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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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I started having this issue I *think* during jr high school. It has pretty much been a constant thing though it would get better or worse at times since then. I am now 27. I went gluten-free about a year and a half ago for unrelated reasons and it pretty much went away with just a couple lingering spots (I am awful and a picker of scabs don't even realize I'm doing it...) Once in a while I would get the insane itching but it wouldn't last super long and would stop. Now I have this going on. Have been getting takeout more often because I am lazy lately (see: pregnant) and then Thanksgiving. Been pretty careful I thought but who knows. Maybe pregnancy can make you more sensitive too? Anyway... Could it be related to gluten/dh? It itches like freaking crazy and drives me nuts. When I had them before they would end up getting scratched off and bleeding. Awful... Here is a picture... Sorry it is kind of poor quality... http://lh5.ggpht.com/-gjY_I2JxtGE/ULSJf-05GKI/AAAAAAAAAHc/u53zP_UiAHs/20121127_011233.png Also I have never had a problem with acne so I don't think it would be that, and I don't think acne itches like that. It has gone partially down the back of my shoulder before too. I don't know...

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It sure appears possible. My question is whether you have been completely gluten-free or just light? If it's DH it would suggest you haven't been totally gluten-free and you mentioned Thanksgiving and carryout. Were those foods prepared gluten-free as well?

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Based on what you said happened when you went gluten-free & it's return now with take out food & Thanksgiving plus the photo; I'd say it's dh. You can't trust take out food & taking risks also with Thanksgiving. And YES! pregnancy can have an effect also.

You need to be 100% gluten-free no doubts about it kind of gluten-free. DH is sensitive to the tiniest amount of gluten.

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We hosted Thanksgiving so the turkey and gravy were prepared gluten free. There were some desserts made by others that were made gluten free but don't know how those were prepared as it was not by me. Typically we very rarely eat out and I make everything from scratch. We actually eat mostly grain free. I am sure I have gotten less careful lately with the take out with the pregnancy and not feeling awesome. My husband was saying after thanksgiving his chest was feeling tight so it makes me wonder. He has pretty severe asthma which went away since going gluten-free and he hasn't had to take any meds for it anymore either. He decided to get tested for celiac so started eating it again for that and couldn't keep it up. Kept having to visit the er for asthma attacks. So this makes me wonder too if there may have been some kind of unknown source at thanksgiving or something. Who knows... To be honest I wish I had known before to get everyone tested before going gluten-free just to know. Would be nice to know for family to also get tested and for our kids to know for the future... May look into the genetic tests in the future...

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Welcome Undrznith,

Some people report that iodine in their diet makes their DH act up more when exposed to gluten. The way they test for DH (dermatitis herpetiformis) is to take a biopsy sample of the skin right next to a lesion, not the lesion itself tho. DH is a skin expression of celiac disease. So if you are diagnosed with DH then you have celiac disease too. They test the biopsy sample for antibodies to gliaden. There is a section of the forum for DH issues with more information. You came to the right place! :)

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    • Ennis_TX, thank you for your response! I will take heed of all your nutritional pieces of advice, one by one. And yes, I am aware that a gluten marathon is on the horizon soon.   Before doing the test, however, I shall try to fortify my diet with the nutrients you mentioned, and report back in a week or two.   I think adding some iron supplement is wise too.    
    • Yeah I thought that rant might make me look like a queer after reading it a bit later.....I am straight btw I just have very long and fine hair...that yeah it blows everywhere and gets in my mouth sometimes, and always pushing it with my hands or having to tie it up.  I blew up because it sometimes feels like I am talking to a bunch jocks with buzz cuts when it comes to hair....like people that do not understand no matter what you do....it is going to end up in your mouth and you have to keep messing it and working with it when the stuff runs like 4-6" past your shoulders.
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    • B-vitamins...most gluten and processed foods are enriched...your basically eating a multivitamin every time you have a slice of bread etc. Look for a full spectrum B-vitamin supplement, others can be magnesium, iron, vitamin d, folate, etc. You mention plenty of greens and fruit so ruling out vitamin A,C,K, and a few others. Hmm did you drop off your carbs too much? If your carb dependent you need more complex carbs from like sweet potatoes, rice etc. And what about fat and protein? I am a keto dieter, my body burns fat instead of carbs for energy so I can say it is quite important to have plenty of fats and protein in your diet. Try snacking on nuts/seeds between meals or making up a protein shake with almond butter in it between meals (again going but what you said you eat vs what you might be missing)

      I use Liquid Health for my spectrum B vitamins and vitamin D. Might look into them, being in liquid form you can just add it to a beverage. Might see about magnesium also, huge issue with many with this disease.

      On other after thought, your probably already very aware of...but you mention your not "diagnosed yet" you will have to do a gluten challenge of eating gluten for a extended amount of time daily prior to getting tested. http://www.cureceliacdisease.org/screening/
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