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Latest Celiac Disease News & Research:
Everything posted by Tim-n-VA
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No "flak" but I'd prefer not to think about people who look lumpy, male or female.
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Okay. I apologize. Apparently I was ignorant of the subtle nuances of "ignorant" at least in terms of formal definition. On another site I read this:
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Just go in any bookstore and look at the various diet and nutrition books. With very little effort you can find ones that contradict each other. You have books that tell you pick you food based on its color, based on your blood type, based on how many miles it was driven, whether the formerly living thing that is in it is could move independently or not...
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Of course they seem ignorant to regular readers of this site because we are so invested. On mandolin websites there are regular threads about "ignorant" people who think a mandolin is a ukelele. There's probably a math website where they complain about people thinking that 1 in 133 is a little over one percent.
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ARCHIVED Military Career Not Posisble With Careerillness
Tim-n-VA replied to Candy's topic in Coping with Celiac Disease
There are two concepts. Assession standards (to join) and retention standards (to stay in). The situation will be different based on when you are diagnosed. -
Policies and requlations on this are always subject to change. The link below is to the DoD Instruction on medical standards. I didn't see dh specifically listed in my scan but there is a catch-all of any skin condition that "shall interfere with the proper wearing of military clothing or equipment" as being disqualifying. Open Original Shared Link
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ARCHIVED Oat Is Gluten Free
Tim-n-VA replied to mdmm's topic in Gluten-Free Foods, Products, Shopping & Medications
Your body doesn't look up the ingredients on the food you eat. For some people, the protein in oats is similar enough to the protein in wheat that a raction is triggered. In a similar way, I have not had a noticable reaction to barley when I've accidentally had it (not reading labels closely) but I try to avoid it because I can't be sure there isn't internal... -
ARCHIVED Why Confirm With Biopsy
Tim-n-VA replied to bailey4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The reality is that celiac shares symtoms with other diseases/conditions. The ideal situation for diagnosis is to do different tests that check for different aspects of a disease in a manner to eliminate the various other conditions. The definitive diagnosis is the reason to do all of the testing to include biopsy. A simple dietary response is enough... -
ARCHIVED Do Allergies Mean It Can't Be Celiacs?
Tim-n-VA replied to 3groovygirls's topic in Parents, Friends and Loved Ones of Celiacs
An allergy and celiac are responses by different body mechanisms. You can have one or the other or both. -
ARCHIVED Yoplait Whips
Tim-n-VA replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
I did wonder that just yesterday in the grocery store. Most of the Yoplait specifically stated "gluten free" and the chocolate mousse didn't have that label. I didn't see any obvious gluten ingredient. -
ARCHIVED Discouraged And Frustrated
Tim-n-VA replied to Aleshia's topic in Coping with Celiac Disease
There is a book about how doctor's think. The one point I think they miss is that it is really how all humans think. Once an "answer" is found, evidence is accepted that supports the answer and rejected if it doesn't support the answer. Doctors do it. People on this board do it. While this thread is about a specific person (but they all are), this... -
ARCHIVED Discouraged And Frustrated
Tim-n-VA replied to Aleshia's topic in Coping with Celiac Disease
Yes and I said that in the previous sentence to the one you quoted when I said he should listen. -
ARCHIVED Discouraged And Frustrated
Tim-n-VA replied to Aleshia's topic in Coping with Celiac Disease
My wife had gallstones and had her gall bladder removed recently. What the doctor said there was that the technique of breaking up the gallstones with ultrasound was found to introduce many more complications than the surgery, especially since they are able to do the surgery with minimal incision and a scope in most cases. Remember, the gall bladder only... -
ARCHIVED Discouraged And Frustrated
Tim-n-VA replied to Aleshia's topic in Coping with Celiac Disease
Maybe not but as long as it is only you who will be affected you can give it as much weight as you want... The human body is very complex. There is much variation within that complexity from individual to individual. There are many diseases/conditions with overlapping symptoms. A good doctor will listen to your observations about how you are reacting... -
ARCHIVED Is There Any Type Of Gluten Allergy Medicine?
