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Russ H

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Russ H

  1. People here a posting rigorous scientific consensus backed information. Kennedy is not.
  2. I doubt that very much. Robert F Kennedy jr. has no scientific or medical qualifications and promotes conspiracy theories and anti-vaccine propaganda. Childhood vaccines do not cause problems for most people - they are thoroughly tested and monitored and are very safe. It is not known what triggers coeliac disease. The allegation that glyphosphate causes...
  3. Exactly. Undigested proteins are excreted in the stool, they don't get into the meat or dairy products.
  4. I got myself a bread machine and found a good recipe based upon gluten-free oat flour amongst other ingredients. It uses psyllium husk to replace the gluten and the result is just like wheat bread. https://www.glutenfreealchemist.com/gluten-free-bread-machine-recipe-bread-maker/
  5. These forearm creases seem to be caused by WHB rather than coeliac disease and go into spontaneous remission after sufficient time. (WHB = women holding babies).
  6. The enzyme has been approved by the European Food Safety Agency as safe for regular human consumption: https://www.efsa.europa.eu/en/efsajournal/pub/4681 They tend to follow the precautionary principle, so if they regard it as safe it probably is.
  7. Would be interesting to see whether vaccination against Strep. pneumoniae affects incidence of coeliac disease. In the UK, it has been given to infants since 2006 so I suppose any affect would have shown up by now.
  8. Blood sugar is the first thing I thought, too. Could be hyperglycaemia if the body cannot control blood sugar well. What happens if you eat a low carbohydrate, low glycaemic index meal?
  9. Typical consumption of oxalate is approximately 1/5 g per day. The body doesn't store it. It is a tiny amount and not enough to be visible in the stool. In some people it can cause kidney stones. The coeliac diet is restrict enough without unnecessarily going on a low oxalic acid diet.
  10. Yes, get back on gluten and postpone the test if necessary.
  11. I think that it is very unlikely that you are passing visible calcium oxalate crystals in your stool. It is passed in urine. The vast majority of people do not have a problem handling oxalic acid. 'Oxalate dumping' does not exist.
  12. Thanks for the update. It is very helpful to others experiencing similar symptoms. No more gluten challenges and get on the mend!
  13. Hi Gilly, It is curious that you are passing oxalate crystals. Do you know for a fact that you are passing them? Oxalic acid is not particularly toxic in itself, it is just that it combines with calcium to produce calcium oxalate, which can cause kidney stones. Risk factors are not drinking enough water, consuming a lot of oxalic acid containing food...
  14. https://www.greatbritishchefs.com/recipes/pure-rye-bread-recipe
  15. Good point. It would be nice to have a strict study with weekly tests to see what actually happens.
  16. Rye is absolutely not safe for people with coeliac disease. It has about 1/3 of the gluten of wheat, which is still far too much.
  17. I don't doubt your symptoms or reaction to gluten. It would be nice to have blood work to narrow it down as there is a whole spectrum of gluten related disorders.
  18. The common blood tests for coeliac disease look for antibodies to an enzyme found in the body called tissue transglutaminase 2 (tTG2) and to a fragment of gluten protein called deamidated gliadin peptide (DGP). EMA is endomysial antibody, which is basically a crude test for tTG2 - like running a tTG2 test with a high threshold so is less sensitive but more...
  19. This case is coming down from a high level though. This plot is for IgA competent children, adults are slower. https://link.springer.com/article/10.1007/s10238-023-01040-1
  20. You obviously had very bad symptoms and I am glad you are on the mend. You might not have coeliac disease though. You may have an inflammatory bowel condition that is antagonised by gluten. Gluten is highly immunogenic. Many people with active coeliac disease develop extreme intolerances to foods in addition to gluten. Milk is a common example. Milk used...
  21. Have you been clinically diagnosed with coeliac disease by blood serum antibody testing and intestinal biopsy? If so, have you had follow up testing since you applied the larvae to your skin? Did you develop a skin rash and have you had stool testing to establish that you are actually hosting hookworm?
  22. It can take several years to come down although it generally takes less time than this. I have seen figures for the half-life of tTG2 antibodies as 2 months in children and 3-4 months in adults. It varies between people. After the sudden initial fall, yours are halving about every 5 months, which is not particularly excessive.
  23. The sensitivity and specificity of the serum tests for coeliac disease have been extensively researched and quantified. For example, having a level of anti-tTG2 antibodies at least 10x the reference range is almost certain to be coeliac disease. Tests are normally prescribed by a healthcare professional as part of the diagnosis - who would have one without...
  24. 536! That is 35x the reference range. Considering it was that high I think you are doing very well. They are certainly falling. Have you taken anti-fungal medication for the candida overgrowth?
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