
YoloGx
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by YoloGx
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ARCHIVED What Do You Do When You Know A Reaction Is Coming?
YoloGx replied to Katrala's topic in Coping with Celiac Disease
I am finding that taking extra nattokinase, L-glutamine, probiotics, and now also some homeopathics really helps stop my otherwise inevitable migraine and sinus congestion after cross contamination with trace gluten. The homeopathic belladonna has helped, as has pulsatilla. Recently I got a formula by Hyland just for headaches in general, and it worked well... -
You are so right on Shauna!! ---Bea
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Hi Shauna, Its nice to see you on this thread. I love your image about the pooh dust by the way!! I started this thread due to my own frustration with increased sensitivity. Since early August I started getting glutened from CC far too frequently--my bf too! We are both far more vigilant now and for the first time in over a month we are having...
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I think its normal to go through what I call an OCD stage when you finally figure out what you need to do to be well and fully realize the "normal" world out their ain't so friendly or even aware of your needs. In time you will calm down more than likely. Think of it this way, while its damn inconvenient, its way better than getting cancer or diabetes...
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ARCHIVED Anyone Take Years To Heal Brain Fog And Fatigue?
YoloGx replied to Twizzel's topic in Coping with Celiac Disease
Better to pack your own food to take with you when your wife eats out. Honestly. Eating salad can be a big problem from cross contamination just from the cutting board not to speak of everything else. Also given how sensitive you seem to be, eating prepackaged foods is often like playing Russian roulette--even if they do say they are gluten free. About... -
ARCHIVED Anyone Take Years To Heal Brain Fog And Fatigue?
YoloGx replied to Twizzel's topic in Coping with Celiac Disease
I agree--for many of us grains are an important source of vitamins and fibre. However they aren't for everyone. One can get by just fine with root vegetables and squash. Grains were not a major part of the human diet until 15 thousand years ago. Most of our pre-history was without grains. I agree about taking the extra vitamins. With damage to the villi... -
Well for really serious problems with air born particles you need to get a mask made for paint fumes etc. They are the ones with the two nozzles. Yes really. You get to look like Darth Vader. I get mine at Home Depot. I don't like to wear them that long since they are heavy and they collect moisture inside. I do use them when I have to paint or work at a...
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I'm glad I brought this topic up and that you all are responding. I am learning a lot. It isn't just me or my boyfriend having these problems of random cross contamination. Its far more common than I thought. From here on out I am going to be a lot more careful. Yesterday for instance I did not drink from my water bottle after I went to Lowe's and a private...
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this is one case where I would consider/plan to use a mask--a good one, not just a paper one, and forget the looks I'd get.
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You know I kind of figured this would be a "touchy subject"--lol! Or like my brother says, you only laugh when you cry. I think its way too easy to think that one's level of sensitivity is all there is. There is however the actual reality for some of us that they/we are more sensitive than others. And they/we need the rest of everyone else to be sensitive...
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Well that is the thing isn't it? Putting one's hand to one's face and/or mouth, or opening up one's water bottle and taking a drink etc. without really thinking about it and washing one's hands first. Its having to become a lot more conscious. Its also having to go thirsty sometimes when you can't just go wash your hands or figure out a way to do it without...
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ARCHIVED Anyone Take Years To Heal Brain Fog And Fatigue?
YoloGx replied to Twizzel's topic in Coping with Celiac Disease
Hi Twizzel, I suggest you don't give up hope. Your doctor seems to be correct, especially given all the improvements you have been experiencing being off gluten. However I can also understand your frustration. You are still healing. The villi can take a long time to get better. Taking probiotics to provide a better intestinal environment and nattokinase... -
Thanks Trish and Jenni--so it isn't just me. That helps though on the other hand I wish it weren't true. What a bother! I am hoping in time I will become a little less sensitive. Its very possible that the glutening in August set me up for more heightened sensitivity. Since I discovered I have full out celiac, I have never used things like sani or baby...
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I am wondering if other people here have noticed getting CC'd from going about their business in the day--like getting cc'd from doorknobs, handling money, reading a book from the library, sharing papers with someone to read etc. Up until recently I thought what I was experiencing was due to other reasons--ie. from an old whiplash I recovered from some years...
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ARCHIVED Gluten Ataxia - What's Your Experience?
YoloGx replied to T.H.'s topic in Coping with Celiac Disease
Glad to hear that! You go girl! ----Bea -
ARCHIVED Gluten Ataxia - What's Your Experience?