Tim-n-VA replied to txmusic's topic in Gluten-Free Foods, Products, Shopping & Medications
IF you have a true allergy, it is likely that antihistimines will allow you to have gluten. However, if you have celiac and the word "allergy" was used to as an analogy in explaining, there is nothing you can take to allow you to eat gluten. -
ARCHIVED Testing
Tim-n-VA replied to Beck's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think that there is a misunderstanding of how the tests are supposed to be used and how they work. And that includes some doctors. My background is in statistics not in medicine so I get a little concerned when people use terms like "many", "most" that imply a higher probablility that is supported by any fact. The reality is that all medical tests... -
ARCHIVED Testing
Tim-n-VA replied to Beck's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just to be clear, I'm not advocating any specific action regarding biospsy but there are people on this board who give incorrect information about how likely the test is to yield false results, portraying it as a purely random sample which it is not. It is not a perfect test because the damage frequently is patchy and mistakes can be made. That is information... -
ARCHIVED Testing
Tim-n-VA replied to Beck's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
While there are valid reasons for an individual to opt to have or not have a biopsy, I'm skeptical about some of the chances of a biospy finding damage. The process involves a scope with a camera and if there is visible damage that is where the biopsy will be taken. It isn't just a pure random sample. The calculations given by GPF just don't look... -
ARCHIVED Need Info About Getting Tested
Tim-n-VA replied to canuckchick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First let me apologize because this is essentially the same post I put in lots of these threads but my experience on internet boards is that very few people read everything, even the thread they are posting in... There are two sides to this. One is what you need to know for dietary choices. That is pretty clear just based on your response to removing... -
ARCHIVED How Sure Is The Dx?
Tim-n-VA replied to kayavara's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Enough proof for what is the question? If you want every doctor in the world to recognize the diagnosis, blood test isn't enough. If you want to know what to eat for the rest of your life, blood test is probably enough proof. If you have a non-supportive family and need to prove something to them, the answer might be different again. I've seen another... -
ARCHIVED Dentist?
Tim-n-VA replied to BemLmom3's topic in Parents, Friends and Loved Ones of Celiacs
And if anyone has gotten a "definitely has gluten" answer, please post that product/brand. -
ARCHIVED Corn
Tim-n-VA replied to jmcbride4291's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Another perspective is that, like many words in English, gluten has different definitions. The most common, and on this site, is to refer to wheat, barley, rye and sometimes oats. More specifically it is the protein in those grains. A search of wordnet at princeton gives a more generic definition of "gluten (a protein substance that remains when starch... -
ARCHIVED Dentist?
Tim-n-VA replied to BemLmom3's topic in Parents, Friends and Loved Ones of Celiacs
I've asked in other threads for dental products (by brand) that definitely have gluten and have never gotten an answer. Most of the warnings I've seen are about the potential for gluten or for products that won't give a defnitive gluten-free statement (usually citing not being able to guarantee their suppliers don't contaminate). My experience has been... -
ARCHIVED Celiac Disease Or Gluten Intolerance
Tim-n-VA replied to Sharon Marie's topic in Related Issues & Disorders
You sometimes see posts here from people who think they are the same. My opinion is that Celiac is a medically well-defined (if not well diagnosed) condition and gluten intolerance is not well defined. The various uses of "gluten intolerance" that I've seen on this board sometimes does equal celiac but sometimes it is used as an umbrella term meaning roughly... -
ARCHIVED The False Negative
Tim-n-VA replied to jmcbride4291's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It might just be a matter of sematics but saying that tests aren't reliable could be deceptive. Medical tests can have false positive and false negatives and the rate of these false results vary from test to test. When you combine that with the fact that there are some symptoms that can be caused by multiple conditions and with the fact that individuals...