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Showing content with the highest reputation since 07/02/2025 in Article Comments
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My sister has celiacs, I have gluten sensitivity along with my daughter. I suffered from depression, anxiety, and panic attacks until 62 years old. All that stopped when I went gluten free. Yes I know how much gluten can affect gut health and in turn brain health and I don't have celiac.2 points
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The Impact of Anxiety and Depression on Celiac Disease Management
knitty kitty and one other reacted to KennaH for an article
Interesting article. I am diagnosed celiac with anxiety and migraines. Also diagnosed with IBS-mixed prior to celiac confirmation. Moderate to severe villi blunting. I have no problem with gluten-free diet but FODMAP is overwhelming. Only self research, especially on this site, has helped more than any gastroenterologist. I believe I do report severe symptoms...2 points -
Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
Zuma888 and one other reacted to Purpletie3 for an article
I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...2 points -
This is truly a breakthrough in the diagnostic realm! Hopefully, this technology will become widely available sooner than later and save a lot of people a lot of misery in the process of trying to get a diagnosis.2 points
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How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
knitty kitty and one other reacted to Ginger38 for an article
I have extreme sleepiness when I am eating gluten, especially regularly , like for the gluten challenge2 points -
Depression after being glutened is definitely a problem. I have struggled with alcohol abuse in the past and being glutened was the worst and fastest trigger. I never go to pubs now, not because I don't drink, but because every time I went I lost a week due to cross-contamination. My father died of non=Hodgkins Celiac related disease. My daughter is...2 points
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Cubans Using Creative Local Ingredients to Craft Gluten-Free Flours
Scott Adams reacted to Sarah Porter for an article
More like this. Self-sourced sustainability is a key component of supporting indigenous peoples in other countries.1 point -
Glad to read they made a test that won't require a gluten challenge. It does sound like it maybe quite sometime before it is readily available. This is a good first step. I was unable to finish my gluten challenge, and would have preferred not to have even attempted if this test had been available to me. I am glad it sounds it maybe available for others with...1 point
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Gluten-Free Tamales with Pork or Vegetables
Scott Adams reacted to Fatima Terrazas Arellanes for an article
Just wanted to share that I’ve reacted to several common brands of corn flour—like Maseca and Pan. The only one that seems safe for me is TortiMasa! I’d love to hear if anyone else has had similar experiences—how have different brands worked for you? Also, I’m excited that this recipe includes zucchini. My version usually includes a little bit of ev...1 point -
Umm...meh. Under the "Tips for a Safe...", #6 should be #1. If a cruiseline bombs out on the research, 2-6 become irrelevant. That notwithstanding, how is Princess any different from any other cruise line if you have to follow stated tips 1-5 if they manage to pass #6? You'd do the same everywhere else. I should say, I would. For the ...1 point
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Yes, but knowing you have "a gluten problem" does not distinguish between gluten sensitivity and celiac disease, an important distinction when it comes to long range health implications and how strict you need to be in avoiding gluten. And in reality, many people find they cannot stick to the gluten free diet until they have a formal diagnosis. Without that...1 point
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I did not need a test to tell me that I have a gluten problem; once I stopped eating gluten and all my medical problems went away, that was enough for me. It is great that they developed this test since doctors would not take your words for it, and I was afraid of doing a gluten challenge test since the desire to commit suicide was one of my symptoms.1 point
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Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
Zuma888 reacted to Scott Adams for an article
The white matter changes seen in celiac disease in the referenced study are likely multifactorial: Possibly linked to chronic inflammation, autoimmune activity, nutrient malabsorption, and brain hypoperfusion. Thiamine deficiency may contribute, especially in those with long-standing untreated celiac or poor dietary intake, but it's not the...1 point -
Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
Zuma888 reacted to knitty kitty for an article
Thiamine can help protect the brain from damage. White spots in the brain can be caused by Thiamine deficiency. Correcting nutrient deficiencies in Celiac Disease and boosting our absorption of vitamins and minerals by taking supplements can help repair and improve our health.1 point -
Celiac Disease Triggers Cognitive Deficit and White Matter Changes in the Brain (+Video)
Zuma888 reacted to John Philp for an article
