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rez

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rez

  1. rez
    I couldn't agree more. A choice is something we control. You can't control that you have the disease itself, but you can choose whether or not to treat it.
  2. rez
    Again, have them repeat the blood test in 6 months. Then, the DOCTOR should even give you the diagnosis.
  3. rez
    I think we all need to remember that we are on the same side. Everyone is saying, the publicity is great, BUT we all want to help others. I liked how the one poster made mention that someone out with symptoms probably wouldn't be running to their doctor's office. We all have such a passion and many have suffered sooooooooo much that all we WANT to do is...
  4. rez
    With a tTG over 50, I think the gastro didn't take enough samples and this is a classic example where they missed the patchy damage. I would go on the gluten-free diet and then have them recheck your tTG after 3 months, then 6 months to see if it came down.
  5. rez
    PS Usually a GI will not scope without a positive tTG. Check the bloodwork to see if this was run. If it wasn't, I'm sure your GI will run one. Also, don't start a gluten free diet before the additional blood work or biopsy. Then, you'll have to do a gluten challenge. Trust me, as a parent, you don't want to do this. We are in the process of one right...
  6. rez
    I would DEFINITELY do the biopsy. Since Celiac is genetic, it's important to know if the rest of your family should be screened. The biopsy shows exactly what's going on inside and it's important to know what progress is made and if the intestines improve over time. Also, Celiac is a life long disease. Your child has another 80 years plus to deal with...
  7. rez
    Remember, Dr. Fine diagnoses EVERYONE with a Celiac or gluten sensitivity gene. There is no scientific, medial reviewed research that states that people with a double copy of DQ2 or DQ8 have a higher chance of Celiac.
  8. rez
    Not trying to be negative but.........My mom emailed me and was so disappointed. It's funny, she shares my passion for awareness. Was that the SEGMENT? Or is there more to come next week? That was a blip!!! I hope they do a real segment next week. It's great to get publicity, but she should get some SERIOUS air time for this. I like the one poster's...
  9. rez
    This is super interesting. I asked our peds GI if a lactose or casein intolerance could raise the tTG or flatten the villi. The only reason I found for a false positive tTG is automimmune liver disease, hepatitis, or Type 1 Diabetes. Maybe one of these conditions is happening as well. I would check all liver enzymes. My son's tTG was mildly elevated and...
  10. rez
    Maybe she's having a hard time adjusting and this is her way of asking for help. It's a hard adjustment for anyone, especially a child.
  11. rez

    ARCHIVED My Dermatologist Made Me Cry

    rez replied to Laurad-'s topic in Doctors

    I think doctors sometimes feel on the defensive because they are caught off guard. They really don't know much about Celiac and it would be best if they left it at that. Maybe that office has a manager that you could write to or maybe you could send her some literature. It's so frustrating!! So sorry you had to be in such a unfortunate situation.
  12. rez
    I agree with the previous poster. Call the Peds GI and politely demand to be seen earlier. You need to resolve this and I'm sure they have an extra opening where they can squeeze you in somewhere. Hang in there and good luck!!!! You've gotten some great advice from these other posters. Try to check out vitamin deficiences or other intolerances.
  13. rez
    Just because you have the gene, doesn't mean you have Celiac. 30% of the population has the genetic make-up for it. Have them run a tTG, total IGA and EMA. THat is what they need to do to check to see if they actually HAVE active Celiac. Good luck.
  14. rez

    ARCHIVED Dr. Guandalini?

    rez replied to rez's topic in Doctors

    No problem!!!!! I'm glad to assist all on this board in a positive way, any time, any day!!!! :):)
  15. rez
    My daughter's (10) TSH is 7.5. Is this really bad? What are the risk factors of this? Is it safe to try to medicate a 10 year old? Is hypothyroid common in kids?
  16. rez
    I have heard excellent things about Dr. Guandalini. He's a pediatric GI and you don't even need a referral to see him. He came here from Italy and couldn't believe how underdiagnosed Celiac was. He has made it his mission to diagnose all the people out there. You can look him up on the Web. The Chicago Celiac Research Center has an excellent website,...
  17. rez
    Thanks for your posts. I am definitely open to trying the diet again. It would be nice to have an accurate diagnosis, but the most important thing is that Thomas feels good. Thanks again.
  18. rez
    I think you may have misunderstood and read another post regarding family. My family has always been 110% supportive. The doctor we're seeing is Dr. Guandalini at the Celiac Research Center in Chicago. I have heard nothing but wonderful things about him. We also have two other wonderful doctors, both who have called me personally at home to check up on...
  19. rez
    I have read that a virus or parasite can also cause damage and inflammation to the small intestine. It can also cause a temporary lactose intolerance. I guess part of me wonders if that's what could have happened. He had food poisoning last April. I am doing the best for my child and am going to see a wonderful doctor. My main reason for posting was...
  20. rez
    Where is the info that states that you are more at risk for Celiac if you carry two of the genes. My son is a double DQ2, but our doctor said that having 2 copies doesn't necessarily mean you have a higher chance of getting Celiac or that it's worse. THanks.
  21. rez
    Thanks for the replies. I'm looking at the big picture I guess. I want to be SURE before I diagnose Thomas with a life long condition. I also think it's important to try to get the medical diagnosis so physicians can learn that the disease is common and my other children will need to get screened. I feel that a proper diagnosis will also help my extended...
  22. rez
    I agree w/ Ursa. Be thankful if you only need to elimate gluten. There are sooooooo many yummy gluten free foods. I think you'd be surprised at all the chocolate and candy bars that are gluten free. Chocolate covered raisins and nuts, yogurt, chips, salsa, tacos, chili, and TONS more. HAve a positive attitude and get a good book on the gluten-free diet...
  23. rez
    This past year has been an unbelievable one. First, we went through 5 doctors trying to find someone who would believe us. Now, we found great doctors and my son has tested positive on tTG and positive on the Hydrogen breath test for a Lactose Intolerance. Here's the unbelievable part. He complained of CONSTANT stomach pain for 11 months!!! Finally, once...
  24. rez
    Don't fret about not getting the other tests. None of his (Dr. Fine's) tests will specifically diagnose you with Celiac. Also, my son's tTG was not elevated from Enterolab, but his bloodwork was positive for Celiac. The tTG was elevated in the blood, not stool, which makes no sense to me. I would just try the diet and not spend any more money w/ Enterolab...
  25. rez
    Did you get biopsied? The bloodwork is the first step and is usually followed by biopsy to confirm the diagnosis.
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