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Everything posted by mouth

  1. mouth
    HI ALL. JUST WANTED ALL TO SEE THIS.. MAYBE ANOTHER PLACE TO SHOP.... Thank you for emailing ShopRite. We appreciate the opportunity to respond. First, we do sell gluten free products. Second, as you may know, our stores are individually owned and operated. The individual owners are responsible for circular distribution in their marketing area...
  2. mouth
    I did it too.
  3. mouth
    Oh Thank you very much.. I got scared there for a minute!! My daughter loves this stuff.... ... And you are right, I tasted it the other night and it was pretty good ! Hey jerseygirl, I used to live in NJ too..
  4. mouth
    Are you saying that Tinkydaya is not gluten free? The packages that I buy are marked gluten freee, wheat free, etc, made from stone ground rice and water, or stone ground brown rice and water, one says stone ground rice and rice bran and water. Mouth
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  6. mouth
    not me. www.glutenfreedrugs.com
  7. mouth
    How about going to your state Department of Health? Or maybe is there a childrens hospital where you are? What state? LYnn
  8. mouth
    Hi Diana, I dont know if this will help, but when my daughter was 4 and had positive blood work, negative biopsy, she was stinky b.m.'s, not lactose intolerant, and would some times spit up milk in her sleep, CF definitely negative, they checked during endoscopy, and she had what they called peptic disease. They gave her liquid zantac, and it helped!!...
  9. mouth
    Hi Amy, I get wellshire gluten free chicken nuggets from Whole foods in NY. good luck. The tinkydaya pasta is good too.
  10. mouth
    HI, Sorry to hear about all of your problems, not rambling, you are asking others for help!!!! I hate to say it, but it sounds like you need a new doctor for your kids. Do you take them to a pedatrician? I would suggest a peds allergist/immunoligist, and a peds GI doctor.. Passing blood can be a serious problem.. I am very lucky. There is a childrens...
  11. mouth
    HI. Tinkydaya pasta is wonderful.. MY daughters diet consists mainly pasta and a few other things. I get Tinkydaya at Whole Foods, Some Stop N' Shops sell it (in NY), also you can email them they will answer, and tell you where you can it, or call, you may be able to order it from them. IT is a rice pasta, but its made differently. It is made of stone...
  12. mouth
    HI, I called about the TRIX cereal for my daughter, at this time they say it is gluten free. I just wish I could find more, other than ones labeled gluten-free from Whole foods. She doesn't like many of them.
  13. mouth
    HI I just tried the arrowhead gluten-free pancake mix for the first time last week. It was very thick, and heavy, and I am not the greatest cook, but they give you lots of different choices on how to make it. Like I used milk, next time I will try to use water instead. My daughter said they were pretty good, but we are new to this. good luck. Ps...
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  15. mouth
    Hi all. I saw Joels and everybody elses' notes about meetings. I am in Nassau County and am new to this. It is for my daughter. But I can not find a support group for kids. Can somebody also explain about the next meeting thingy at Suny Farmindale that Joel mentioned for April 29th? Please??Thanx
  16. mouth
    Hi. Ok, the brand I buy for my daughter is Tinkydaya (I think I spelled it right), it comes in spagetti, fusilli, and they have one called I think Rice dreams. They are all made of stoneground rice and water. Thats' it. They have one for kids made of small shapes. My daughter loves them as well as the others. I don't know if you can buy it on line or...
  17. mouth
    Juliet, thank you so much for that article.. Thank you for answering questions. Good luck, keep in touch. again, THANK YOU
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  19. mouth
    THIS IS TOO GOOD!!!!!!!!!!!! I'D LOVE TO SEE IT.. GOOD LUCK AND THANK YOU FOR YOUR HELP.. ANY HELP IS GREAT HELP@!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! KEEP IN TOUCH.. MOUTH
  20. mouth
    HI all. Very new here.. What is Casein? ok, here we go. My daughter's blood work was positive since like 4 years old. All look-see was negative as were the first 2 biopsies. Then all of a sudden she gained alot of weight, and her numbers skyrocketed, 3rd biopsy looksee was negative, but the pathology was "in the grey area" dependent on the blood work...
  21. mouth
    Hi what is casein? I am new to this stuff and dont know half of what any of you are talking about. mouth How do you know what questions to ask??
  22. mouth
    Tara, Hi, this is new to me too. my daughter finally got a difinitive answer after years. Her blood levels kept coming back elivated, but biopsies were negative. Suddenly she gained alot of weight, and all of a sudden her numbers shot up and the new biopsy came back "in the grey area" meaning, possible, if the blood work was positive. MOst of your...
  23. mouth
    Jerry, I am very new to this, as my daughter was recently diagnosed. Acording to an article I read, this is really crazy, the FDA is sitting on the fence about oats. Outside the USA the guidelines for Celiac are different. Some countries say ok, some say no. Cereal? Believe it or not, at the moment TRIX is gluten free, I just called and bought...
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