This explains a lot. Dianosed at age 75 Now 96.1 point -
Be sure to find a doctor who can treat you. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues...1 point
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A Population-Wide Screening Study Finds Novel Genetic Variants in Celiac Disease
Scott Adams reacted to pweidema for an article
awesome! Thanks Scott.1 point -
Blistex Medicated Lip Balm and Other Gluten-Free Brands
Scott Adams reacted to Emily P. for an article
As of July 2025, Blistex 5 Star Protection is no longer gluten free. The last ingredient listed is WHEAT!!! This is yhe ingredientlist on Blistex' website for 5 Star Protection: "Inactive Ingredients: bis-diglyceryl polyacyladipate-2, bis-stearyl dimethicone, butyloctyl salicylate, C12-15 alkyl benzoate, calendula officinalis extract, caprylic/capric triglyceride...1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
knitty kitty reacted to Ginger38 for an article
Yikes! I did not know that1 point -
Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
Scott Adams reacted to trents for an article
@N00dnutt, I don't think it is correct to place celiac disease and Crohn's in the category of endocrine disorders. They are autoimmune disorders. Endocrine disorders affect organs that are glandular in nature and secrete hormones such as the pancreas and the thyroid. It is certainly true, however, that many endocrine disorders also have an autoimmune base...1 point -
Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
Scott Adams reacted to N00dnutt for an article
@Lotte18 G'day. Ironically, we're fairly lucky in Australia. Given the high prevelance of gluten-free and, other Endocrine disorders (Crohn's for instance), labeling laws and awareness is high, so it makes it somewhat easier to identify accessible foods. We actually have a pub that is 100% gluten-free, including the beer on-tap. The annual gluten-free...1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Ginger38 reacted to knitty kitty for an article
Gluten particles can fit in the opioid receptors in our bodies. This can be part of the explanation of why some people say they don't have any digestive issues. Their intestines are on opioids. These particles can also travel to the brain through the bloodstream, sedating you.1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
knitty kitty reacted to Zuma888 for an article
Interesting1 point -
Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
Scott Adams reacted to trents for an article
Marish makes a good point. Even if there is an effective "pill" therapy developed, how expensive will it be and will insurances cover it?1 point -
Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
Scott Adams reacted to Marish for an article
I have mixed feelings about this. A total “cure” would be optimal, but anything less might dilute the current market influence for gluten-free foods that Celiac and gluten-intolerance sufferers have now, with products and restaurants offering gluten free foods, and food testing required for certified gluten free labeling. I also fear that as with any med...1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
knitty kitty reacted to Zuma888 for an article
I'm glad to hear that 😊1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Zuma888 reacted to knitty kitty for an article
I'm fine as long as I stay away from gluten. My Celiac went undiagnosed for too long and I accumulated health problems. If I can help others on their journey, everything has been worthwhile.1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
knitty kitty reacted to Zuma888 for an article
I am so sorry to hear that. I hope you get complete relief soon. Thank you so much for your help. You have helped me a lot.1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Zuma888 reacted to knitty kitty for an article
I take the essential vitamins and minerals all the time to ensure that I'm absorbing sufficient amounts because the gluten free diet can be lacking in some nutrients. I take the magnesium, tryptophan and passion flower when I can't sleep. I crushed three vertebrae (Osteopenia), so sometimes it's difficult to get comfortable. I avoid gluten...1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Zuma888 reacted to knitty kitty for an article
Histamine is released by mast cells as a part of the autoimmune response. Histamine also happens to be a neurotransmitter that causes alertness, hence the insomnia. You know that cup of coffee in the morning so you can wake up? Releases histamine. Diamine Oxidase (DAO) enzymes help break down histamine, as do Vitamin B12 Cobalamine and Vitamin C....1 point -
Is Cracker Barrel Gluten-Free?
Scott Adams reacted to trents for an article
@judycs, will you be following up with the company on this? But before you do, find out what kind of "flour" was used in the apples. Do you know for sure it was wheat flour? The term flour doesn't necessarily imply a wheat product.1 point -
Gluten-Free in the Apocalypse: How to Build a Celiac-Safe Emergency Food Supply (+Video)
Scott Adams reacted to imdoodah331 for an article
I am so pleased to see this article. I was diagnosed "probable" Celiac, but definitely gluten intolerant just as the last pandemic got started. I had no idea how difficult daily life could be until then. I had to completely unlearn and re-learn safe ways to eat at a time when pretty much everything was scarce, limited, or just disappeared from store shelves...1 point -
Are Lay's Stax Gluten-Free?