YoloGx replied to T.H.'s topic in Coping with Celiac Disease
Ravenwoodglass, You are such a brave woman. You have survived so much! And come out on top after it all. It reminds me of what could have happened to me. Maybe I was "lucky" to have my kidney come under attack from gluten as a young adult. Not too many years later I figured out I was "allergic" to the wheat family. Ha! Nevertheless it helped improve my... -
ARCHIVED Gluten Ataxia - What's Your Experience?
YoloGx replied to T.H.'s topic in Coping with Celiac Disease
Most certainly: its " Hylands: Headache" -- Natural Relief for Headaches Due to Stress or Illness. What is in it is: Iris versicolor 3x, hpus; Gelsemium Sempervirens 3x, hpus; ipecac 3x, hpus; belladonna 6x, hpus; in a base of lactose, usp. The good news is that by taking them I completely avoided any headache symptoms thus far after the initial crunch... -
ARCHIVED Horrible Insomnia Rant (With A Question)
YoloGx replied to HopefulMama23's topic in Coping with Celiac Disease
Do let me know how it goes. I agree, homeopathy is both very helpful as well as interesting. Just got a book on it that is helping me a lot. Meanwhile I know what its like not being able to get to sleep. Have had that problem for years. Everything seemed to conspire to create it--the gluten and salicylate sensitivity as well as old injuries to my sacrum... -
ARCHIVED Gluten Ataxia - What's Your Experience?
YoloGx replied to T.H.'s topic in Coping with Celiac Disease
I agree--use it or lose it! Keeping active physically and mentally may actually help us not only heal, but perhaps gain back our neuro net compared to many since really there are too many couch potatoes out there... I am going on long walks every day now and I notice a huge difference. I had to stop after being glutened in August from the above mentioned... -
ARCHIVED Gluten Ataxia - What's Your Experience?
YoloGx replied to T.H.'s topic in Coping with Celiac Disease
Hi Shauna, I don't think I have gluten ataxia, however I have had a host of neurological complaints that largely have resolved by going off gluten. If however I get cc'd by very trace amounts, my nervous system including my head knows it first. I get body aches and pains too, become less coordinated, have difficulty thinking of the right word, memory... -
ARCHIVED Horrible Insomnia Rant (With A Question)
YoloGx replied to HopefulMama23's topic in Coping with Celiac Disease
Its true, if you can find a way to circumvent the anxiety that should help. Fear can really get in the way. One thing I have often done is read technical manuals at night. Definitely helps one get sleepy pretty fast! Whereas a detective novel will keep me up all night. Am not sure about Harry Potter! Maybe (like how it was suggested) if you already know... -
ARCHIVED Why 3 Weeks Dizzy After Gluten?
YoloGx replied to AVR1962's topic in Coping with Celiac Disease
Vitamin E is helpful for a whole variety of things. We with celiac etc. tend to me low in the oil based vitamins by the way, increased for some of us by salicylate sensitivity--due to damage to the villi. Some of the bone, nerve and muscular distress can be relieved by taking vitamin E. It is good for the heart and helps prevent cancer. It is a wonderful... -
ARCHIVED Why 3 Weeks Dizzy After Gluten?
YoloGx replied to AVR1962's topic in Coping with Celiac Disease
I guess it just goes to show we have a lot in common. I am betting the combo of celiac with salicylate sensitivity would make a basket case out of anyone. Certainly it makes one mineral and vitamin B and often E and D deficient. Did they replace the fillings gradually or not? You could have gotten a nasty dose of mercury if they were taken out too quickly... -
ARCHIVED Why 3 Weeks Dizzy After Gluten?
YoloGx replied to AVR1962's topic in Coping with Celiac Disease
Hi Prickly pear, Do consider taking the co-enzyme B complex by Country life or Now. Both are gluten free. They go directly into your blood stream if taken on an empty stomach. They help me with my sleep problem too. Tonight I am going to try out taking the homeopathic Hypericum Perforatum by itself. A single remedy is supposed to be better than multiple... -
ARCHIVED Why 3 Weeks Dizzy After Gluten?
YoloGx replied to AVR1962's topic in Coping with Celiac Disease
Thanks Twinklestars, and everyone else here. It is nice to hear the info I have gleaned is understood and appreciated. Its a good contradiction to my immediate family who are mostly in denial about this and related conditions, including the salicylates. And yes, it was/is incredible I was not told until after I finally figured it out 3 1/2 years ago...