Jump to content

  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leaderboard

  1. Sheila G.

    Sheila G.

    Advanced Members


    • Points

      2

    • Posts

      12


  2. Adeling

    Adeling

    Advanced Members


    • Points

      2

    • Posts

      8


  3. Peace lily

    Peace lily

    Advanced Members


    • Points

      2

    • Posts

      35


  4. Threecents

    Threecents

    Advanced Members


    • Points

      2

    • Posts

      17


Popular Content

Showing content with the highest reputation since 01/01/2026 in Article Comments

  1. Adeling
    What's missing, for me, from this article, is a timeline for implementation in countries. Western countries are often quite slow to implement, and some countries I've been to have no labelling whatsoever...
    2 points
  2. Threecents
    I did not realize there is an HLA type that is associated with Celiac. I google it and found that while 90% of people with Celiac carry that marker, so do about 25% of the general population.
    2 points
  3. Lotte18
    I feel the same way. Looks like the research is being done in Switzerland. Thank you Scott for keeping us updated on the research!
    1 point
  4. Sheila G.
    I am going to see my Disease Doctor in a couple of months and he will explain to me why they told me not to eat red meat. I wish he could have just told me over the phone.
    1 point
  5. Peace lily
    Well here’s the thing even small amounts affect people and unfortunately I’m one of those. Cross contamination is a big factor. You really don’t think of it.Im just grateful that there is more and more foods available for cealiac. And I thank all of us that have this forum to get on the right track it’s overwhelming . peace lily🤷🏼‍♀️
    1 point
  6. trents
    @Brenda Sanchez, you must have a true allergy to wheat or some other ingredient that was in that pizza since a celiac gluten reaction isn't the same as anaphylaxis.
    1 point
  7. Brenda Sanchez
    I tried gluten-free take and bake pizza. Went straight into anaphalaxis!! I'm not trying to bash any restaurants but 16 year old kids don't really care ( I'm sure the gluten-free crust was rolled on the same stainless steel table as the regular crust was rolled on) I believe Cross contamination almost killed me that day!! Is it just me but it feels like...
    1 point
  8. sc'Que?
    This is FANTASTIC--especially that they are recognising barley and (potentially) oats as sources of gluten/contamination! Now if only we can get labeling guidelines to clarify "spices" and "natural flavors" for those of us with other severe allergies.
    1 point
  9. marzian
    This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    1 point
  10. Flash1970
    He should have gotten millions. How much is your life worth?
    1 point
  11. Aretaeus Cappadocia
    A broad screening program like this also has the potential to provide insight into the reasons why ~10% of people with HLA DQ2/DQ8 develop Celiac while the majority do not.
    1 point
  12. Peace lily
    Well for me if they don’t have a designated separate kitchen im not doing it. I tried they say gluten-free but low and behold I got sick again.cross contamination. I live in Rhode Island and I’m lucky to find a couple of places that specialize in a gluten-free kitchen . peace lily😊
    1 point
  13. Sheila G.
    I got Celiac disease in 2023 when I had covid. Within a week, food was bothering my stomach. I started eating non gluten food but had a journey learning. I know do not go to restaurants or fast food, I was told I cant eat red meat. I have an appointment in May to get a question on why no red meat. I eat ground turkey or chicken, frozen vegetables instead...
    1 point
  14. Claudia Perkinson
    I had a wonderful experience in Istanbul last Spring. Before I left home, I purchased cards written in Turkish explaining that I had celiac and explaining what I could not eat. The restaurant owners were so accommodating and caring. I stayed well the entire time we were in Istanbul.
    1 point
  15. pweidema
    Very interesting! Thank you Scott!
    1 point
  16. Tanisha L
    I am a 47yr old African American woman and did not receive a celiac diagnosis until 2yrs ago. This late diagnosis proved to be challenging to me because it was a culture shock to me. I have a cultural background of Hispanic and West Indian and a lot of our foods are heavy flour based. I was told be my dietician that unfortunately African American families...
    1 point
  17. Kimmy88
    Excellent article!! I shared with my family, so they would understand!
    1 point
  18. Kimmy88
    Thanks this is helpful!
    1 point
  19. Jojer
    Over the last 3+ years I've had very good experiences with waitstaff being very knowledgeable about celiac in some chain and other restaurants. Some good news: I recently verified that Jack in the Box has separate fryers for breaded food and their French fries. I've had their S/W chicken salad (grilled), fries and TONS of their tacos with no ill effects...
    1 point
  • Popular Contributors

    Peace lily
    Theresa2407
    Scott Adams
    trents
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.