Scott Adams reacted to Lockgirl for an article
I recently discovered The Good Crisp Company. They make what is essentially a Pringles chip but gluten free. Really good. Lots of flavors. They also make other snacks that are gluten free. Tasty and safe!1 point -
Me too! I can’t make it past a few days. The fatigue and brain fog as well as just weakness and gastrointestinal issues1 point
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How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Zuma888 reacted to Beverley Ann Johnson for an article
I would in up in ER if I ate gluten for a whole week! I drained myself just eating it twice. The amount of bread, 1 slice the first day, ended with headache and feeling off. The second day 2 slices of wheat bread and it attacked me big time. I was having gas, bloating and then vomiting, I emptied my stomach out completely and my muscles were attacked...1 point -
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Zuma888 reacted to knitty kitty for an article
Celiac Disease is genetic. Certain HLA genes are associated with the potential of developing Celiac Disease. If one doesn't have any of the known Celiac genes, then Celiac Disease can be ruled out. The most common Celiac genes are HLA DQ 2 and 8. There are others but they occur less frequently, DQ 7, 4, and 9. Celiac Disease genes can be latent...1 point -
Thank you this is very helpful! 2 weeks is not near as long, but if it’s higher gluten intake - I feel like it’s sort of going to be the same as small amounts over a longer period of time. I just can’t stand the thought of being sick all the time. Gluten can really cause havoc all throughout my body and even land me in the ER if I have enough to trigger palpi...1 point
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How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Zuma888 reacted to knitty kitty for an article
Yes, the antibodies cause damage to the intestines, and the brain, and every other organ and tissues in the body. Anti-transglutaminase antibodies (anti tTg IgA on blood tests) are antibodies that attack transglutaminase, a building component in the cell membranes of every cell in the body. The gluten may pass, but the antibodies are what can...1 point -
And the antibodies are what cause the damage to the intestines correct? I don’t think I could back on gluten to do the challenge and have the biopsy. I can’t imagine eating that much gluten every day for weeks. So if gluten doesn’t build up and is excreted out, I guess I don’t understand why sometimes gluten causes huge reactions and makes me real...1 point
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Thank you for this great information! I appreciate it. Does gluten build up on a day to day basis? Like if a person consumes 1-2 grams of gluten today and then another 1-2 tomorrow, does that become more like 4 gm of gluten in your body? And so on?1 point
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So it only takes 3 grams to start an immune response- but no idea what 3 grams would be eating?1 point
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How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
Zuma888 reacted to knitty kitty for an article
According to this recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured...1 point -
Psychiatric and Neurological Manifestations of Celiac Disease in Adults
AButtiglieri reacted to Flash1970 for an article
A lot of problems can be traced to grains. Once I went totally grain free, brain fog disappeared, confusion resolved etc. Not all related to gluten. No rice, corn, rice syrup , corn syrup. Basically a paleo lifestyle. Pretty much all neurological symptoms resolved. Not instantly, of course, but within a month to month and a half. I really thought...1 point -
Psychiatric and Neurological Manifestations of Celiac Disease in Adults
AButtiglieri reacted to Russ H for an article
Not at all. Two thirds of people diagnosed in adulthood experience neurological manifestations. This is important from a medical diagnostic perspective and adds weight to the importance of adhering to a gluten-free diet.1 point
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also my hands are always cold, freezing cold in the winter and even cold during hot summer days. its like i have a shield. i feel warm but its not penetrating inside, my teeth chatter as well and my left index finger goes dead white when im super hungry. all dr tests come back fine. im so hopeless.
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thank you, ive asked my dr to test for vitamin deficiency and shes only said vitamin d (very low 26) and b12, she says all other vitamins are not included in her blood tests only the major ones, C, D, E, B12 etc. Ive been following the aip diet now and im going to stay on it very strict to see how it goes. im eating tons of food, romaine salads, mango, peaches, pears, cucumber, celery, zuccnini, sweet potator, plantains, ground turkey and beef and chicken. i eat about 4 plate filling meals a day with two to three good size snacks a day including about 3 or 4 bananas. im still not absorbing nutrients, if i eat any sort of food with fat, I.e ground beef or fatty pork the taste of fat lingers in my mouth for 2-3 hours sometimes longer, if i bask in sun for vitamin d i feel great but then lethargic and feel strange for a day or two later, like im still absorbing it all in. even regular sweet foods like fruit the sweetness stays in mouth for hours. ive had blood work done for gall bladder, thryroid, pancreas, liver, kindey dr says they are all fine. i dont know what other tests i can do? ive attached two pictures of the rash that broke out on my legs, feet and small one near wrist bone bright red was before treatment, second scabby one is during treatment and healing. https://freeimage.host/i/FrI3KZb https://freeimage.host/i/FrI3Fwu
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Just ate some for lunch! A really superb alternative to gluten-free bread and burger buns that all have the taste and consistency of compacted sawdust. I bought two packs and now I'm down to one remaining muffin so need to get some more; the only thing is it's their own brand - they don't do mail or on line ordering and the nearest TJ's is in Charlottesville (a real nightmare to drive around) an hour away from me over the mountain. 😒
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By somethinglikeolivia · Posted
When I underwent a scope three years ago, the GI told me I was negative for celiac because there was no intestinal damage (in spite of multiple strong positive labs). I went back to look at my biopsy report out of curiosity, and found this note: “Localized mild nodular mucosa was found in the duodenal bulb. Duodenum otherwise normal.” The pathology from this scope was negative. Does anyone have any insight into mild modular mucosa and what that could indicate or be a precursor to? I’ve read it can be a sign of celiac or other gut issues like h. Pylori, etc. Thanks in advance!
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