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Ginger38

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ginger38

  1. Ginger38
    During the intestinal healing phase and/or after healing, is it normal to have a change in the digestive system in general? Do celiacs just have more tummy issues? Are there certain gluten free foods that you can no longer eat? Should I be sticking to a pretty bland diet for a good while ? Im having issues with reflux and just my stomach in general...
  2. Ginger38
    And also I was in a long term abusive marriage and during that time period is when I started having issues
  3. Ginger38
    So did you have to have the endoscopy to confirm your diagnosis? I am not planning on eating gluten again. The only way would be if I decided to have the biopsy, but I really don’t want to go through that if at all possible. also I saw you had a host of misdiagnoses prior to the celiac diagnosis. That’s makes me wonder about myself. I was so ...
  4. Ginger38
    He ordered the genetic tests - it said HLA, DQ 2 and DQ 8.. I went and got it done today. I’m sure it takes a while to come back. So what does it mean if these come back positive or negative?
  5. Ginger38
    I sent a message about the test and he said he would order the HLA genetic testing but I would need the biopsy to confirm 🤷🏼‍♀️🤷🏼‍♀️🤷🏼‍♀️🤷🏼‍♀️
  6. Ginger38
    I didn’t realize that could happen … maybe that’s why he doesn’t do the genetic testing unless he feels it’s necessary after a negative biopsy. I see him back in a year, and he will be doing bloodwork then.
  7. Ginger38
    He mentioned genetic testing but after the endoscopy if it was negative. I just don’t get why they can’t do the genetic testing as opposed to me making myself sick and getting a biopsy. I think he mentioned a different type of genetic test HLA or something like that
  8. Ginger38
    Yes I am hoping he won’t push the endoscopy…I mean he said he was sure I had celiac and was treating me as such and for me to live that way. My hope is he will continue to see me even if I don’t opt for the gluten challenge and endoscopy. There needs to be better testing options
  9. Ginger38
    First I wanted to say I went on my trip out of town and was extremely proud of myself - I researched my restaurants and chose wisely and avoided gluten (as far as I know) for the entire trip. It was anything but easy watching everyone eat fried apple pies and cinnamon donuts but I did it!! And I only had to take 1 Imodium pill on the entire trip… I had b...
  10. Ginger38
    So you fry them and add the toppings in the skillet and everything?
  11. Ginger38
    So how do you make your pizzas? I would like to try them
  12. Ginger38
    I actually meant I make theM at home using regular cheap dough mix. Then add sauce and toppings and only eat the toppings after I bake it , but I would guess it’s the same bad idea ??
  13. Ginger38
    Thank you, I’m still learning and clearly have a lot to learn. Trying to figure out what I’ve been doing that I shouldn’t be doing. Sounds like peeling skin off chicken and toppings off pizza is not a good idea
  14. Ginger38
    Ok I didn’t realize it would bake into the toppings Unfortunately I do not. There might be one an hour or so away, my local area has nothing, It’s very frustrating trying to afford this stuff and find it. Do you agree that it’s not a good idea to have regular crust and just eat toppings?
  15. Ginger38
    So this may be a stupid question but is it okay if I just eat the toppings like cheese and meats and not the crust, even though the crust is not gluten free? Like I skin all the toppings off and just eat that. I have been doing this for a while bc the cost of gluten free crust is ridiculous and I don’t eat it bc it’s all been gross. So I just use reg...
  16. Ginger38
    Thank you! I probably need to start keeping a change of clothes with me. It’s so hard. I never thought about cross contamination in things like jelly, salad dressing, peanut butter etc. T have started trying to take a B1 supplement but sometimes it makes me nauseated. Yes it’s helpful to have people who understand
  17. Ginger38
    Thanks, will do. To me best case scenario is him saying he supports celiac diagnosis even though I’m not opting for endoscopy. I don’t have high hopes though. Worst case scenario is him refusing to acknowledge any of it without a biopsy or telling me it’s not celiac and eat whatever. I’m currently on a trip so I’m scared I’m going to make myself worse with ...
  18. Ginger38
    Yeah, maybe I’ve finally tipped my immune system over for good or severely damaged myself like never before. Unless I’m still getting gluten somehow and don’t realize it. This is the longest I can recall it taking to really see significant improvements. My stomach is just not happy regardless of what I eat. It hasn’t been this unhappy for a while. And th...
  19. Ginger38
    Yeah I haven’t been officially diagnosed but have positive antibodies and definitely improve when I am on a strict gluten free diet. I messed up bad for a longer period time recently and it seems like this time around the healing process is going much much slower. I’m still having all kinds of issues. Maybe I’m getting it somewhere else too that I’m not ...
  20. Ginger38
    Thank you. So how long have you been gluten free and how long did it take the accidents to sort of resolve? It is awful. I was taking Imodium all the time but I’m not sure if I should be doing that. I never thought about jars of things being an issue. We do eat out quite a bit but I do get gluten free but maybe it doesn’t really matter …
  21. Ginger38
    I have really been trying to watch the gluten and I don’t know if it’s just still intestinal damage causing my issues or I’ve messed up or what is going on, but my stomach hates me. I have had a lot of stomach pain and bloating lately and lots of diarrhea and urgency that has caused accidents, so embarassing. I don’t want to get in to much detail bc I do...
  22. Ginger38
    Your story sounds like mine. I had poop issues for years, had my gallbladder out and everything. I never thought it was normal but just learned to kind of live with it I guess. I later started having abdominal pain, nausea, reflux… all kinds of stuff. I was tested for celiac and had positive antibodies but was told I didn’t have celiac. It’s been a confu...
  23. Ginger38
    I have been really trying to be careful watching my diet since finding out that something I was consuming contained gluten. As far as I know I’m about 3 weeks out from That consumption of gluten. My stomach issues had gotten a little better but have come back with a vengeance to the point I have had accidents … so embarrassing 😳 I read someth...
  24. Ginger38
    No, I’m not familiar with the journal thing. I do eat out but I try to be careful and read. I do eat carbs and dairy. Not familiar with the autoimmune diet
  25. Ginger38
    Thanks. Yeah I wish it had been something small too, but that’s not the case. This diet is so hard. There are things that I guess I just don’t think about sometimes or foods that I just don’t think would have gluten. Condiments drinks coffee just lots of stuff. And I’m still paying for it all mentally and physically
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