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cyberprof

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyberprof

  1. cyberprof

    ARCHIVED Sjogren's

    cyberprof replied to june27's topic in Related Issues & Disorders

    Wow, good catch Gemini!
  2. cyberprof
    glutenfreex4, The way I understand it is that puberty doesn't have to occur for the growth window to close, but yes ask your doc. You might also ask for a bone-age scan too. It's a 5-second x-ray scan and tells bone-age in years. If his age is higher than the bone age, he likely has time to grow.
  3. cyberprof
    Glutenfreex4, I agree with gottaski - you should get levels tested for Vit A, Vit D, B Vit and Iron. Calcium too if possible. Even if he's not deficient, I don't think taking a Carlson's capsule would be harmful. You can look up reputable maximum supplementation levels of specific vitamins via sites like National Institute of Health (US) or Mayo Clinic...
  4. cyberprof
    Oh, a few more things: I read a medical article/study that said that for boys, they don't go into puberty until they reach ~110 pounds. Another study proved that Vitamin A supplementation for boys was as effective as hormone supplementation to reach puberty. So when he went gluten-free, we had him take Carlson's Cod Liver Oil capsules (lemon flavor...
  5. cyberprof
    This does sound rational, if he's on board with staying gluten-free and not cheating. My son's story- short version. I was diagnosed when he was 14. He was 100th percentile height and 100th percentile weight until he was 5, then fell to 5th percentile weight, 25th height at age 14. He only gained 4 pounds from age 12 to age 15 but the doc would...
  6. cyberprof
    AnnJay, If it were me, I'd transition to one meal for the family, naturally gluten-free as you have too many intolerances to combine gluten-free and picky eaters. Plus, some day you may start getting cross-contaminated from your kids' cereals or from their gluteny hands and kisses. Gluten free goddess has a good number of food intolerances so check...
  7. cyberprof

