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chatycady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by chatycady

  1. A gluten challenge after a period of gluten free can actually be dangerous. We need a better diagnosis! Forcing the body to get "sick enough" to determine a correct diagnosis is actually, in my opinion, nuts! It's like telling someone with heart disease to create a heart attack so the Dr. can diagnois heart disease. I hope you give up the gluten challenge...
  2. I've been gluten free for about 2.5 months. Here is what has changed for me 1.) I remember peoples names. 2.) I am no longer anti social 3.) I have my self confidence back!!!!! 4.) I am riding my horses again, I was so fearful when eating gluten. I worried of falling off, getting hurt, etc. etc. etc. 5.) I have energy! 6.) Sleep like a baby 7.) No...
  3. GIve them lots and lots of water, warm baths and back rubs, and be there for them, even if they are whining and carrying on! They are young they will rebound quickly!
  4. I too had a terrible back ache, even after I went gluten free. I at on point thought I had passed a kidney stone the pain was so severe! I then read that dairy could be causing the problem. I eliminated all dairy products and within a few days I felt much better. I found dairy causes me sharp stomach and back and shoulder pain. Gluten causes brain fog...
  5. I have had a problem with bad breath for years, and yes, I believe it is associated with "gluten". I hope your wife is feeling better and no longer has this problem.
  6. I'm exhausted and miserable. Went to a steak house Friday night, asked them politely if they added sauses, etc. anything to their steaks and was told no. It was delicious, but I believe it must have been marinated in gluten. Anyway, within 45 minutes the symptoms started and now this is Sunday and I'm still out of it! My blood pressure drops so low. It's...
  7. I'm from Iowa and most the beef and dairy cattle here graze on pasture, are fed alfalfa hay and feed made with ground up corn. We don't grow wheat here, but oats. Most of the oats in my area is not harvested as grain, but as hay or oatlage. Horses like oats, but it makes them frisky and fat! If cattle were allowed to graze only, on "native" grasses...
  8. Before I was diagnosed with Celiac, I was told I was hypoglycemic. Therefore protein was what I ate. I continue to follow that diet and have added carbs now. I read that a person who eats protein (bacon and egg) for breakfast will eat 300 calories less a day than someone who eats cereal or carbs. I've been gluten free for 2 months, have lost my poochie...
  9. I too had terrible nightmares, not to the extreme you have had, but I would wake up in a sweat, heart racing and felt like I had run 3 miles! This has all gone away. I am about 8 weeks gluten free and it's been wonderful! It may take awhile to get into a normal sleeping pattern and I still wake up around 2:00 and can't fall back to sleep, but it isn't...
  10. I too can relate to bone pain. I used to put damp towels in the microwave and heat them up and wrap my legs with them. It really helped! I was very low on B-12 and very anemic. My blood work came back "inconclusive" for celiac. I didn't pursue anything further, just stuck with the gluten free diet. I'm am symptom free. I have been very dliigent with my...
  11. Can anyone here tell me if there is a relationship between unexplained infertility and celiac? My daughter has unexplained infertility, long cycles and it appears she starts the ovulation process but doesn't finish. Is there a link here? I haven't found much on this topic. Thanks for any help and advice you can give. She has been to many Dr's. and none...
  12. I was diagnosed with pernicious anemia about 11 years ago. My hemoglobin was 7 and should be around 13. (I think that's right) I was pale and turning yellow. Also hands and feet and legs tingled. Then Dr. gave me a shot and within an hour I felt a flush and warmth flow through my body. My staff was watching me and saw my color return right before their eyes...
  13. My ears ring really bad when I'm gutened. Anyone else have this problem? Or is this unrelated? It is rather anoying at times.
  14. Mammagoose is right! There is tons of information on this sight that is helpful. I started to feel better also, but was still having troubles and then I read on this website, that I may also have lactose intolerance. There is a good article about why lactose may be a problem. Hopefully in a few months I'll be able to eat cheese again. Everyone here...
  15. My Endocrinologist suggested I may have celiac. He did one blood test ttg or whatever and it was negative, but before I got the blood tests back I started the diet and within 2 days I felt much better. The Gas. Dr. wanted me to start eating gluten so he could take a biospy. I refused, as I know how bad I would feel. I would see the Dr. and have blood...
  16. The Dr. said you can't be glutened unless you eat it. Although I believe handling gluten may cause problems. I cut up a bunch of doughnuts for some friends. Washed my hands and I had an allergic reaction. Red flushed face, heart raced, and felt lousey. But maybe I didn't wash my hands good enough and I accidently ate some crumbs. I learned a lesson. I...
  17. I've been watching my diet very carefully, yesterday I was hungry and I ate carb's instead of protein and I've dived! My blood pressure dropped to 80/45 and I'm sleepy, exhausted, weak and dizzy. Is this celiac related? Am I unable to digest carbs right now because of celiac? I am 100% positive I didn't not eat any gluten. Does anyone know about this...
  18. I had some itching, like you have. I have also had hypoglycemia. I found if I ate protein and less carbohydrates my "itchy" problem ended. I think you are torturing yourself by trying to eat gluten, expecially since you know it's a problem. I hope the best for you, hang in there.
  19. I have had neck pain, pain between my shoulders, and low back pain. It has finally gone away. I also suffered from terrible leg cramps, and stomach cramps that would wrap around to my back. I have found that was caused by low blood pressure, a symptom of an allergic reaction. Is your blood pressure low after eating gluten? Hope this helps! And hope your...
  20. I read somewhere, don't remember where, that it takes the brain awhile to catch up to the body after a lengthy illness. The brains still reacting like it is allergic to something even though there is nothing causing a reaction. Does that make any sense?
  21. I believe so, although I'm not a Dr. My blood tests were negative and I refused the endo as I was required to eat gluten again. I have struggled with iron anemia and about 10 years ago was diagnoses with pernicious anemia. Based on this information and family history of autoimmune problems (thyroid and arthritis) the Dr. was suspicious and thought I may...
  22. I really wish I could make you feel better! You sound like you have a major reaction to something that is making you so sick. If you had an allergy, say shellfish, and you swelled up, turned red, threw up, and went into shock would you continue to eat shellfish? That's what the Dr. is asking you to do! THen if your test is negative, he tells you you can...
  23. Yes I have had bad stomach pains. I thought I was passing a kidney stone once, or something like that. I was unsucessful in getting a "qualified" celiac diagnosis and went on the diet anyway. I no longer have any pain. Carbohydrates still flow through me pretty fast, but no D. Have the blood test and then make a decision. Hope you find a answer and soon...
  24. chatycady

    ARCHIVED Cedar Rapids, Iowa

    She does not need a referral, unless her insurance requires it. However, the Dr. that was in Iowa City and who established the celiac unit is now in Rochester at Mayo. Everyone loved him and said he was very good. I would recommend Mayo. I am in Dubuque and the Dr's here don't know how to order the proper blood tests. (Celiac Panel) The dietician at...
  25. I was diagnosed just recently with reactive hypoglycemia. That was before I heard of celiac and changed my diet. The hypoglycemia is gone,,,, for as long as I am gluten free. I was sick for 2 days after the glucose test. Is it possible there was "gluten" in the glucose? It tasted fruity and was pretty thick. Maybe they glutened me. Blood test showed...
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