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frecOregon

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frecOregon Newbie

Sorry to bother you twice, but my address is on my personal profile page. I had to give it to register but it shouldn't be on my profile. I can't get it off.


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psawyer Proficient

Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.

frecOregon Newbie
Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.

Thank you. I'm obviously a computer whiz. I've been wrestling with celiac.com for two months now...I missed having access!

  • 1 month later...
Snubu Newbie

I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.

Lisa Mentor
I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.

Try to google other names. I do not believe that you can see other's personal information. I just googled your name Snubu, I could see no personal information.

Like Peter said, your personal information is visible only to you. Not to worry.

psawyer Proficient
I am not sure this is correct. By accident, I discovered a link from my profile in Google (celiac and headaches) and when I clicked on it it took me right to my full name, address and location! This is shocking. I now deleted my personal name/address info.

You were able to see it only because the server recognized that you were looking at your own profile. It determines that by examining the content of two cookies, forums_member_id and forums_pass_hash, which are set by this board. If these cookies do not exist, or do not match the profile being displayed, then the personal information is not shown.

If you log out from here, and do the same thing again, you will not see personal information. Logging out deletes the two cookies I mentioned above.

Snubu Newbie

Because I deleted my personal info. immediately. It was there. Possible that it was a cookie issue and I was logged in, as Peter mentioned. At any rate, I was able to delete all my data. Thanks for input.


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GottaSki Mentor

Hello...I'm a newbie to this site as I was diagnosed celiac within the month. What caught my eye was someone's signature/tagline. While I was recently dx'd...my husband's side has both sjogren's and a grand or two with alzheimer's (sp?)

62 years? I'm 43 and recently diagnosed--good news for me after many years of unexplained illnesses. Do you have children? Are they Celiac?

My 26 (diagnosed Lupus at 13), 15 and 13 year old children, along with an 18 month old grand are undergoing testing...not so good thinking of my kids having to deal with it...although knowing at a younger age is certainly a huge advantage.

Snubu Newbie

[Hi GottaSki,

I am a newbie too! No, I do not have children (by choice). It is definitely an advantage to be diagnosed early. Looking back at my childhood, I now clearly see the symptoms of celiac: Many headaches, always thin, after age 20 migraines from the pill and occcasionally from drinking alcohol, very severe menstrual pain every month, same weight since age 20 (have never been on a diet!). During the last 10 years other symptoms developed and finally my alternative medicine/chiropractor diagnosed celiac. I have not found a medical doctor yet that understands celiac. However, knowing now what celiac is all about, I will have patience and hope that some of the damage (neurological, intestinal, etc.) will eventually disappear and hopefully I can stay away from doctors.

Yes, my Mom has Sjoegren's, but her blood test showed negative for celiac. Either the test was wrong, or she really does not have celiac. She is 86 and she said at her age she does not want to pursue a gluten-free diet and does not really care about the celiac part. I definitely suspect my father was celiac (died of Alzheimer's) and there are many relatives on his side that have Alzheimer's, Osteoporosis and Psoriasis.

Snubu Newbie

You are right, Peter, and I am sorry I panicked! Thanks so much for your prompt clarification.

GottaSki Mentor
[Hi GottaSki,

I am a newbie too! ...

Thanks for the info Snubu!

Been very sick this week...arthritis has gotten far worse since change to gluten-free. Hoping its my body adjusting while we adjust our lives and kitchen!

RoseRobin Rookie

I was appalled to find all my personal information displayed on my public profile. I thought when I signed up that this would only go to the board administrator. I cannot seem to edit it/ remove it. Please let me know how I can alter this.

Jestgar Rising Star

You are the only one that can see it. If you go to someone else's profile and look at what's displayed, that's all that the rest of us can see on yours.

RoseRobin Rookie
Your address and other personal information is visible only to you. Other members can not see it--not even moderators. Only your date of birth, if you choose to provide it, is visible.

Thank you--Right after I sent you the message, my son pointed out exactly that information to me (that only I could see the private info while logged in). I apologize for the misunderstanding.

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    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
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