    ARCHIVED Sjogren's

    cyberprof replied to june27's topic in Related Issues & Disorders

    June, I have some suggestions and a question: Have you had a full eye exam? Some of your symptoms sound like Fuchs Dystrophy, which is a serious eye disease that causes corneal erosion and eventual blindness without treatment. Some opthomologists aren't experienced enough and may miss it. I advise that you don't take chances and have an MD look at your...
  8. cyberprof
    I think the smoothie would taste good all day - you might have to stir it. You could try it but after 12 hours it might not taste as good. It wouldn't go bad if it was kept in the fridge. I keep mine in an insulated mug with a straw. And yes, I've added protein powder to smoothies no problem. Hope it works - good luck and let us know.
  9. cyberprof
    Colleen, it looks like lots of people need hugs today. I'm sending you one. What about smoothies? It sounds like you have a good DH. He could make it and stick it in the fridge and you could sip a bit here and there. Recipe - 1/2 cup strawberries, 1/2 cup mango, 1/2 banana, 1/2 cup yogurt or almond milk or soy milk or sorbet (any flavor but mango...
  10. cyberprof
    Is it a stomach or GI tumor? It is possible, as the tumor is sometimes a result of damage to DNA after birth. http://www.cancer.org/Cancer/GastrointestinalCarcinoidTumor/DetailedGuide/gastrointestinal-carcinoid-tumors-risk-factors
  11. cyberprof
    Thanks Raven. I know your history too and it helps that others here understand. I think she and my dad have both had the blood test for celiac and were negative. That's the killer. But my blood was negative (while on gluten but after positive biopsy that found celiac by "accident"), my son's was negative, my brother's was negative. I don't know if...
  12. cyberprof
    I'm going to resurrect this old thread rather than start a new one. I know the OP isn't still around but raven and mushroom are. Hope to get input from anyone who has polymyalgia rheumatica. My mom was diagnosed with polymyalgia rheumatica this week. She's been in terrible pain for months and is 80yo. I'm interested to know if anyone has had resolution...
  13. cyberprof
    My top 3 are: Chicken soup Mashed potatoes Mac n cheese Like shadowicewolf, I make chicken soup. I cook chicken pieces in gluten-free chicken broth, then shred it. While I'm shredding the chicken, I add some rice to the broth and perhaps carrots, celery etc. and let the rice cook until ready. Add back the chicken. This is my son's favorite thing...
  14. cyberprof
    Takala, I'm not going to argue with you but Intern has options and she can make a choice as to how she wants to handle it. An option would be just to order and eat the food without making a big deal out of it being gluten-free. It's what my daughter (who is gluten-free but doesn't need to be) wants me to do when I'm out to dinner with her. Teenagers are...
  15. cyberprof
    My son is strongly casein-intolerant (and likely celiac, though undiagnosed) and I was undiagnosed celiac when pregnant. He was always fussy as a baby and never felt "well" as a child, but we didn't isolate his reaction to cow's milk protein until he was 15. I'm glad you're interested in that type of research - very helpful. I'm trying to get my son...
  16. cyberprof
    Intern, first your roommate sounds like a mean person, not a friend. You don't have to justify your choices and not being diagnosed doesn't matter in this situation. You have several choices on how to deal with this. Ignore, fight back or change your tactics. You could talk to her privately and ask that she respect your choices and then ignore...
  17. cyberprof
    I had PF for over two years in both feet at different times. Many PT, MD visits. Was told to wear shoes all-the-time, never went without (wore with pajamas, with bathing suit). Wore supportive running shoes with custom orthotics to work with my business suits - yuk. Wore a night splint for 13 months every.single.night. That got old. Did yoga, toe exercises...
  18. cyberprof
    Sorry about the glutening...happens to us all I think. I drink lots of hot peppermint tea, which really helps. Water is important, because a lot of water is lost with Big D, so tea is a good way to get water. The tea is soothing and mint is an herbal remedy for bad stomachs from way back in medieval times. The only thing is that I've heard if you...
  19. cyberprof
    nvsmom, I am sorry to hear of your pain. I have no specific experience, but I too had the "suck it up" mentality with docs after being dismissed too many times. However, I do know that those potential diseaes - RA especially - are better treated earlier rather than later. So good luck and find a good doc. There are people here who might be able to...
  20. cyberprof

    ARCHIVED Seattle Doc

    cyberprof replied to JT09's topic in Doctors

    I go to Susan McCormick MD at Virginia Mason. I went to see her after seeing another GI doc at VM who diagnosed me. Since I was only Marsh I, he said that I "didn't have to be strict on the gluten-free diet" since I wasn't showing much GI damage and he also refused to order biopsies for colitis when he was ordering my age 50+ routine colonoscopy.(I wanted...
  21. cyberprof
    I love stories like these! Thanks for sharing.
  22. cyberprof
    AGH2010 - what others here may be overlooking is that as a child, your daughter faces a different battle than adults do. Some schools are very picky and do require a doctor's note to do things like put the child at an "allergy-free" table in the cafeteria, provide "safe" food on an overnight outing (very common in 5th and 6th grade) and even some colleges...
  23. cyberprof
    If the blood test is postiive, it's unlikely to be wrong - the test has very few false positives. However, if your blood test is negative the reverse is not true. There are often false negatives. Yes, celiac can cause periods of bad followed by ok or even good. It is funny that way -not sure if anyone knows why. Hope they give you the test without...
  24. cyberprof
    I loved bread before and I agree that homemade gluten-free is better than store-bought gluten-free, but I try not to bake too much as I try to eat a paleo diet and because a lot of the time, it doesn't turn out. If I'm going to bake, I make brownies or flourless PB cookies. Anyway, I like Rudi's better than Udi's. I don't like it as a sandwich to take...
  25. cyberprof
    Well, I don't suggest lying to your doc, but you could try not minimizing your symptoms. Tell him/her that you feel bad multiple times a day, often feel like missing work but struggle through anyway because you don't want to let your employer down etc. You might have to be insistent. I was undiagnosed for way too long (30+ years)and always told my docs...
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