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rez

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rez

  1. rez
    definitely re-test her.
  2. rez
    So glad you're feeling better. I'll let you know what we find out about my son. Good luck with everything! Ps. The doctor will be checking for H Pylori and something called EE, not familiar with that one.
  3. rez
    Everyone is so different, I couldn't agree more. I've heard of a lot of people thinking they outgrew Celiac because they had no symptoms. My 8 year old was soooooooo sick and then we put him back on gluten for a challenge (after his tTG came back slightly positive after being gluten free for three months), and nothing happened. It took about a month to...
  4. rez
    Please keep us posted and best of luck to you. We asked our son's doctor some of these very same questions regarding other reasons for flattened villi. He has been screened twice for H Pylori and both were negative, but our doctor said he's still going to look for H Pylori since those blood tests can be wrong. My son's tTG was slightly positive, but he...
  5. rez
    I love the rationale!!! Being a parent isn't always fun and easy, it's about doing what's right for your child!
  6. rez
    It could be dairy as well.
  7. rez
    The thing that really confuses me is that tTG is an anti-self indication of an auto immune response when your body tries to build back the small intestine, right????? The key is pin pointing what really flattened the villi in the first place. Was it Celiac or H Pylori? Also, in cases like this, they like to look at the EMA. If your doctor didn't run an...
  8. rez
    Wow. You're lucky to have such a liberal doctor. It's great that he is having you try the diet. I'm glad he's not just taking a black and white approach to treating you. I think the diet will tell you a lot. Good luck.
  9. rez
    was your EMA positive? I think there are other conditions that can flatten the vili and elevate the tTG. There's a 5% error rate on the tTG. Maybe the H Pylori had inflamed your intestines.????? Very hard call here and I really feel for you. I would try to use your bloodwork as an indicator. The only thing is that you won't know if it's getting better...
  10. rez
    I'm so glad that you are getting the blood test. My goal is to help others to not have to go through what we did. Sadly, my husband's father passed away this past week and we had several family members staying with us. We found out my husband's first cousin's two sons have Celiac. The mystery is being solved.
  11. rez

    ARCHIVED My Blood Tests

    rez replied to JerryK's topic in Coping with Celiac Disease

    I think you have genuine concerns regarding Enterolab and remember that even if you do have the Celiac gene, so does thirty percent of the population. Only 1% actually get Celiac. I personally feel that a gluten free diet is an awesome healthy way to eat and live. I think most, if not all, people would feel better gluten free. Good luck in the future...
  12. rez
    Did you get your blood test back yet?
  13. rez
    The tTG is positive. Regardless if it's only 3 points high. That just tells the severity of the damage isn't that bad yet. I strongly advise you to get the biopsy. I would be surprised if it's not positive.
  14. rez
    Wow. This is a great link and a very powerful story. I hope everyone reads these stories when they are debating to have the blood test. It just shows that complications, major ones, can arise. I feel it is so important to TRY, and notice I said try, to get an accurate diagnosis. My son's blood was positive and now we're going for a biopsy.
  15. rez
    I would have to 100% agree with the previous poster. As for the Enterolab's fecal fat score. My son's was negative and his tTG was negative. In the blood test, he tested positive for Celiac. I wouldn't rely 100% on Enterolab for accurate testing. I would get a second opinion. Also, my husbands brother died at age 33 of Non-Hodgkins t-cell lymphoma. ...
  16. rez
    Our doctor told us that the reason they don't like to officially diagnose patients until they know absolutely 100% is because then the patient has a pre-existing condition on their medical chart and it may cause problems getting insurance in the future. This is what he told us. I'm not sure how accuate it is, but he said it's a very serious disease and...
  17. rez
    My intent on this board is to HELP people and try to support and empathize with them. It's a shame that some people have to ruin things. To the original poster, I wish you all the support and luck with your journey.
  18. rez
    I speak from experience. It is totally up to you, but I would try to get a diagnosis first and then you can always try the diet. My eight year old son has totally been through the same thing this past year. If you do the gluten free diet, problems can still arise, and then you don't know if he's been glutened, if it's not working, or if it's another food...
  19. rez
    Good luck. I think I read the results wrong. Hope you have good luck w/ your doc! :)
  20. rez
    checked it out and I was reading the Enterolab results wrong. Those are confusing. Sorry,
  21. rez
    Again, I'm not sure how to read the Enterolab results. It says DQ 1,3 (subtype 6,8). I'm not sure which numbers go directly with the DQ. Is it the 1, 3, 6, or 8? My son's genetics were DQ 2,2 (subtype 2,2) so I knew it was a two. I apologize if I misread the results, but they seem confusing. I would give them a call. Good luck again!
  22. rez
    The tests they usually use to screen for Celiac are the tTG and total IgA. They usually always send these to either Prometheus or Mayo. Other tests to include on the screen are the EMA and AGA, antigliadin Igg and Iga. Good luck. Not sure if you got my email regarding the genes of your son. But you may want to look a little closer. According to what...
  23. rez
    I just looked in your profile and noticed that your son has DQ1 and DQ3 I think. Those technically are not Celiac genes. Celiac genes are DQ2 and DQ8. They are still researching and I think that there may be more, but I thought you'd like to know that according to current data, your son does not have a celiac gene. I think that honestly classic celiac...
  24. rez
    DQ2 and DQ8 are the Celiac genes, and no not everyone is diagnosed with those, BUT everyone comes back even if they don't have these with a report saying "they have gluten sensitivity genes". They name all the other DQ genes as "gluten sensitivity genes". The only one they say isn't is DQ4 and I think that this gene is predominantly found in Asians. I thought...
  25. rez
    Carla, great minds think alike. :) Long time , no type! :) I saw upper endoscopy, but not biopsy. Also, ask for a copy of the blood tests that were run. You need to check everything and take matters into your own hands. That's what I had to do for my son. After I asked for a copy of the blood tests, the wrong test was run. We are now working with one...
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