenda)

Glucuse, fructose and disaccharides can be derived from a variety of sources, including cane sugar. Most of the time those are not derived from cane sugar, but it's almost impossible to determine the source when reading ingredients.

Reba32 Rookie

What sort of reaction do you have? Have you been tested for diabetes or non-alcoholic fatty liver disease?

I have a low tolerance for sugars and carbohydrates. It's been pretty easy for me to stick to a fairly low carbohydrate diet, as well as gluten free. If I eat refined cane sugar, or other high sugar content sweeteners it makes me nauseous. I don't like nausesous. Low-caloric natural sweeteners like xylitol or erythritol or stevia don't have the same effect.

Lori2 Contributor

My reactions to sugar are basically the same as my reactions to gluten. GI-diarrhea, fatigue, sinus, sleep problems, neuropathy, brain fog. That's why I thought it must be CC, but when I looked at my food journals and journaling of symptoms I realized that it was the sugar causing the problems. I use stevia daily with no problem, but even my chewing gum with xylitol seems to be a problem.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.