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Showing content with the highest reputation since 10/07/2025 in Posts
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Draft gluten-free ciders… can they be trusted ?
knitty kitty and one other reacted to Rejoicephd for a topic
That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth. She said the combination of the alcohol and sugar would be very likely to worsen my candida problem. She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry. So in summary, I...2 points -
Taking Probiotics but Still Getting Sick After Gluten – Advice?
Scott Adams and one other reacted to trents for a topic
The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for...2 points -
Taking Probiotics but Still Getting Sick After Gluten – Advice?
Scott Adams and one other reacted to trents for a topic
As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable...2 points -
How Come Gluten Didnt Bother Me In Italy
Scott Adams reacted to Gigi2025 for a topic
Thanks much Scott. Well said, and heeded. I don't have Celiac, which is fortunate.1 point -
Draft gluten-free ciders… can they be trusted ?
Scott Adams reacted to Rejoicephd for a topic
@Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos. I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, ...1 point -
Inconclusive results
Wends reacted to deanna1ynne for a topic
She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to...1 point -
Potential celiac need advice
Scott Adams reacted to Ben98 for a topic
Yes gene HLADQ2 was positive1 point -
Inconclusive results
Wends reacted to deanna1ynne for a topic
Thank you both very much. I’m pretty familiar with the various tests, and my older two girls with official dxs have even participated in research on other tests as well. I just felt overwhelmed and shocked that these recent results (which I found pretty dang conclusive after having scott clean labs just six months ago) would still be considered inconclusive. ...1 point -
Inconclusive results
Wends reacted to knitty kitty for a topic
Don't skimp on the gluten daily while undergoing the gluten challenge!1 point -
Allergy medication: cetirizine by the HealthA2Z is it gluten free?
Scott Adams reacted to ElisaAllergiesgluten for a topic
Hello, good afternoon! I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.” I l...1 point -
Tea Bags and Gluten
Scott Adams reacted to Inkie for a topic
Thank you for the information ill will definitely bring it into practice .1 point -
Inconclusive results
Wends reacted to Scott Adams for a topic
This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "pot...1 point -
Taking Probiotics but Still Getting Sick After Gluten – Advice?
Scott Adams reacted to Xravith for a topic
Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to ...1 point -
Medication
Scott Adams reacted to Julie 911 for a topic
I finally got rhe answer and Tylenol is ok. Thanks everyone1 point -
If you're still eating gluten, I'd ask your doctor for a proper blood panel, specifically tissue transglutaminase IgA, total IgA, and maybe deamidated gliadin peptide tests. Home tests aren't always reliable. Since you mentioned fatigue and weight loss, it's worth checking for nutrient deficiencies too (iron, B12, vitamin D). Even if it's not Celiac...1 point
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Taking Probiotics but Still Getting Sick After Gluten – Advice?
Xravith reacted to knitty kitty for a topic
Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis. Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food. With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins...1 point -
Taking Probiotics but Still Getting Sick After Gluten – Advice?
Xravith reacted to Scott Adams for a topic
Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, neurological symptoms like migraines, and palpitations, coupled with being underweight—are significant red flags that extend bey...1 point -
Potential celiac need advice
Wheatwacked reacted to itsdunerie for a topic
Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again...1 point -
Potential celiac need advice
Scott Adams reacted to itsdunerie for a topic
15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y1 point -
Buckwheat
Scott Adams reacted to trents for a topic
Buckwheat is not related to wheat at all. Buckwheat is related to rhubarb. There should be no dermatitis herpetiformis trigger there.1 point -
Unusual bright yellow but odourless discharge
knitty kitty reacted to Wheatwacked for a topic
"Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis" Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests. Iodine is important...1 point -
Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌 Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months...1 point
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Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for...1 point
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How long does it take to gain weight?
Beverage reacted to knitty kitty for a topic
Yes, I agree, most doctors miss the subtleties of Celiac disease. The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne. Her book The Paleo Approach is most helpful. The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track. It eliminates...1 point -
Hi! Thank you so much! This was truly helpful. Most doctors I went to were absolutely uninformed and unprepared to treat a celiac patient. I will check for all the things you shared and focus on healing first! Really really thank you! Have a blessed day.1 point
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How long does it take to gain weight?
Beverage reacted to knitty kitty for a topic
Welcome to the forum, @petitojou! I lost a lot of weight, too. I found that I was low in the B vitamins and other essential nutrients. Vitamin B 1, Thiamine, is not usually tested, because blood tests are so inaccurate. Doctors are not familiar with vitamin deficiency symptoms any more. Low thiamine can cause fatigue, muscle weakness, nausea...1 point -
Coeliac and Thyroid?
Beverage reacted to Peace lily for a topic
Yes I have thyroid and have had it for over 30 years and just got diagnosed for cealiac last march.I have been complaining all the years about stomach pain weight lost hair falling out they kept blaming on the thyroid and I am over 70 years old. but what I’ve been reading thyroid,diabetes,should take a closer look,I think autoimmune plays a part.All I know i...1 point -
Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before. I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!1 point
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Hi Theresa, A few of my friends have your same story. You may be right about barley, etc. 18 years ago at a football game while clapping, suddenly my 4th finger was in agony. It looked like a vein had burst. It was blue for a couple hours, then disappeared. Finally realized it happened every time when drinking beer. It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something. Immediate icing stops the pain and discoloration. Now avoiding wheat in the US, it rarely happens. Thanks for the reminder. Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
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The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
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By Theresa2407 · Posted
Maybe you have a low intolerance to Wheat. Rye, Barley and Malt are the gluten in Celiac disease. It has always been stated Wheat and Gluten, not just a Wheat intolerance. Barley will keep me in bed for (2) weeks. Gut, Migrains, Brain fog, Diahrea. It is miserable. And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow. Boy was he off. But at that time the US didn't know anyone about Celiac. This was the 1940s and 50s. I had my first episode at 9 months and did not get a diagnosis until I was 50. My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product. It was mostly the cereal industry. 3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction. -
Thanks much Scott. Well said, and heeded. I don't have Celiac, which is fortunate.
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By Scott Adams · Posted
Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that? Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
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