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Ginger38

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ginger38

  1. I have a lot of numbness and tingling-didnt realize celiac could cause all this Mine is definitely untreated at the moment.and prior to this bad flare up I had been bad 🤦🏼‍♀️🤦🏼‍♀️
  2. It’s painful and makes it hard to eat, can I ask what you do to treat the issue?
  3. Anyone ever have mouth sores/ulcers and oral irritation? what causes this?? I’m having a terrible time with these issues right now. I’m not sure what I can do to help and it’s really starting to worry me
  4. Does consuming gluten with celiac disease or NCGS cause insatiable hunger issues? I swear I could eat 24 hours a day right now and eat the legs off a chair. It’s frustrating. I’m overweight as it is. I made a big boo boo recently and had gluten (didn’t check all my labels / ingredients 🤦🏼‍♀️) so I’m just wondering if this is triggering this insane hunger ...
  5. Wow..that’s a lot of associated conditions, kind of scary
  6. Wow, I guess I don’t truly understand enough about all this. So what exactly happens when gluten is consumed? The immune system sees a foreign invader and I’m assuming starts attacking or something? And that causes various symptoms throughout the body? Do the digestive pills that are supposed to help digest gluten help with gluten consumption/autoimmune rea...
  7. I am assuming untreated means not adhering strictly to the gluten free diet?
  8. I am never sure where to post these discussions.. sorry if this is not the right place. I am wondering if hair loss is linked to celiac/gluten intolerance? I do have thyroid issues and I am on thyroid medicine and have my levels checked, so it should not be linked to that. When I was younger I had a head full of thick hair... and in the last 10 years...
  9. Thanks! I am going to try the supplement you mentioned. I purchased some yesterday.. so it should be here tomorrow. I am HOPING it will help. If I could just feel better, it would be so nice. I don't know if this is common for anyone else but I have such tenderness, that I am guessing is my muscles.. like I can't stand a massage because the pressure hurts...
  10. Thanks, I think I am very overwhelmed In general and adding this to the mix is a lot. I don’t know why I don’t care more about my health. It’s frustrating. I want to be healthy but I guess I get side tracked on the negative things and cost and I give up and make myself sick. Also I’m very short so there’s no where for my weight to go and I had a C-section...
  11. I am curious, what things do you eat?
  12. Maybe if I felt I was getting healthier on this gluten free diet or saw some results like a little weight loss from not eating little Debbie cakes and breads and crackers or just felt like a million bucks I would be motivated. Unfortunately everytime I try to stick to a gluten free diet I lose no weight and my glucose /A1C always goes up. I don’t know what’s...
  13. I’m curious what kind of things do you eat? What kind of wraps? I have never seen these but we don’t have tons of options where I live
  14. Thank you so much, this is what I have been trying to clarify. Talking to you made it very simple. Thanks again
  15. I don’t think the area I live in offers genetic testing but I would be open to it. I have not had other deficiencies tested
  16. My antibody levels are a weak positive
  17. Thank you, that’s what I have been trying to figure out. It doesn’t make sense to me that I would be making antibodies specific to celiac disease if I don’t have celiac disease Thank you, that’s what I have been trying to figure out. It doesn’t make sense to me that I would be making antibodies specific to celiac disease if I don’t have celiac dise...
  18. So you feel like these physical symptoms are a reaction to gluten?
  19. Yes I’ve been doing both
  20. Thank you for your reply and this great information. I was so incredibly sick just trying to eat gluten here and there to see if I could even go back on it for an endoscopy…. the severe brain fog and exhaustion kept me from being able to work. And then I started having palpitations and SVT again which also kept me from working. I don’t see how it’s even ...
  21. Thanks this helps, but I guess what I am trying to figure out is whether or not I would have TTG-IGA antibodies present in my blood if I don’t have celiac. I have understood all along that a weak positive is still a positive. I don’t understand why I would have positive TTG IGA antibodies present / positive in my blood if I do not actually have celiac. ...
  22. Thanks, that makes sense. Just still doesn’t answer my lingering question/confusion about my antibody test
  23. I’m a tad confused. This is great information you provided but I’m still confused.. when you say you tested wonky what do you mean? Again I don’t understand how celiac / autoimmune diseases work but I didn’t think it was possible to have TTG-IGA antibodies present even as a weak positive and not have celiac disease
  24. Thanks! Interesting read. I guess all this just confuses me. I thought even a weak positive tTG-IgA indicated celiac disease. I didn’t think there were false positives
  25. Yes, I feel like I have been traveling down this road for a long time. I have had weak positive tTG IgA tests twice. The first result was 8, which was flagged as high, and the range was in the weak positive (4-10). I just had it retested recently after this rollercoaster gluten free diet I’ve been on. The level had come down 1 point. That’s it. It’s sti...
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