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Anxiety?

seezee

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seezee Explorer
seezee
Posted

Does anyone have books or websites that they can recommend for a close friend of mine. Her son suffers from severe anxiety and is very fearful. He just finished first grade. She has been getting counseling and help at school. I suggested to her that it could be food related or physical. I know for example that my daughter's emotional behavior improved a lot after she was diagnosed with celiac and she changed her diet. She had lots more energy and is much better able to cope with things. My sister had another friend and her sons react pretty strongly to food coloring and it has a huge effect on their behavior. Any suggestions, resources or advice would be great. I know there are a number of families who do gluten free with their kids for behavior who may not have celiac. I did suggest she may want to have him tested for celiac since he is so thin and small as well. I am not sure she thinks this is a problem though...

Thanks,

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tom Contributor
tom
Posted

Your concern sure comes through. I don't have anything specific except that I suspect your friend will become more receptive over time. Food/behavioral issues are common enough that she'll hear more & if you've mentioned it here & there she'll know you're available to find out more.

Someone must know of a good kids' food/behavior site. (Almost wrote behavioUr) :P

Mom2J112903 Newbie
Mom2J112903
Posted

I would just simply urge her to talk to her ped for a refferal to someone whom can help his anxiety issues. If she thinks it is food related, a refferal for an allergist whom is well versed in ALL severities of allergies. One whom will test for IgE allergies which are delayed allergies and can cause both GI symptoms and behaviorial.

seezee Explorer
seezee
Posted
  • Author

Thanks for the advice. I spoke to her about it last week and she had never heard that diet could cause anxiety. It's hard because I am not a medical professional but this little boy gets so nervous and upset that he really isn't able to do normal kid stuff. He came to our house which is on a farm with a swing and a frog pond and lots of stuff kids love and just curled up and whined. His mom is at her wit's end. My daughter before we figured out about the celiac had a lot of intermittent emotional problems too. She has improved so much.

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    • trents
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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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