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mftnchn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mftnchn

  1. mftnchn
    Not sure about buying flour blends, but for potato starch and tapioca starch I'd check the Chinese market and see about ordering in larger quantities. It is so cheap there.
  2. mftnchn
    I've lived on this website--its been my best friend!! I ditto what everyone else has said, though I add the comment that it takes 1-2 years for the adult intestine to heal though many feel quite well much sooner than that. Be prepared for a real learning curve, and recognize that you are entering a major life transition so it will be hard and will take...
  3. mftnchn
    Sorry for the weird font...it's fixed now. I had my browser set to type Chinese and it wouldn't switch out of that mode. I could type in English by toggling to that, but the font was totally weird. Had to close and restart... Headed to bed...I'm too sick to stay up. I'm bummed. Everytime I think I am turning a corner--whammo. Sherry
  4. mftnchn
    ＧＦＣＦＳＦ　ｈａｓ　ｈｅｌｐｅｄ　ｍｅ　ａ　ｌｏｔ　ｔｏｏ．　　Ｉ　ａｍ　ａｃｔｕａｌｌｙ　ｔｏｌｅｒａｔｉｎｇ　ｓｍａｌｌ　ａｍｏｕｎｔｓ　ｏｆ　ｄａｉｒｙ　ｎｏｗ　ａｎｄ　ｓｔｉｌｌ　ｈａｖｉｎｇ　ｄａｉｌｙ　ＢＭ；　Ｉ　ｃａｎ＇ｔ　ｅｖｅｒ　ｒｅｍｅｍｂｅｒ　ｂｅｉｎｇ　ｔｈｉｓ　ｒｅｇｕｌａｒ　ｂｅｆｏｒｅ． Ｔｈｅ　ｌｙｍｅ　ｍａｙ　ｂｅ　ｐｌａｙｉｎｇ　ａ　ｒｏｌｅ　ｆｏｒ　ｍｅ　ｂｕｔ　Ｉ　ｔｒｅａｔｅｄ　ｌｙｍｅ　ｆｏｒ　６．５　ｙｅａｒｓ　ａｎｄ　ｈａｄ　ｎｏ　ｃｈａｎｇｅ　ｉｎ　ｔｈｅ　ｂｏｗｅｌ　ｓｔｕｆｆ　ｕｎｔｉｌ　ｔｈｅ　ＧＦ　ｄｉｅｔ．　　Ｉ　ａｍ　ｑｕｉｔｅ　ｓｕｒｅ　ｔｈａｔ　Ｉ　ａｍ　ｃｅｌｉａｃ　ａｔ　ｔｈｉｓ　ｐｏｉｎｔ　ｓｏ　ｐｒｏｂａｂｌｙ　ａｌｔｈｏ...
  5. mftnchn
    I don't know, could be. Yesterday was pretty good, and this morning I felt quite good until I ate lunch, and then about 30 minutes after that I crashed a lot, not okay yet. I ate lima bean soup, only things in it were lamb, onion, salt and pepper. Ｉhave been eating this fine on occasion if I don't overdo so I don't know why such a strong reaction today. ...
  6. mftnchn
    I agree, that error margin shouldn't be. But I know that is the case, maybe they just don't tell us that often. The Western Blot test for lyme is one example. 30% error is the best that is out there, and most labs are 50-6 0% error. But it is interesting that people get a negative test and the doctor without blinking says, you don't have lyme. That's...
  7. mftnchn
    You might search the forum for posts on insomnia or sleep issue because there is a lot of good information here about what worked for various people. I tried melatonin, 5HTP, trypophan, cortisol (adrenal treatment), hormones, and finally Ambien which worked. However, more recently I started a supplement called Travacor, which is a neurotransmitter support...
  8. mftnchn
    Ｙｏｕ＇ｖｅ　ｈａｄ　ｓｏｍｅ　ｇｏｏｄ　ａｄｖｉｃｅ　ｈｅｒｅ　ａｎｄ　ｔｈｅ　ｏｎｌｙ　ｔｈｉｎｇ　Ｉ　ｗｏｕｌｄ　ａｄｄ　ｉｓ　ｔｈａｔ　ａｎｏｔｈｅｒ　ｓｏｕｒｃｅ　ｏｆ　ｇｌｕｔｅｎ　ｉｓ　ｉｎ　ｔｈｅ　ｍａｒｉｎａｄｅ　ｏｒ　ｓｐｉｃｅｓ　ｕｓｅｄ　ｔｏ　ｃｏｏｋ　ｔｈｅ　ｍｅａｔ，　ｅｓｐｅｃｉａｌｌｙ　ｔｈｅ　ＳＷ　ｃｈｉｃｋｅｎ　ｃｏｍｅｓ　ｔｏ　ｍｉｎｄ． Ｍｙ　ｇｕｅｓｓ　ｉｓ　ｔｈａｔ　ｙｏｕ　ｈａｄ　ｓｅｖｅｒａｌ　ｓｏｕｒｃｅｓ　ｏｆ　ｃｏｎｔａｍｉｎａｔｉｏｎ．　　Ｉｔ　ｉｓ　ｖｅｒｙ　ｈａｒｄ　ｔｏ　ｍａｋｅ　ｔｈｅ　ａｄｊｕｓｔｍｅｎｔ　ｆｏｒ　ｔｒａｖｅｌ　ａｎｄ　ｓｏｃｉａｌ　ｅｖｅｎｔｓ．　 Ｉdon't know anything to sugges...
