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janelyb

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by janelyb

  1. janelyb
    we like tofutti cheese (sour cream and cream cheese too tofutti), it is soy and tofu.....I haven't been able to find any other cheeses near me that are casein free. I seen some of the vegan ones but then casein is still listed as an ingredient...how do they get away with calling them vegan.....stay away from veggie cheese it has casein in it.
  2. janelyb
    He can join my hubby....no really tell him he will pretty much eat the same ol stuff he normally eats (chicken,steak,pork..etc). I would allow him to have his own shelf in the cabnit with a few gluten foods that he can only have to take to work or when the kids are in bed. My hubby has on his shelf cookies, granola bars and cereal. My hubby basically only...
  3. janelyb
    mama2two, Do you know exactally what the results were of the test. When they say inconclusive that means some of them were negative but one was positive. My son has a world full of severe constipation and it all began at 7 months when baby foods/snacks were introduced. His constipation continued and then adding to it was ab destention, bloating,gas...
  4. janelyb
    Oh no, the lowest we've ever gotten was about 5%. For the past year or so he's been following his own curve at a steady 25%. So does he have to reffer you to Standford or the primary? Good luck I hope you get in quickly.
  5. janelyb
    So our last visit to the GI in April she didn't think he was celiac or gluten intollerent for that. She said put him back on gluten. I didn't listen to her and I kept him off gluten and then took out dairy too. Well today we went for our follow up and I told her how great he was doing on the Gluten-free Casein-free diet and how his rash went away, how...
  6. janelyb
    besides being gluten-free my son and I are also casien free too. We went for his check up and the doctor was concerned he isn't getting enough calcium(we drink calium fortified oj but not nearly enough to count as 1 serving). Can anyone give ideas how to get calcium into him and what calcium rich foods to give. He's not a veggie eatter besides occassional...
  7. janelyb
    Well tecnically no but I called them and talked to someone here in corp, whose wife has celiac and told me what items were safe and which were not. I can't remember them all but we get the same stuff everytime rice,beans and taco.
  8. janelyb
    So basically for the past few weeks I've been glutening my own child and not knowing it. No wonder why he keeps getting tummy aches. So after him complaining of tummy ache after Wendy's had me investigate further into fast food trips we've had lately on weekends. I still think he may have gotten glutened from Wendy's due to the handling of the chicken...
  9. janelyb
    some of our staples that are gluten/casein free found in my local grocery: Gorilla Munch chicken french fries fresh fruit or container fruit like in the plastic cup Gluten-free Casein-free ranch dressing *tofutti sour cream mix w/mayo & spices* I make my own ketsup pasta (either rice or corn) rice taquitos tunafish sandwich Gluten-free Casein...
  10. janelyb
    Anyone?????
  11. janelyb
    Oh no, now i feel really bad if I glutened him. He was still complaining of tummy ache all the way up until he fell asleep. Gosh I though for sure the fries were safe (well I hadn't even been to this location but another one guarenteed all of them are dedicated fryers). Guess I'll be calling them tomorrow to find out for sure. ETA: I looked on the site...
  12. janelyb
    It was an event for the Celiac Kids and their family. There is a local Sacramento chapter(for adults) that meets. Contact Diane for more info dcraig101@hotmail.com The Sacramento support group meeting on Sunday, June 24 features Dr. Gary M. Gray. Dr. Gray will speak on
  13. janelyb
    this site might be helpful to you, eventhough your son is not autistic. It gives a great timeline on how to go Gluten-free Casein-free in 10 weeks. Open Original Shared Link
  14. janelyb
    The older he gets the harder it will be to switch him gluten-free. There is a ton of research out there that says kids on the spectrum benefit greatly from a gluten/casein free diet. I wouldn't wait to switch him over, I'd do it gradually.....this site gives great advise on how to switch an autistic child on the diet Open Original Shared Link it'scalled...
  15. janelyb
    With my son as soon as he went dairy free he finally started to feel better. And when I started the diet as well I started to have terrible reactions to dairy and when I took it out I felt better too. So my suggestion would be to remove all sources of dairy/casein.
  16. janelyb
    Ok so I didn't check but we were out and about today and we went to Wendy's. My son ate some plain chicken and a few fries with ketsup. Now all afternoon he's complaining of a tummy ache. Do you think he got glutened or that dairy might have been there? I had the same exact thing (we shared) and I feel fine(However, I'm not sure if I react to gluten but I...
  17. janelyb
    It is hard but do-able. What you kinda have to do is just avoid the loved foods for a bit before you entroduce the sub, that way the child forgets what it use to taste like. The whole house eatting gluten-free is much easier. Ener-G bread to me looks very simular to a regular slice of bread and grilling or toasting it deffinately is more tollerable that...
  18. janelyb
    My son has 2 copies of the gene(found in my siggy).......his symtoms have been: chronic and severe constipation difficult time gaining weight GERD when baby bloating stomache pain gas ab destention lack of appetite slow growth neurological issues & seizures (petite mal) he did develop a rash and itchy skin on lower back just months ago but...
  19. janelyb
    Does anyone know if just the roast beef meat is gluten-free at Arby's? It never mentions just the meat on their site on the sandwhich.
  20. janelyb
    The Old Spaghetti Factory (now you can order gluten-free pasta) In and Out Burger (order protein style)
  21. janelyb
    Open Original Shared Link Azna Gluten Free Vegan Bakery They are located in Cameron Park,CA. I was lucky to sample a ton of their food at a celiac event this weekend and it was so yummy. I heard that Elliots in Citrus Heights is carring some of their products . This bakery also makes cakes on special order. If you live further away like me it is...
  22. janelyb
    Yes, I would. I'll email you privately about the meeting.
  23. janelyb
    Yes we see Davies...and from what I am learning from in real life people whose kids have celiac symtoms but might not always test + is that both McDonald and Davies don't really know much when it comes to celiac. And what I heard from one mom when her son tested + for celiac on genetics and other blood tests he didn't want to write Celiac on the kids chart...
  24. janelyb
    I would suggest a refferal to a neurologist. CP I have learned is kinda a catch all term used for any damage to the brain. The neuro will do an MRI which will tell you if there was any damage. He might even be able to guess when it happened; for us it was very clear that birth trama resulted in my son's cp. My son has mild CP but for him he is mostly affected...
  25. janelyb
    Sarah, I'm so glad you made it over here! Everyone is giving you great advise, just like I told you they would. Oh no about your personal care products, I'm glad you looked into that. Your chicken broth, maybe it has gluten???? what about your flours are you buying in bulk (because that could be a cc issue). I would buy them all individually packaged...
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