Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Started A Gluten Free Diet And Im Having Some Issues


Molly14

Recommended Posts

Molly14 Newbie

I am into a gluten free diet a week as of today and all this past week I have been experiencing some diarrhea (sorry to be graphic) and was wondering if that was normal? Also i have a bad habit of eating Chinese food. I am craving it and my graduation diner is at a chinese restaurant and i dont know what i could have. Any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Newbee Contributor

For some people it can take awhile for diarrhea to subside even going gluten free. I've found I needed to eliminate a lot of other foods before I really started to have normal stools. Do you have celiac disease? Personally I would avoid the restaurant unless they could tell you they could prepare something gluten free without risk of cross contamination. But I'm a very sensitive celiac so I have to be very careful.

Raven815 Rookie

Be careful of soy sauce. I just had fried rice from a Thai restaurant. My husband went and ordered it and was very specific about them not using any soy sauce or anything w/ wheat. When he brought it home, the rice was brown and I was paranoid to eat it, so I called the restaurant and asked her why it was brown. She said it was from the chili sauce. I asked her what was in the chili sauce and she said she personally read the label herself. I was very pleased. She also said next time we order, I could send my wheat-free soy sauce and they would cook my food with that. I told her how much I appreciated their cooperation. My point is, don't ever be afraid to be paranoid and check everything out very extensively. I have DH, so I don't ever want to have that terrible rash flare up again. It's just not worth it to get glutened. As far as eating Chinese food, just ask as many questions as you have to until you are satisfied that you will not be glutened or cc'd.

Hope I helped, Laura :)

sorairobara Newbie

I would be extremely careful about that chinese food! If the cooks or owners don't speak good english I wouldn't trust them! (Not being racist there's just a huge language barrier there and sadly most Americans won't care or understand your problem even if they speak perfect english) There are so many ways that you could get cross contamination even it everything in your meal is "safe" you don't know how well things were cleaned, where food was stored, what sauces and seasonings that should be gluten free but sadly are not because it seems like companies love adding wheat as a filler in things! If you're not very sensitive you may be able to handle the cross contamination (unless you know the restaurant extremely well. Its safe to assume the there will always be a little) but if you're just starting off being gluten free I wouldn't risk it just yet! Getting healthy can be done but you've got a long road a head of you and you don't need any set backs this early in the game! See if you can bring your own food! Make something so delicious that everyone there is jealous of your food! :)

  • 3 weeks later...
SmnthMllrX Newbie

My first week without gluten was awful for me. I know how you feel about the cravings because for a month after I started eating gluten free for every meal I'd eat I just wanted a sub. I thought the cravings would never go away, but most of them do. I'm going on four years gluten-free and I'll admit I still crave some foods and embarrassingly I dream about eating gluten every now and then but it's easier to deal with. If you can I would recommend changing your graduation party. It's just awful to put yourself through the temptation especially when it's still all new to you. I'm not sure where you live but in my area we have a bunch of gluten-free Chinese resteraunts. My favorite is PF Changs and they also own a 'fast food' chain calle Pei Wei which is also very good. I'd suggest doing some research and finding a restaurant that you can eat at. They have all sorts of gluten-free places now-a-days. After all, it is YOUR graduation party.

Congratulations Grad! And remember if you have more questions or have a bad glutened day we're here and chances are we understand.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    3. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

    4. - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

    5. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.