  9. mftnchn
    Ｉ＇ｄ　ｗｏｎｄｅｒ　ｉｆ　ｙｏｕ　ｗｅｒｅ　ａｄｅｑｕａｔｅｌｙ　ｇｌｕｔｅｎ　ｆｒｅｅ，　ｓｉｎｃｅ　ｙｏｕ　ｗｅｒｅ　ｎｏｔ　ｈｉｇｈｌｙ　ｓｙｍｐｔｏｍａｔｉｃ．　　Ｉ＇ｍ　ｎｏｔ　ｓｕｇｇｅｓｔｉｎｇ　ｙｏｕ　ｗｅｒｅ　ｎｏｔ　ｃａｒｅｆｕｌ，　ｉｔ　ｉｓ　ｊｕｓｔ　ｅｘｔｒｅｍｅｌｙ　ｈａｒｄ　ｔｏ　ａｖｏｉｄ　ｇｌｕｔｅｎ　ａｎｄ　ｍａｙｂｅ　ｙｏｕ　ｄｏｎ＇ｔ　ｋｎｏｗ　ｗｈｅｎ　ｙｏｕ　ａｒｅ　ｅｘｐｏｓｅｄ． Ｉｆ　ｙｏｕ　ｗｅｒｅ　ａｄｅｑｕａｔｅｌｙ　ｇｌｕｔｅｎ　ｆｒｅｅ，　ａ　ｃｈａｌｌｅｎｇｅ　ｍｉｇｈｔ　ｐｒｏｖｏｋｅ　ｓｔｒｏｎｇ　ｓｙｍｐｔｏｍｓ　ａｎｄ　ｔｈｅｎ　ｙｏｕ　ｗｏｕｌｄ　ｋｎｏｗ． Ｉ　ｓｔｉｌｌ　ｗｏｕｌｄ　ａｓｋ　ｆｏｒ　ａ　ｃｏｐｙ　ｏ...
  10. mftnchn
    Kassandra, this sounds good, hope she works out really well. Ｓｈｅｒｒｙ
  11. mftnchn
    Nikki, I am really having trouble digesting and absorbing. Right now I am taking a prescription pancreatic enzyme mixture called Pangestyme UL20. You could google that to get the ingredients, it helps with the protein for sure. I take 2 at every meal. Then I take two other things that are OTC. One is called Digest Plus, by Professional Formulas...
  12. mftnchn
    Thanks. Can't wait to get the R/O water filter working to see if that helps too. Rachel, the scientificness is going over my head for now...but trying to at least recall that the info is here. Lots of fatigue for me lately too, but better yesterday and today. I wrote Dr. E after I read on the forum here that herbal tinctures often use grain...
  13. mftnchn
    Someone just mentioned they were staring Nattokinase--sorry, I forgot who? I just wanted to update you because I started this in mid-February. The ART testing showed I would benefit and had the fibrin problem common with lyme with poor lyme flow and the erlichia was plugging the lymph too. I take the Nattokinase for the fibrin issue (and maybe something...
  14. mftnchn
    My used copy bought online was cheap, it's an older book and very small. Published in '95 Sherry
  15. mftnchn
    I am really amazed at how well the Travacor (neurotransmitter support) is helping me sleep. Night 4 last night post time zone change, and I slept 6 hours with ambien until 5 am. That hasn't happened in several years usually it takes me 9-10 days on Ambien every night to switch. I think the Natural Calm (an easily absorbed magnesium) is also helping. ...
  16. mftnchn
    Celia, you didn't mention how your gluten-free diet was going--did you fall off the wagon so to speak, or is it possible you got some inadvertent exposure to gluten? Any changes lately like new medication that you haven't checked? So sorry you are going through this awful experience. How long have you been gluten-free? Some people here develop other...
  17. mftnchn
    My DH who has a lot of GERD, had a lot of discomfort and heartburn while on the humaworm. He made it through the course and didn't notice anything else. I did my first ART testing right after finishing my course of humaworm. She found I was very clear of any parasites, intestinal bacteria, candida. A couple of month later, I had more of this again....
  18. mftnchn
    I agree. I think most of us think we are communicating thoroughly but in reality, we are not. It is worth taking the time to explain clearly but without being defensive or attacking. Maybe say something like, "I notice that sometimes you say this or that, and I get the impression that you may think I am not taking this diagnosis seriously. I want to...
  19. mftnchn
    I am getting increasingly clear symptoms with accidental exposure to gluten; I am very very careful but it still happens on occasion from CC or poorly labeled items. My symptoms include fatigue, brain fog and this can be overwhelming. Now I get abdominal cramping, a bit of pain and discomfort, and some D. The first couple of times I was glutened, symptoms...
  20. mftnchn
    I think I would request a copy of your records of the endoscopy results from '02 as well as the notes of the doctor. If there was a positive biopsy at that time, I would very much hesitate to go off the gluten-free diet. Celiac can be sub-clinical but cause so many auto-immune issues. Once you have it, it never goes away. If you were told to go gluten...
  21. mftnchn
    Not sure but a good thing to research. Did you search in the "related disorders" section of this forum?
  22. mftnchn
    Simplygf, maybe SH is different but up here we are blocked from reading any blogs at all, so I can't get into your site.
  23. mftnchn
    Is there a celiac support group in your area? That might be a big help.
  24. mftnchn
    Yes, you could have another sensitivity that has developed, many people here have had that happen. I agree about the dairy. Soy is another frequent one. Beyond that, you may need to do an elimination diet to figure out what is going on. Search the forum here for info, but realize that a food sensitivity can be to anything and cause any symptom and varies...
  25. mftnchn
    I've just been reading about autism spectrum disorder (asperger's is in that spectrum) and lyme disease. There's some real similarities in your story and what I just read on this website. Open Original Shared Link There's a pdf article on that site as well about "bell's palsy of the gut" which talks about how lyme in the gut can mimic celiac disease...
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