Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Ginger38

Advanced Members
 View Profile  See their activity

  • Posts

    325

  • Joined

  • Last visited

  • Days Won

    3

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ginger38

  1. Ginger38
    I Just started taking life extension bentofiamine with thiamine , one a day.. i don’t know if that’s enough .. I have a super b complex, vitamin d and centrum multivitamin for women under 50, zinc and biotin I take vitamin D everyday
  2. Ginger38
    I do have issues with hypoglycemia sometimes, my blood sugar bounces all over the place sometimes
  3. Ginger38
    I have been taking the life extension B1 with bentofiamine. I take one of those a Day. I am also taking super B complex, biotin, zinc, vitamin D and centrum women under 50 once daily … I have PTSD and am pretty convinced I still stay in fight or fight mode all day everyday due to my past trauma
  4. Ginger38
    Thank you. We Sound a lot a like. My anxiety always gets so much worse with gluten and Oh my the brain fog is terrible… mine is so bad I can’t function or work and I can’t even find words. It is a weird feeling that I don’t like. I also have what feels like the flu with joint pain and aches. And the GI symptoms are terrible. My journey has been confusing, but I ...
  5. Ginger38
    I started taking a bentofiamine (life extension). I only take 1 a day. Sometimes it gives me like so much energy it’s crazy - is that normal Thank you for sharing. The effects of gluten are very strong. I have horrible increase in my anxiety when I am glutened. I have also noticed since going gluten-free if I get any amount now my symptoms are very s...
  6. Ginger38
    Thank you for sharing. So do you have symptoms even when avoiding gluten? I have fibromyalgia and chronic fatigue My anxiety gets super worse if I consume gluten or get cross contact
  7. Ginger38
    All he ordered to test for was HLA DQ 2 and 8. I have every symptom of celiac disease including the rash that drastically improves when not eating gluten. The doctor was positive I have celiac. But of course wanted to do the gluten challenge and endoscopy…. But I’m already off gluten This is very discouraging to me…I have had positive ttg-IGA a...
  8. Ginger38
    The office called a few minutes ago and left a message saying the results were negative …I’m so very confused and discouraged
  9. Ginger38
    So are the genes he tested for the only gene tests needed? So if these come back negative I can’t have celiac disease? Or are there other genes?
  10. Ginger38
    I’m still learning about celiac and am a bit confused about some things. Is it like other autoimmune diseases and can flare up and become symptomatic from things like stress other illnesses etc? Or if you can achieve completed healing of the intestines and avoid gluten does it just go away?
  11. Ginger38
    Anyone else experience night sweats?
  12. Ginger38
    Just curious if anyone else experiences neurological symptoms?? If so what kind?? I have noticed that I sometimes I have trouble finding words or saying the wrong words.. I also have dizziness and I just feel really weird mentally and physically. These spells make it hard to function, walk etc. It honestly scares me bc it’s such a strange feeling a...
  13. Ginger38
    I have not, looks like there is not much to eat on that diet
  14. Ginger38
    I thought it was caused by tomato based foods, but I also have issues with bacon and I had a high fat low carb dip that caused me issues. So I thought this was interesting…. Trying to figure out my diet and what I can eat
  15. Ginger38
    So if your acid is low greasy / fattening foods will cause heartburn? Like bacon, cream cheese in a dip etc?
  16. Ginger38
    During the intestinal healing phase and/or after healing, is it normal to have a change in the digestive system in general? Do celiacs just have more tummy issues? Are there certain gluten free foods that you can no longer eat? Should I be sticking to a pretty bland diet for a good while ? Im having issues with reflux and just my stomach in general...
  17. Ginger38
    And also I was in a long term abusive marriage and during that time period is when I started having issues
  18. Ginger38
    So did you have to have the endoscopy to confirm your diagnosis? I am not planning on eating gluten again. The only way would be if I decided to have the biopsy, but I really don’t want to go through that if at all possible. also I saw you had a host of misdiagnoses prior to the celiac diagnosis. That’s makes me wonder about myself. I was so ...
  19. Ginger38
    He ordered the genetic tests - it said HLA, DQ 2 and DQ 8.. I went and got it done today. I’m sure it takes a while to come back. So what does it mean if these come back positive or negative?
  20. Ginger38
    I sent a message about the test and he said he would order the HLA genetic testing but I would need the biopsy to confirm 🤷🏼‍♀️🤷🏼‍♀️🤷🏼‍♀️🤷🏼‍♀️
  21. Ginger38
    I didn’t realize that could happen … maybe that’s why he doesn’t do the genetic testing unless he feels it’s necessary after a negative biopsy. I see him back in a year, and he will be doing bloodwork then.
  22. Ginger38
    He mentioned genetic testing but after the endoscopy if it was negative. I just don’t get why they can’t do the genetic testing as opposed to me making myself sick and getting a biopsy. I think he mentioned a different type of genetic test HLA or something like that
  23. Ginger38
    Yes I am hoping he won’t push the endoscopy…I mean he said he was sure I had celiac and was treating me as such and for me to live that way. My hope is he will continue to see me even if I don’t opt for the gluten challenge and endoscopy. There needs to be better testing options
  24. Ginger38
    First I wanted to say I went on my trip out of town and was extremely proud of myself - I researched my restaurants and chose wisely and avoided gluten (as far as I know) for the entire trip. It was anything but easy watching everyone eat fried apple pies and cinnamon donuts but I did it!! And I only had to take 1 Imodium pill on the entire trip… I had b...
  25. Ginger38
    So you fry them and add the toppings in the skillet and everything?
×
×
  • Create New...