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Gemini

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Everything posted by Gemini

  1. Gemini
    Your argument is a good one. My fear is that I did swing hypo a couple of years ago when trying to re-tweak my dose and I ended up anemic again and then I got nailed with shingles because I was run down. I am a tad paranoid about it now. You do have a good point and it very well may happen that pain*in*my*gut will recover well without supplements. I hope...
  2. Gemini
    My dosage has only gone down 20mcg from pre to post diagnosis and healing. It swung super hyper when I healed and my original dose was too high. You have to watch that because you never know when the shift will come because you cannot guess at what point you start to really absorb again. Not a pleasant experience. I think it really depends on how...
  3. Gemini
    I am glad you wrote this reply, Skylark, because I was going to ask if you wore glasses! I would imagine anyone with a TSH of 450 would be lucky to have a pulse. Agreed! This is a slippery slope because thyroid numbers can get very bad, very fast if you do not supplement. It's a tough call. The numbers were high enough on testing...
  4. Gemini
    Ummmmm.....yes, Houston, you are hypo!!! Symptoms, high TSH and antibodies. Not to worry...once you supplement and stay gluten-free, things will right themsleves. My antibodies at diagnosis were 1200 (yes, that's right) and after 6 years, my last test was "no detectable antibodies". OK, 6 years is a long time but I was older and had active Celiac for most...
  5. Gemini
    Yes, it does look like you have Hashi's, as do I. Your antibodies can become elevated before your TSH tanks but what was the number for your TSH? Many doctors go by the old ranges, which allow TSH to be as high as 5.5 and still be considered normal. That doesn't work for most people and TSH should be at least 2.5 or lower. The positive ANA is not a...
  6. Gemini
    Everyone in life will sustain some level of malfunction in their bodies and, for the most part, it will not be a big problem. People sweat this too much. There are much bigger problems you can have that I wouldn't want. I just follow a lower fat diet than most and make sure I don't eat what will not agree with me...that's not so hard to do. Unless my...
  7. Gemini
    GERD is not a diagnosis...it's a symptom of an underlying condition. Acid reflux just doesn't happen by itself and it usually means you are eating something which is not agreeing with you...like gluten perhaps? This is what happens when you go to a doctor who symptom treats. That in itself is epidemic in this country. Try the gluten-free diet...
  8. Gemini
    The small intestine sends out messenger enzymes to the pancreas during normal digestion, calling for whatever enzymes are needed to break down food. When villi become atrophied, these messengers lose their ability to send out the message and pancreatic enzymes are not released. Over time, portions of the pancreas can atrophy because they are not active....
  9. Gemini
    Tortilla chips are high in fat and that can cause the same symptoms as a gluten hit. I still cannot eat foods that are higher in fats without taking a digestive enzyme as I don't think my internal enzymes are in the same normal range as those without Celiac Disease. That's also normal for Celiacs....compromised digestive enzymes that never go back to normal...
  10. Gemini
    Roda...just so you know, RF can be elevated from just having multiple autoimmune diseases. I have all 3 that you have, plus Sjogren's and my RF and ANA are still really elevated but I am totally asymptomatic for RA and any other problems which may be caused by these elevations. I am definitely not getting any gluten in my diet as my last labs were almost...
  11. Gemini
    I certainly cannot speak for Scott but I understood his response to be that if you are having that much trouble healing, it would be prudent to look into refractory sprue as a possible culprit. The vast majority of Celiacs do well on a gluten-free diet, which will include some processed gluten-free food. I did, yet it was still 3 years before all of my...
  12. Gemini
    Thank you for this information! I go to a functional medicine doctor for thyroid treatment for the same reason. I go by my T3 and T4 levels, plus symptoms because if I go by my TSH alone, I end up anemic and pop with shingles. Endocrinologists who know what they are doing are few and far between. Both my sisters have thyroid issues also BUT they see...
  13. Gemini
    Takala...do you have Sjogren's? I do and your post was spot on! The first thing I thought when I read the original posters message was Sjogren's. As far as catching colds and healing slower, that can happen but since I started the gluten-free diet, I haven't had a cold or gotten sick so I've been lucky.
  14. Gemini
    Doctors get hung up on the "Gold Standard" of diagnosis. If they don't see flattened villi, then you don't have Celiac, even if you are showing antibodies in your blood. They also seem to think that following a gluten free diet is next to impossible and you should only go on one if you have a definitive diagnosis. I have been following this diet for 6...
  15. Gemini
    It would really help to know what her positive blood work numbers are but honestly? If your daughter tested positive on a Celiac panel, she has Celiac Disease, period. This is the kind of medical idiocy that we have had to put up with for years. Your daughter may not have had this disease long enough to show on a biopsy but is showing a reaction to gluten...
  16. Gemini
    All of your test results are normal for someone with Celiac Disease. Anemia may take awhile to resolve and low white cell counts are perfectly normal for someone with autoimmune diseases. It's only a problem if you are sick a lot. I have had low white cell counts for most of my adult life and I am 52 years old. I have 4 autoimmune diseases, including...
  17. Gemini
    I think it really depends on the store and the education level of the employee's. The 2 Whole Foods I frequent are phenomenal about cc in their prepared foods section even though they have the same CYA statement on their prepared foods. They would have to as it's not a dedicated facility. The stores I go to have employees that work those sections that have...
  18. Gemini
    I really don't think these things are an issue at all, except if you get a big gluten hit off of someone's hand or wherever and then put your hands in your mouth and that is an utterly gross thought anyway! Gluten would be the last of my worries especially during flu season. There are so many other bugs and viruses that can be transmitted through bad hygiene...
  19. Gemini
    Yup...that is pretty much how it is for many people. My antibodies went from 1200 in 2004 to "no antibodies detected" in 2011, yet I still take only 20 mcg less than I did before the Celiac diagnosis. I was diagnosed with Hashi's about 20 years ago and Celiac 6 years ago. I think after so many years of assault, even if your antibodies come into the...
  20. Gemini
    This is a very good point and one I pretty much follow. If you eat a diet based heavily on whole foods and use gluten-free treats and baked goods as such...a treat and not part of your daily diet, then you should not have a problem. All this obsession with ppm doesn't mean you will be eating a completely gluten-free diet...but there is no way to prove that...
  21. Gemini
    I think if you have undiagnosed Celiac for a very long time and don't know you have it, your intestinal tract can become inflamed all the way down. Inflammation in the body is a big factor in some cancers so maybe, just maybe, if you never find out you have celiac disease or are diagnosed and continue to eat gluten, you may end up with a problem. If you...
  22. Gemini
    Glutino has licensed the rights to make this bread from the original company in England. Open Original Shared Link I contacted them after my last trip there in October of 2010 and asked if it could be shipped to North America but they replied that it could not. They did go on to say they were working on making this bread available in countries other than...
  23. Gemini

    Thank you for the warm welcome. :) I appreciate you!

  24. Gemini
    According to Dr. Peter Green, DH is not caused by topical exposure to gluten. It works the same as for those without DH...the reaction comes from within, after ingesting gluten. Topical reactions are always allergy related and it's not unusual for a Celiac to have topical allergies also. This surprised me when I read his book but I don't have DH so cannot...
  25. Gemini
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