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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    In addition to what Mushroom said had you been gluten free before the second scope and blood tests? If you were they should be negative results. If you are gluten free is the diet helping? That's the most important thing.
  2. ravenwoodglass
    My thought was soy also. It isn't uncommon for us to also have issues with soy come to the forfront after we have gone gluten free.
  3. ravenwoodglass
    They now make pretzel M&Ms. I wonder if CC is now an issue when it wasn't before?
  4. ravenwoodglass
    Celiac disease is genetic and DH is the skin form of celiac. However not everyone who has the genes develops celiac/DH. If you want children don't let having DH/celiac stop you. Not only may they never develop celiac but if you are diagnosed you will be alert for signs and will know to have them screened periodically for celiac.
  5. ravenwoodglass
    Have you been tested for celiac while you were still eating gluten? You have to be eating a regular gluten filled diet for the tests to be accurate. You mention you notice the pain when eating gluten, soy and dairy. It sounds like you may be intoleant of all of them if they bring on the pain and D. If you want to be tested for celiac then you need to...
  6. ravenwoodglass
    Thanks for going through the trouble of contacting and posting the results from these companies for us.
  7. ravenwoodglass
    I will admit that I had to look up Duhring Disease, I didn't know dermatitis herpeformis (DH) had any other names. Yes you do need the diet. A diagnosis of DH is a diagnosis of celiac and it may be impacting you in ways that you are not aware of yet. You can prevent a great deal of future damage to your bodies other organs, including the brain and liver...
  8. ravenwoodglass
    I agree with the others that you are without a doubt in the right place. You may want to call the GI doctor's office and ask if you can get on the cancellation list if your schedule is flexible enough to go in on short notice. In my humble opinion it is up to you whether you want to scope or not as you do need the diet no matter the results. If damage is...
  9. ravenwoodglass
    What are you typically eating? You may have an additional intolerance showing up and those won't be found with allergy testing. It may also be that you are just still healing or depending on what, where and how prepared your food is you may be getting a bit of CC.
  10. ravenwoodglass
    I needed a laugh today. Thanks for providing one.
  11. ravenwoodglass
    The chances of your being misdiagnosed and actually celiac are really pretty high as the other poster mentioned. Your excellent response to the diet followed strictly is the best 'diagnosis'. Glad to hear you are feeling so much better. Sometimes our bodies give us the answer that doctors can't.
  12. ravenwoodglass
    You might want to eat the rice chex dry and see if you still get bloated. Maybe it was the rice chex and not the milk? If it does turn out to be the dairy you will likely still be able to tolerate butter and some of the dairy replacements are not too bad. Just don't go with Rice Dream rice milk.
  13. ravenwoodglass
    My guess would be the popcorn. Did you have anything on it like the 'butter'? I don't know about all theaters but my local one the popcorn is safe but I usually get it plain. It could also have been something else you ate in the last day or two and not have anything to do with either the rices or the popcorn. It can be very hard to figure out what 'got...
  14. ravenwoodglass
    That is something you should talk to your doctor about. It could be helpful for some issues but it does have drawbacks when abused. Celiac is one of the diseases that it is approved for in some states. Your doctor will be able to tell you if it could be useful or suitable for you.
  15. ravenwoodglass
    I use the Garneir products for skin and for hair. They label clearly and I really like their skin products.
  16. ravenwoodglass
    Are you sure it was a virus and not a glutening? After we go gluten free and accidently get gluten our reactions can become stronger. That would also account for the increase in neuro symptoms.
  17. ravenwoodglass
    We can have other issues independant of the celiac. It sounds like the diet has helped you a great deal but you may need some additional help. Have you talked to a counselor or your doctor about this?
  18. ravenwoodglass
    Is your anxiety what is keeping you from sleeping? If that is the case you might do better with a low dose of an antianxiety med rather than a sleep aid. I have anxiety and use a minimal dose of alprazolam, the generic form of Xanax. The generic made by Sandoz is safe but name brand Xanax wasn't last time I checked.
  19. ravenwoodglass
    You said your allergist tested you for true allergies. Can you go back and have him give you a starting point for your elimination diet? Not all allergists will do this but that is how I did mine and it was what pinpointed my gluten problems. I had the testing for true allergies then he started me with only 5 foods. No beverages other than water, no spices...
  20. ravenwoodglass
    We do need to avoid bulk bins as the risk of cross contamination is too high. If your home is not totally gluten free do take precautions for in home CC risk also like seperate condiments, butter, toasters, strainers etc. Since you are gluten free already testing is out unless you want to do a 3 month gluten challenge. Even then you could have a false negative...
  21. ravenwoodglass
    As long as you are not yet gluten free go to your regular GP and ask for a celiac panel to be run. You do have to be eating gluten for the test to have any chance at being accurate. False negatives do happen even on a full gluten diet though. It is common for women with celiac to become progressively worse with each pregnancy. It might not be a bad idea to...
  22. ravenwoodglass
    Sorry you are having such a hard time. I hate to hear you are giving up things you love. Maybe this link will give you a few safe options of complete to go meals you can take camping with you. Open Original Shared Link Or make up goodie bags with for sure safe stuff like Snyders pretzels, raisins, fresh fruit, cut up veggies etc for only your consumption...
  23. ravenwoodglass
    I like Pamela's Baking mix. It does have dairy though. I also use Tom Sawyer brand.
  24. ravenwoodglass
    Do go gluten free after all celiac related testing is done. My neuro was also clueless about UBO's and it cost me years of progressively worse neuro symptoms. I will try and find some of the research on UBO's and post a link. They are considered diagnostic of celiac antibodies that have attacked the brain. It is possible to recover, although some may have...
  25. ravenwoodglass
    Be aware that gene testing is not diagnostic. There are people with the two most common celiac associated genes that never develop celiac and there are folks firmly diagnosed celiac that don't carry either of those two genes. Gene testing can be part of the diagnostic process but we do still have a lot to learn about the associated genes. The endoscopy...
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