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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Have you ever seen a good allergist who deals with intolerances as well as true allergies? One might be helpful. If you are calling around to find one do make sure that you ask if they deal with intolerances when making an appointment as not all do. One that deals with intolerances will test you for true allergies and then after a detailed list of what you...
  2. ravenwoodglass
    For me that was one of the first things that became annoying to me. So many think it is just because your hungrey but for me even in grade school I noticed if I ate breakfast my tummy would be grumbling all day. It got to the point in school where I would always have a sweater or coat on my lab to muffle the noise. After I was diagnosed that went away. My...
  3. ravenwoodglass
    Bring your own food, a cornish game hen stuffed along with a couple of sides or leftovers from a 'just your family' Thanksgiving meal the day before will make sure you have something safe to eat. The point of Thanksgiving is to be thankful and having been diagnosed and recovering your health is one real big thing to be thankful for this year. I hope you...
  4. ravenwoodglass
    Happy Birthday, that sounds like a really sweet thing for him to do. I noticed you have a three year old that is gluten free. It is always advised that all 1st degree relatives of someone with celiac be tested. If it possible to convince him to do so he really should be tested himself. After I was finally diagnosed and recovered my kids got tested. Even...
  5. ravenwoodglass
    False negatives on blood tests are not uncommon especially if they only do a partial panel or have not checked to see if you are IGA deficient. There are quite a few of us who suffered for years and years and were repeatedly blood test negative and told we had IBS. Your lucky in that you were able to get an endo even with a negative blood test result. You...
  6. ravenwoodglass
    It looks like you are making good progress. We don't heal overnight. It can take some time. Do avoid iodine also if you think you may have DH. Check all your toiletries also for gluten. I would not advise dapsone as it is very toxic and the DH will heal on it's own once you have been gluten-free for a while longer.
  7. ravenwoodglass
    Good, and keep eating it until your celiac testing is done. There are lots of reasons why someone might not be able to keep weight on so do get a full physical as well as the celiac testing. If you can get into your doctor sooner than a few weeks that might be a good idea. Are you having any issues other than the weight loss?
  8. ravenwoodglass
    You may not have to go stuffing-less. If your local store has Grainless Baker products see if they carry or can get their stuffing mix. I add some sauteed celery and onions to it but it is also good just out of the box with nothing added. Also check the recipe section as I am sure some folks have posted recipes for gluten-free stuffing if it is something...
  9. ravenwoodglass
    Yes save your money and spend it on gluten free food.
  10. ravenwoodglass
    That's what we are all advised to do and many of us do eat that way and have for years. I don't think anyone was saying that the diet was not a good one and can be beneficial. What some of us do disagree with is the idea that it will somehow cure celiac disease and enable us to go back to eating gluten at a later time.
  11. ravenwoodglass
    Welcome to the board. You may find your doctor gives you a diagnosis when your problems have resolved gluten free for a while. It sounds like the diet is making a real difference for you though and that is what counts most. If you have any questions feel free to ask.
  12. ravenwoodglass
    If this is all you are eating you are starving yourself. The three things added together make one full meal. You'll feel better if you start eating a protein source either meat, eggs, nut butters, chicken along with a starch like rice, potato, buckwheat etc and a veggie or fruit at each meal. Eggs are easy to cook. Heat a pan on the medium setting and melt...
  13. ravenwoodglass
    My blood pressure did go up but since it was so extremely low before diagnosis it is AFAIK still in normal ranges.
  14. ravenwoodglass
    I'm sorry but I just don't buy into that diet being a 'cure' for celiac. It might be helpful in healing the gut when we first go gluten free but cure celiac, well I think that is taking it a bit too far.
  15. ravenwoodglass
    They ususally put people in a twilight sleep and you shouldn't remember any of the procedure. Make sure you don't go gluten free until the scope is done. Do keep in mind that even if your scope is negative that with positive blood tests you do need the diet. It isn't just the gut that celiac attacks.
  16. ravenwoodglass
    The rice cooker allows you to cook the rice in the bottom and steam the veggies and or leftover meat in the top at the same time. You should be going with easier to digest veggies than broccoli and be eating more balanced meals. Have a carb and some protein with that veggie. That will help keep your blood sugar stable.
  17. ravenwoodglass
    It works because it is a combo of protein from the nuts and carbs from the sugar. Snacking with a protein and a carb at the same time is something that usually helps with low blood sugar. Nut butter on a apple slice or a piece of cheese and a couple crackers might also work.
  18. ravenwoodglass
    Many of us need to avoid dairy until we heal because we have trouble digesting it. After healing lots of us are able to add it back into our diets. I don't know of any relationship between type 1 diabetes and dairy consumption. While our chances of developing another autoimmune disease is there once we are diagnosed with one autoimmune disease that doesn...
  19. ravenwoodglass
    I hope they do too. Do you have a rice cooker? I often do some rice in the bottom of the cooker and steam veggies on the top. Quick and little prep other than rinsing the rice and cutting up the veggies if I am using fresh and not single ingredient frozen. If you don't have one you may want to pick one up. They aren't real expensive and they come in real...
  20. ravenwoodglass
    A month gluten free is not long and it does take a while to heal. Hang in there. Go ahead and start taking the supplements just let your doctor know what you are taking. The pallor and dark circles could be from anemia so it is good that you are getting that checked. Do tell the doctor the progress you have made on the diet and know that you should continue...
  21. ravenwoodglass
    "I am going to be eating plain organic chicken breast, with carrots or broccoli for every meal until I figure out what I have a problem with." The plain chicken (as long as it was not precooked in a deli) is good and so would a steak or homemade burger for variety as are the cooked carrots. You might want to switch the broccoli out with something like...
  22. ravenwoodglass
    It can be difficult to reenter the workforce when we still haven't fully healed. I don't know what your occupation was but there is a possibility that someplace like Vesid might be able to help you reenter the workforce in an occupation that you can handle. For myself I do volunteer work that has showed me how much stamina I really have and part time is really...
  23. ravenwoodglass
    If you had positive tests 2 years ago IMHO you don't need more testing. Get your hands on copies of those tests, you have a legal right to them. I would be switching doctors after I got my records if your doctor ignored this. Having those positive tests may help you get in to get an endo sooner, if you really feel you need one. If you don't want the endo...
  24. ravenwoodglass
    The equivalent of 3 to 4 slices of bread a day for 3 months is the standard advise. If the challenge makes you ill then you have your answer even if the tests are negative.
  25. ravenwoodglass
    I didn't get rid of that pain completely until I got rid of soy. If you are still consuming products with soy perhaps try dropping it for a bit to see if it helps. I also get it when CC'd but oddly enough it isn't as severe as when I get soyed. For me Pepto Bismal liquid usually helps a lot.
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