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confused

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Everything posted by confused

  1. confused
    Well we live in an area that is very high for west nile, they find mosquitos all the time that carry it. And she has gotten a few bug bites all threw the summer, the bugs love her like they do me. We even spray all of us. The dr said tho that she wouldnt get more bumps if it was an reaction to the mmr, and today she is covered on her back and stomach,...
  2. confused
    Well the drs office is open today, so im waiting for the dr to call me back. I am so freakin out that it is west nile. paula
  3. confused
    I didnt know were else to type this at. So I was hoping somoene can help me figure this out. Two week ago i took my 3 yr old to get her shots, i have been putting it off cause i was unsure if i wanted to get her immunized. Well for 3 days she has been cranky and sick. Well yesterday she got an rash so we took her to an dr. Well the dr was like well maybe...
  4. confused
    Nope i cant tolerate soy, why do they have to make so many things with soy to replace casein lol. I am hoping that once i heal i can tolerate some of the stuff that i have had to give up lol. I guess i need to start reading more huh lol. I always just assumed the pudding mix was full of gluten and casein lol, so i never bothered to read it. What im really...
  5. confused
    thanks for those ideas and tips. So the jello pudding mix is gluten and casein free. I never knew that, boy have i missed jello. I would love it with whip cream tho, is there a way to make that gluten and casein free to lol paula
  6. confused
    i wieghed in at 154, only done one for this week, but 14 since i started this weight lose. I have also lost one more inch around my tummy this week. that is what makes me the happiest. Only 3.5 inches and im at my goal of an waist that is 32, unless i still think it is to big when i hit that size lol paula
  7. confused
    He has done that many many many times. He even sent her one that he wrote like an yr ago, and all she said was oh i know im a bad mom and we will talk when i see you next, and he hasnt seen her. I have him write one about once a month, and sometimes he will write them on his own and tears them up, i have seen the torn up pieces in his room. I know for...
  8. confused
    Exactly, there is a small percentage of us that do not carry the gene but yet have celiac disease. I am one of them. I think there is still alot to be figured out about this disease and in time they will find other genes that are connected to celiac disease. Just like there are many people that have the genes that will never get the disease cause nothing...
  9. confused
    One more thing, did your drs say you have DH, like by biopsy, or do you just think it is Dh. If the drs said you have DH then you have celiac, there is no its ands or buts about it. I for one do not have the celiac gene but i have Dh, postive blood work and postive enterolab results. paula
  10. confused
    i also just went and re-read your first post, so you have been completely gluten free since april, if so that is why your test could be negative. You have to be consuming gluten to get an accurate test for weeks before the blood test is done. paula
  11. confused
    ok i did some looking up on google and i think what it means is you are IgA deficient, so you could still have celiac. Do you have the numbers from the other test ran. paula
  12. confused
    I have no idea what that means but im sure someone will. I just wanted to ask were you did the genetic testing, i had thought only enterolab shows those other genes so im just curious who is now testing for all of the other genes. paula
  13. confused
    Thanks everyone for all your help, Im still at a lost on what to do but i was thinking about maybe doing an intervention type thing, Im addicted to that show on a&e lol. I wonder if all the people that love him would all sit him down and explain to him what he is doing to his body and wirting him letters on how we all love him and what is best for him...
  14. confused
    Ok this is an touchy subject for me cause I am celiac and i do grow wheat. I have never thought of trying not to grow wheat cause of being celiac. I know at one point we did talk to the ones that do all the work for us, of converting it all to corn fields, but that is just not something that we can. Cause we also have to look at if wheat farmers do stop growing...
  15. confused
    i have so thought about him eating so much of it make him sick, but im afraid of the damage we will do. But im almost thinking that is the only way it will make him think. I have had many heart to hearts talk with him since im also celiac, but he will cry and promise me then he goes back to eating it. I have even asked him what can i do to make things...
  16. confused
    He has seen an cousnelor years to deal with the abondement issie. He just does not open up. We do feel that he needs to see his mom one last time and tell her exactly how he feels, she just wont come down cause she is an coward. She left him when he was 2, then stayed away til i came around when he was 3 cause she and I have hated each others since jr high...
  17. confused
    Nope i have even told him that his joints would hurt so bad that he could not play golf or any other sport, and still it goes in one ear and out the other. Yes 14 is so hard expeically when they think they know it all. Plus when he is going threw not seeing his mom for over an yr. paula
  18. confused
    Im assuming the dr screens by doing more bloodwork, or can they screen some other way. The thing is we havent been able to get into an ped gi yet, i have been corresponding with dr lewey but he has not got back to me about if i should put him back on gluten all the time to do the scope. We live in a small town so we dont have an ped Gi by us, the closest...
  19. confused
    Ok you all know I am having a hard time getting my stepson to stop eating gluten. I have tried yelling, bribing, screaming, grounding, you name it i have tried it. He use to say the food that was out was my other 2 boys. Well they have been gone since monday and I still find stuff out and he just ignores what I am saying. Even when he eats soemthing and...
  20. confused
    is this a symptom of celiac or allergies. i was talking to my mom and she said that every time she comes and sees my stepson that his eyes are glossy. I told her i thought it was from celiac or alleriges, but she is thinking maybe it isnt and he is on drugs. So i just wanted to see if this is related before i start to freak out that he is doing stuff that...
  21. confused

    ARCHIVED Neuro

    confused replied to jacqui's topic in Doctors

    I just wanted to say im sorry you are going threw all of this. I have a hard time thinking you have ptsd to. Why wont they figure out what the white matter is, do u tell them its probally gluten ataxia, or are they just wanting you to stress out over it so you keep coming back. I think so many drs do that they dont want to tell you anything cause they want...
  22. confused
    Im so sorry this happened. i know what you mean about losing one your "kids", i use to work in a boys home and i grew to love them all. One died a few years ago and i was so upset, he was such an wonderful young man that just had a bad childhood, his dad was very cruel. I still think of many of the other boys from time to time and hope they are doing well...
  23. confused
    I was thinking you would be, i was like i bet jersey will be like when did i type that lol. I was going to call them but my 2 girls are dancing and singing so loud, i was afraid to call the company. I was drinking one tho and decided to look it up and all i could find was info on the 100 percent juice, and this one doesnt say it just says wlchs orange=pinapple...
  24. confused
    are the juices still gluten free? paula
  25. confused
    no problem, it is hard to drink the water, i have been finally getting back to drinking about 80 ounces an day and i feel great about it, but i always have to pee and that is so frustrating lol paula
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